Wow – time is just flying by!! We hope everyone had a wonderful Thanksgiving…I know we sure did! Jack is doing very well these days. He started eating solids…what a sight! He HATES carrots, loves sweet potatoes, and doesn’t mind squash or peas. Soon we’ll move on to the good stuff! Yummy fruit!
Jack had a check up at Hershey with his neonatologist. He was his doctor during the roughest part of Jack’s NICU stay -- A time when we honestly did not know if Jack would pull through. Needless to say he was extremely impressed at how well Jack is doing now! Jack was hamming it up too – laughing and smiling and pulling on the doctor’s stethoscope. It was too cute! He will see him again in 6 months. The doctor discontinued Jack’s apnea monitor! They came to pick it up yesterday. Last night was our very first night without the monitor. Of course Jack did a-ok but we didn’t sleep very well!
Jack is now over 16 and a half pounds and 27 inches long. He’s a mighty big boy! Growing and growing and growing! It’s amazing to look back at his first tiny little diaper or his tiny preemie clothing. Hard to believe he was EVER that small.
Friday, December 05, 2003
Monday, November 17, 2003
Hi everyone!
We can’t believe how much Jack is growing and changing! He’s doing very well all around. He’s somewhere around 16 pounds and 27 inches now – we’ll know for sure when we go to the pediatrician for a check up and another RSV shot this Thursday. We know he’s getting bigger because his clothing keeps getting smaller and smaller! Can you believe he’s wearing size 12 months now?!?!?
He’s definitely teething…the poor guy is drooling and biting on anything and everything he can get his hands and mouth on. He’s even waking more at night and not eating too well the last few days. We hope those little teeth come in soon so he can get a break!
His physical therapy is going well. He can sit for almost 30 seconds all on his own! He also just started holding himself up on straight arms and knees. He knows he wants to get somewhere so he launches himself forward and crash lands on his little nose…then laughs and does it again!
He’s ‘talking’ much more as well. He says ooohDA….ohhhBA and lots of mmms and ooohs and ahhhs. He’ll look at you and concentrate really hard and just start telling you whatever is on his mind. He’s such a happy baby, very pleasant and a fan of the ladies as well!
Jack started occupational therapy last week. She said Jack is doing a great job eating and she doesn’t see any problems with is ability to take the bottle or eat from a spoon. She’ll continue to work with him twice a month as we introduce new foods and textures. She’ll also observe and track the development of his fine motor skills – like picking up, holding and manipulating toys and other objects.
We’re getting excited for the holiday season - can’t believe it’s already that time again! This will be a fun time full of a lot of firsts for Jack. We think he’ll just love looking at the Christmas tree and all of the lights and shiny ornaments! Oh, and all the presents too!
Thanks to all of you who keep reading this website! We hope everyone is doing well. Can’t wait until spring so Jack can come visit you!
We can’t believe how much Jack is growing and changing! He’s doing very well all around. He’s somewhere around 16 pounds and 27 inches now – we’ll know for sure when we go to the pediatrician for a check up and another RSV shot this Thursday. We know he’s getting bigger because his clothing keeps getting smaller and smaller! Can you believe he’s wearing size 12 months now?!?!?
He’s definitely teething…the poor guy is drooling and biting on anything and everything he can get his hands and mouth on. He’s even waking more at night and not eating too well the last few days. We hope those little teeth come in soon so he can get a break!
His physical therapy is going well. He can sit for almost 30 seconds all on his own! He also just started holding himself up on straight arms and knees. He knows he wants to get somewhere so he launches himself forward and crash lands on his little nose…then laughs and does it again!
He’s ‘talking’ much more as well. He says ooohDA….ohhhBA and lots of mmms and ooohs and ahhhs. He’ll look at you and concentrate really hard and just start telling you whatever is on his mind. He’s such a happy baby, very pleasant and a fan of the ladies as well!
Jack started occupational therapy last week. She said Jack is doing a great job eating and she doesn’t see any problems with is ability to take the bottle or eat from a spoon. She’ll continue to work with him twice a month as we introduce new foods and textures. She’ll also observe and track the development of his fine motor skills – like picking up, holding and manipulating toys and other objects.
We’re getting excited for the holiday season - can’t believe it’s already that time again! This will be a fun time full of a lot of firsts for Jack. We think he’ll just love looking at the Christmas tree and all of the lights and shiny ornaments! Oh, and all the presents too!
Thanks to all of you who keep reading this website! We hope everyone is doing well. Can’t wait until spring so Jack can come visit you!
Friday, October 31, 2003
HAPPY HALLOWEEN!!
Jack is doing very well. He is now 15 pounds! We can hardly believe how BIG he is now! He’s almost 8 months old. He’s continuing to eat very well and loves his oat cereal!! We think he may be teething as well – lots of drooling and chewing on his hands and fingers.
Jack had his first of seven RSV shots – it went well except his legs were very sore for a few days! We remain indoors now avoiding shopping centers, grocery stores and crowds. We did however get out of the house a little bit yesterday! Jack went to visit his great grandma Olga and his great grandpa Chuss. Everyone had a wonderful time. Jack was laughing and smiling at them!
The next few weeks are pretty much appointment free with the exception of his physical and occupational therapy. December is a busy month for Jack. He’ll see his neurosurgeon, his neonatologist and his pediatrician. Jack is also scheduled for a baseline CT scan. We are not sure what the procedure involves – we’ll get more information when we get the letter in the mail. We do know they want to do them every so often to make sure his shunt is continuing to work well.
Thanks to everyone for your donations towards the Rocking Chair for Jack’s NICU!! We will probably have the chair ready to be delivered to the NICU by Jack’s first birthday in March. We will keep you updated!
Jack is doing very well. He is now 15 pounds! We can hardly believe how BIG he is now! He’s almost 8 months old. He’s continuing to eat very well and loves his oat cereal!! We think he may be teething as well – lots of drooling and chewing on his hands and fingers.
Jack had his first of seven RSV shots – it went well except his legs were very sore for a few days! We remain indoors now avoiding shopping centers, grocery stores and crowds. We did however get out of the house a little bit yesterday! Jack went to visit his great grandma Olga and his great grandpa Chuss. Everyone had a wonderful time. Jack was laughing and smiling at them!
The next few weeks are pretty much appointment free with the exception of his physical and occupational therapy. December is a busy month for Jack. He’ll see his neurosurgeon, his neonatologist and his pediatrician. Jack is also scheduled for a baseline CT scan. We are not sure what the procedure involves – we’ll get more information when we get the letter in the mail. We do know they want to do them every so often to make sure his shunt is continuing to work well.
Thanks to everyone for your donations towards the Rocking Chair for Jack’s NICU!! We will probably have the chair ready to be delivered to the NICU by Jack’s first birthday in March. We will keep you updated!
Wednesday, October 15, 2003
Good morning! Hope it’s not too windy out there for everyone!
Jack is really doing well! He’s changing and growing so much – he’s becoming such a big boy!!
Jack was discharged from his eye doctor!!! No more terrible eye exams (for those of you who aren’t familiar with the eye exams they do on preemies it’s a horrible exam for those little ones to go through – we’ll spare you the details). The eye doctor says his preemie condition called ROP is all cleared up! Jack still has optic nerve damage, but that has been stable ever since they first discovered it. Jack’s eye doctor was optimistic about Jack’s prognosis. The doctor is pleased that Jack is right on track visually for his age - tracking objects, following people from across the room, etc. Jack will have a regular eye exam in 6 months to tell if he’s near or far sighted. Chances are since both of his parents wear glasses, Jack will need them some day as well.
Jack is eating very well and continues to enjoy his cereal…he tried to have a drink of water with a sippy cup but it was too difficult for him – we’ll have to find a different cup that makes it a bit easier! He’s taking 5-6 ounces of formula now! Such a big guy!
We had a quarterly review with early intervention last week. His physical therapist said she’s very impressed with how far Jack has come since he first started therapy. She says he’s doing things at about a 5-6 month age level – which is advanced for him because he’s only expected to do things on a 4 month age level right now. As time goes by Jack will close the gap between his real age and his adjusted age. Doctors say this usually happens by the time they are 2 to 3 years old. Jack was approved to start occupational therapy twice a month in home (just like his physical therapy). We are happy because this will help Jack learn so many new things.
Jack is really doing well! He’s changing and growing so much – he’s becoming such a big boy!!
Jack was discharged from his eye doctor!!! No more terrible eye exams (for those of you who aren’t familiar with the eye exams they do on preemies it’s a horrible exam for those little ones to go through – we’ll spare you the details). The eye doctor says his preemie condition called ROP is all cleared up! Jack still has optic nerve damage, but that has been stable ever since they first discovered it. Jack’s eye doctor was optimistic about Jack’s prognosis. The doctor is pleased that Jack is right on track visually for his age - tracking objects, following people from across the room, etc. Jack will have a regular eye exam in 6 months to tell if he’s near or far sighted. Chances are since both of his parents wear glasses, Jack will need them some day as well.
Jack is eating very well and continues to enjoy his cereal…he tried to have a drink of water with a sippy cup but it was too difficult for him – we’ll have to find a different cup that makes it a bit easier! He’s taking 5-6 ounces of formula now! Such a big guy!
We had a quarterly review with early intervention last week. His physical therapist said she’s very impressed with how far Jack has come since he first started therapy. She says he’s doing things at about a 5-6 month age level – which is advanced for him because he’s only expected to do things on a 4 month age level right now. As time goes by Jack will close the gap between his real age and his adjusted age. Doctors say this usually happens by the time they are 2 to 3 years old. Jack was approved to start occupational therapy twice a month in home (just like his physical therapy). We are happy because this will help Jack learn so many new things.
Monday, September 22, 2003
Hello everyone! It’s been a while since our last Journal entry! Jack is up to 13lbs, 3oz! And he’s almost 25 inches long – his doctor continues to be impressed with his growth and development as we are of course!
He now gets baby cereal 2 to 3 times a day. This is such a fun thing for all of us – at first Jack did not seem to understand what in the world we were doing…but as each day passes he gets better and better at eating from a spoon! He’s also figured out how to scoop some out of his mouth and plaster it all over his hair, his clothing, his mom, his dad and anything else in close proximity – so he’s spending more time in the bathtub too! Next month Jack can start to practice drinking from a “sippy cup.” His doctor says it’s best to introduce this early so when it comes time for him to give up his bottle it won’t be such a difficult transition.
He saw his eye doctor this month and he only wants to see him back in a month – his ROP is slowly resolving and his optic nerve atrophy remains stable. Jack is starting to follow people from a distance now and he loves to watch the ceiling fan! He loves when you make silly faces and funny noises – he just laughs and laughs! He’s a very happy baby!
He’s continuing to sleep through the night in his own bed (bassinet). Soon he’ll be over the weight limit of his bassinet and we’ll make the transition to his crib upstairs – possibly this coming weekend.
His physical therapy is continuing to go very well. He spends a lot of time on his tummy, building up those muscles! We are hoping to start occupational therapy with him as well – instead of going to Hershey for the feeding clinic (which as proven to be a bit hectic). Occupational therapy would also help him develop his fine motor skills (like picking up objects, eating, etc.). This would be just like his physical therapy – once a week in our own home, one on one in a familiar setting.
Jack gets his very first pictures taken tomorrow at Sears…hoping he’s up for a photo shoot! Speaking of photos, we’ve added new ones!!!! Click HERE to see them!
Jack has an appointment with his neurosurgeon on Friday for a check up. We’ll let you know how it goes! Next month Jack starts his RSV shots. To read more about RSV and what it means for Jack as a preemie click HERE.
He now gets baby cereal 2 to 3 times a day. This is such a fun thing for all of us – at first Jack did not seem to understand what in the world we were doing…but as each day passes he gets better and better at eating from a spoon! He’s also figured out how to scoop some out of his mouth and plaster it all over his hair, his clothing, his mom, his dad and anything else in close proximity – so he’s spending more time in the bathtub too! Next month Jack can start to practice drinking from a “sippy cup.” His doctor says it’s best to introduce this early so when it comes time for him to give up his bottle it won’t be such a difficult transition.
He saw his eye doctor this month and he only wants to see him back in a month – his ROP is slowly resolving and his optic nerve atrophy remains stable. Jack is starting to follow people from a distance now and he loves to watch the ceiling fan! He loves when you make silly faces and funny noises – he just laughs and laughs! He’s a very happy baby!
He’s continuing to sleep through the night in his own bed (bassinet). Soon he’ll be over the weight limit of his bassinet and we’ll make the transition to his crib upstairs – possibly this coming weekend.
His physical therapy is continuing to go very well. He spends a lot of time on his tummy, building up those muscles! We are hoping to start occupational therapy with him as well – instead of going to Hershey for the feeding clinic (which as proven to be a bit hectic). Occupational therapy would also help him develop his fine motor skills (like picking up objects, eating, etc.). This would be just like his physical therapy – once a week in our own home, one on one in a familiar setting.
Jack gets his very first pictures taken tomorrow at Sears…hoping he’s up for a photo shoot! Speaking of photos, we’ve added new ones!!!! Click HERE to see them!
Jack has an appointment with his neurosurgeon on Friday for a check up. We’ll let you know how it goes! Next month Jack starts his RSV shots. To read more about RSV and what it means for Jack as a preemie click HERE.
Friday, September 05, 2003
Tuesday, August 26, 2003
Jack’s been really surprising us lately! He’s been sleeping in his bed all night long for about a week! The time of his night feedings are usually around 11:00pm then again at 5:00am. This schedule is working out pretty good because if we try to put him to bed before 11pm he is too wide awake and just smiles at you then eventually cries because he’s not tired – but right after he gets his bottle he drifts off into a deeper sleep! He still eats every three hours during the day and his pediatrician is happy with his gaining so she said it was a-ok to let him go a little longer at night. Which works out because when we used to wake him up in the middle of the night he would never eat much anyway. We are all still sleeping downstairs – but we no longer have to hold him all night long!!!!! We made a goal of getting us all upstairs in our real beds as soon as the weather gets cooler (too hot upstairs anyway right now).
Once Jack’s pediatrician saw his hip X-RAY from the hospital she said she needed to get a clearer picture so she is sending us to Hershey to get an ultrasound done. In younger babies an ultrasound shows a better picture of the bones. We are praying everything is okay. The ultrasound is scheduled for September 3rd. Jack has a busy September with lots of appointments! We’ll keep you updated on how they go.
Oh, and PS – today is Jack’s mom’s birthday!
Once Jack’s pediatrician saw his hip X-RAY from the hospital she said she needed to get a clearer picture so she is sending us to Hershey to get an ultrasound done. In younger babies an ultrasound shows a better picture of the bones. We are praying everything is okay. The ultrasound is scheduled for September 3rd. Jack has a busy September with lots of appointments! We’ll keep you updated on how they go.
Oh, and PS – today is Jack’s mom’s birthday!
Friday, August 22, 2003
Jack saw his pediatrician yesterday. He gained 2 pounds and 3 inches in one month!!! He’s up to 11lbs 12oz and 23 inches long. She was very pleased with his development – she nearly fell over when she learned he was rolling over! She even thinks he may be able to start some solid food next month. She was examining Jack and she felt his left hip may be dislocated – so she sent us over to the Good Sam Hospital for an X-Ray. This showed that his hip is not dislocated – there’s just a slight rotation. We were told this isn’t an issue right now and there’s nothing we need to do for it. So we were thankful that it was not dislocated.
We will see her again next month for more shots (oh no!) and another check up.
We will see her again next month for more shots (oh no!) and another check up.
Monday, August 18, 2003
Good morning!
Jack’s physical therapist was here on Friday – she was very happy with Jack’s progress in one week’s time. She said last Friday she had him right at 2 months old with his skills – this Friday she had him at 3 months old! She said the closer his developmental age and actual age are the better! So he’s really doing well!
Jack’s physical therapist was here on Friday – she was very happy with Jack’s progress in one week’s time. She said last Friday she had him right at 2 months old with his skills – this Friday she had him at 3 months old! She said the closer his developmental age and actual age are the better! So he’s really doing well!
Friday, August 15, 2003
It’s almost the weekend again! YAY! Jack likes weekends (okay, so really it’s mom that likes weekends the best – she gets a much needed break!)
Jack did something amazing this week! He rolled over from his belly to his back! We could hardly believe our eyes and our luck (we were both present to witness this milestone). He hasn’t done it again yet – but he gets close. Hopefully he’ll show off his new talent when his physical therapist is here today!
He saw his eye doctor this week – and he only wants to see him back in a month! This is good news! Jack’s ROP is clearing up and his optic nerve atrophy remains stable.
Next week is our trip to the pediatrician. Then we’ll finally get a new weight on the (not so little anymore) guy! He’s continuing to eat well – which is just so great!
Have a great weekend everyone!
Jack did something amazing this week! He rolled over from his belly to his back! We could hardly believe our eyes and our luck (we were both present to witness this milestone). He hasn’t done it again yet – but he gets close. Hopefully he’ll show off his new talent when his physical therapist is here today!
He saw his eye doctor this week – and he only wants to see him back in a month! This is good news! Jack’s ROP is clearing up and his optic nerve atrophy remains stable.
Next week is our trip to the pediatrician. Then we’ll finally get a new weight on the (not so little anymore) guy! He’s continuing to eat well – which is just so great!
Have a great weekend everyone!
Sunday, August 10, 2003
Wow, Jack is really keeping us busy! He stays awake most of the day now with a cat-nap or two here and there. He spends an hour or so in his swing various times during the day too.
We switched Jack from his Preemie Slow Flow nipple to a regular one this week and noticed a dramatic increase in the amount of food he is taking. We are so thankful because we noticed he wasn’t really eating too well the last few weeks – here he was just frustrated and tiring himself out trying to eat from the slower nipple.
We keep him off of his monitor a lot now. Only when he’s not in our direct sight do we put it back on him. We’ll be happy when he no longer needs it!
Jack is such a little ham – very social and flirty with the women! He loves “talking” to you and laughs a goofy little laugh when he’s delighted. He’s getting to be such a big boy! His physical therapist is happy with his progress. He’s right on track developmentally for his adjusted age of (almost) two months old. It’s hard to believe he’s almost 6 months old!!!
We switched Jack from his Preemie Slow Flow nipple to a regular one this week and noticed a dramatic increase in the amount of food he is taking. We are so thankful because we noticed he wasn’t really eating too well the last few weeks – here he was just frustrated and tiring himself out trying to eat from the slower nipple.
We keep him off of his monitor a lot now. Only when he’s not in our direct sight do we put it back on him. We’ll be happy when he no longer needs it!
Jack is such a little ham – very social and flirty with the women! He loves “talking” to you and laughs a goofy little laugh when he’s delighted. He’s getting to be such a big boy! His physical therapist is happy with his progress. He’s right on track developmentally for his adjusted age of (almost) two months old. It’s hard to believe he’s almost 6 months old!!!
Thursday, July 31, 2003
Hello everyone!
Jack saw his eye doctor yesterday for yet another exam. He said his ROP is looking better and his Optic Nerve Atrophy has not changed. He would like to see us back in three weeks to be sure his ROP is still resolving. While we were at the appointment yesterday we saw so many NICU babies! You can always tell a NICU baby by the tiny grunts, monitor and/or oxygen wires coming from their little carriers. It was like a reunion. Although we only knew one of the babies personally it was the first time we were around so many NICU graduates.
Jack had two firsts this week! He went on his first social visit to his Great-Umpa’s house to wish him a happy birthday last weekend. We sat outside in a screened in patio and Jack did great! He was looking around and seemed to love the fresh air. Then earlier this week Grandma Josie and Mommy took Jack to K-Mart to buy some summer clothing for Jack for next year. It was nice because the store was virtually empty so we were able to take our time and walk Jack around a little bit. These were Jack’s first outings other than to the doctor. We still must avoid crowds but while the weather is still nice hopefully we will have a few more of these social outings.
From this coming October through April we will have to be meticulous about avoiding certain things because in Pennsylvania it is RSV season. To read more about RSV click HERE. Jack will get a series of 7 monthly shots to help protect him from RSV. It is very serious and could possibly put Jack back in the hospital and/or leave him with life long breathing complications which is something we desperately want to avoid. We won’t be having too many visitors or going out much which may make for a long winter but it is in Jack’s best interest!
Jack’s physical therapist from Early Intervention has visited us twice now. She’s a nice lady and is very informative. She’s given us a few things to work on. She made this little seat for Jack to sit on out of a few blankets and masking tape. He sits on it and is able to bring his hands together to grasp toys much easier than if he was lying flat on his back. She’s been teaching us infant massage as well – Jack really likes this! She also showed us a way to hold Jack so that he can practice his head control. All of these things will help Jack reach his developmental milestones.
We haven’t been back to the pediatrician since the last journal update…so we don’t have a current weight for Jack, but with his gaining history he should be well over 10 lbs by now! We see his pediatrician at the end of August.
Jack saw his eye doctor yesterday for yet another exam. He said his ROP is looking better and his Optic Nerve Atrophy has not changed. He would like to see us back in three weeks to be sure his ROP is still resolving. While we were at the appointment yesterday we saw so many NICU babies! You can always tell a NICU baby by the tiny grunts, monitor and/or oxygen wires coming from their little carriers. It was like a reunion. Although we only knew one of the babies personally it was the first time we were around so many NICU graduates.
Jack had two firsts this week! He went on his first social visit to his Great-Umpa’s house to wish him a happy birthday last weekend. We sat outside in a screened in patio and Jack did great! He was looking around and seemed to love the fresh air. Then earlier this week Grandma Josie and Mommy took Jack to K-Mart to buy some summer clothing for Jack for next year. It was nice because the store was virtually empty so we were able to take our time and walk Jack around a little bit. These were Jack’s first outings other than to the doctor. We still must avoid crowds but while the weather is still nice hopefully we will have a few more of these social outings.
From this coming October through April we will have to be meticulous about avoiding certain things because in Pennsylvania it is RSV season. To read more about RSV click HERE. Jack will get a series of 7 monthly shots to help protect him from RSV. It is very serious and could possibly put Jack back in the hospital and/or leave him with life long breathing complications which is something we desperately want to avoid. We won’t be having too many visitors or going out much which may make for a long winter but it is in Jack’s best interest!
Jack’s physical therapist from Early Intervention has visited us twice now. She’s a nice lady and is very informative. She’s given us a few things to work on. She made this little seat for Jack to sit on out of a few blankets and masking tape. He sits on it and is able to bring his hands together to grasp toys much easier than if he was lying flat on his back. She’s been teaching us infant massage as well – Jack really likes this! She also showed us a way to hold Jack so that he can practice his head control. All of these things will help Jack reach his developmental milestones.
We haven’t been back to the pediatrician since the last journal update…so we don’t have a current weight for Jack, but with his gaining history he should be well over 10 lbs by now! We see his pediatrician at the end of August.
Thursday, July 24, 2003
Jack is doing well…he’s awake much more during the day now, which is so neat! As some of you know, we have been waiting since April to have carpet installed in our living room…it kept getting back ordered! It’s finally here and installed! It’s wonderful – we love it very much. Jack likes to lie on his blanket and kick his legs and smile. It seems like he’s having a ball.
He’s almost cooing now. He tries hard to make little sounds with his voice. Any day now he’ll be “talking” up a storm! He finds things amusing too…he smiles and waves his arms when we show him Elmo, or another brightly colored toy. He also will get really still and listen for your voice when you start talking. He’s a social little guy – he loves to be talked to.
He is also appointment free for a while! Whew!…we are so glad. We do see his eye doctor again in a week, and hopefully it will go better than last time! We waited over 2 hours in the waiting room and felt so bad for Jack because he was getting soooo hungry! Guess eye doctors get swamped too.
He’s almost cooing now. He tries hard to make little sounds with his voice. Any day now he’ll be “talking” up a storm! He finds things amusing too…he smiles and waves his arms when we show him Elmo, or another brightly colored toy. He also will get really still and listen for your voice when you start talking. He’s a social little guy – he loves to be talked to.
He is also appointment free for a while! Whew!…we are so glad. We do see his eye doctor again in a week, and hopefully it will go better than last time! We waited over 2 hours in the waiting room and felt so bad for Jack because he was getting soooo hungry! Guess eye doctors get swamped too.
Friday, July 18, 2003
Jack is glad this busy week is almost over – and we are too! His meeting with the feeding team went well. They think Jack’s suck/swallow/breathe reflex is right on track. They advised us to continue with the same feeding plan we’ve been using, slightly increasing his amount each week.
Jack’s pediatrician was very impressed with Jack’s growth and development. He’s up to 9lbs, 12 oz! He’s gained OVER an ounce a day since his last visit. She said she doesn’t want to make any predictions about Jack’s future, but at this point she couldn’t be any more pleased! And that is a totally acceptable answer. He had to get three vaccination shots…he did NOT like those! But they gave him some pretty cool Band-Aids and he was happy with that!
We see the eye doctor today, and then we are finished with appointments for a while! It will be nice to have a break from all those doctors. Though we did ask his pediatrician if we can come back in a month (rather than two months) for a weight/growth check and she happily agreed.
Stay tuned for some new pictures! If Jack takes his morning nap, they might have a chance to be added today!
Jack’s pediatrician was very impressed with Jack’s growth and development. He’s up to 9lbs, 12 oz! He’s gained OVER an ounce a day since his last visit. She said she doesn’t want to make any predictions about Jack’s future, but at this point she couldn’t be any more pleased! And that is a totally acceptable answer. He had to get three vaccination shots…he did NOT like those! But they gave him some pretty cool Band-Aids and he was happy with that!
We see the eye doctor today, and then we are finished with appointments for a while! It will be nice to have a break from all those doctors. Though we did ask his pediatrician if we can come back in a month (rather than two months) for a weight/growth check and she happily agreed.
Stay tuned for some new pictures! If Jack takes his morning nap, they might have a chance to be added today!
Tuesday, July 15, 2003
Jack has a busy week – he meets with the feeding team at Hershey today to evaluate his suck/swallow/breathe functions. We’re sure he’s doing just fine, but they always follow up with the babies who go home with feeding tubes. Jack is eating very well and we’re wondering when he should start to eat cereal. We’ll probably discuss this today. Jack also sees his eye doctor and pediatrician this week too.
Both of Jack’s NICU buddies are doing well and are at home with their mommies and daddies. Thanks to everyone who kept them in their thoughts and prayers during their readmission to the hospital. We can’t wait until they are old enough to play together!
Jack is getting used to not being on his monitor (and so are we!!) and he doesn’t seem to like it when we put it back on him when it’s time for bed. Soon enough we won’t need it at all – but for right now it does give us peace of mind and I am sure we won’t want to give it back! We joke and say we’ll probably chase after him with it when he’s a teenager and going to get his driver’s license! Just kidding!
Both of Jack’s NICU buddies are doing well and are at home with their mommies and daddies. Thanks to everyone who kept them in their thoughts and prayers during their readmission to the hospital. We can’t wait until they are old enough to play together!
Jack is getting used to not being on his monitor (and so are we!!) and he doesn’t seem to like it when we put it back on him when it’s time for bed. Soon enough we won’t need it at all – but for right now it does give us peace of mind and I am sure we won’t want to give it back! We joke and say we’ll probably chase after him with it when he’s a teenager and going to get his driver’s license! Just kidding!
Wednesday, July 09, 2003
Well, guess what! Jack is off of his oxygen!!! We met with his neonatologist this morning and he said Jack was probably ready weeks ago! Jack also only has to be on his apnea monitor when he’s in his bed sleeping. If we are holding him, feeding him or interacting with him at all we don’t have to monitor him anymore. The freedom is amazing! Since Jack was born we’ve never been able to just hold Jack and walk with him without minding some type of wire or tube…it’s so great!
Jack is doing very well without his oxygen. His color stayed nice and pink all day today. We are very pleased! His neonatologist says Jack looks really well – developmentally. He noted a lot of the same things that the crew from Early Intervention noticed. He even confirmed he is certain Jack has vision. Even though we really knew this, it was great to hear. After his rough start and hearing such difficult news time and time again, it’s great when we get such good reports. Jack still has a lot to overcome and will always have his shunt to be concerned with – but he’s off to a GREAT start!!
Jack is doing very well without his oxygen. His color stayed nice and pink all day today. We are very pleased! His neonatologist says Jack looks really well – developmentally. He noted a lot of the same things that the crew from Early Intervention noticed. He even confirmed he is certain Jack has vision. Even though we really knew this, it was great to hear. After his rough start and hearing such difficult news time and time again, it’s great when we get such good reports. Jack still has a lot to overcome and will always have his shunt to be concerned with – but he’s off to a GREAT start!!
Tuesday, July 08, 2003
Jack’s meeting with Early Intervention went very well yesterday! They played with Jack on the floor and asked a lot of questions to see where he stands developmentally. They consider preemies’ development from their adjusted age. Even though Jack is four months old actual age, he’s three weeks old adjusted age. They scored him at two months old developmentally! He’s advanced for his adjusted age! They were very pleased with his movement and muscle tone and were happy to see he’s raising his head and interacting socially. They will come once a week to work on new milestones like grasping and mouthing toys, different positions, eventually sitting, etc. They are also going to teach us infant massage to help keep his muscle tone where it should be and help with constipation.
All in all Jack is excelling in growth and development – this is so great to hear from doctors and therapists because as parents we tend to be a bit biased in our opinions!
All in all Jack is excelling in growth and development – this is so great to hear from doctors and therapists because as parents we tend to be a bit biased in our opinions!
Sunday, July 06, 2003
We hope everyone had a nice 4th of July! We spent the day indoors with Jack just relaxing and watching tv. It was nice to get some quality family time!
Jack saw his pediatrician last week. He’s up to 8lbs, 13oz! She was extremely pleased with how well he’s doing. He gained just under an ounce a day…she’d like to see him back up to just over an ounce a day so we increased his feeds again. He takes almost 4 oz now, every three to four hours.
Last week Grandma Josie and mommy took Jack for his first walk outside. The weather was beautiful and Jack really seemed to love the outdoors. We plan on making it a part of our routine now.
Jack is becoming more social and loves to look at faces! He makes eye contact and searches for your face until his eyes lock on yours. He is “talking” now by making a variety of different sounds! He gets mad when you take his bottle away to burp him and lets us know he wants it back.
Jack is sleeping more and more in his bassinet. He sleeps after his feeds all morning and even at night last night. He’s becoming much more independent – he even loves to spend time in his swing now!
This week Early Intervention is coming to evaluate Jack. We’ll let you know what they have to say. Also, Jack sees his neonatologist at Hershey this week. We’ll be discussing his oxygen and if it’s time to wean him off.
Have a nice Sunday!
Jack saw his pediatrician last week. He’s up to 8lbs, 13oz! She was extremely pleased with how well he’s doing. He gained just under an ounce a day…she’d like to see him back up to just over an ounce a day so we increased his feeds again. He takes almost 4 oz now, every three to four hours.
Last week Grandma Josie and mommy took Jack for his first walk outside. The weather was beautiful and Jack really seemed to love the outdoors. We plan on making it a part of our routine now.
Jack is becoming more social and loves to look at faces! He makes eye contact and searches for your face until his eyes lock on yours. He is “talking” now by making a variety of different sounds! He gets mad when you take his bottle away to burp him and lets us know he wants it back.
Jack is sleeping more and more in his bassinet. He sleeps after his feeds all morning and even at night last night. He’s becoming much more independent – he even loves to spend time in his swing now!
This week Early Intervention is coming to evaluate Jack. We’ll let you know what they have to say. Also, Jack sees his neonatologist at Hershey this week. We’ll be discussing his oxygen and if it’s time to wean him off.
Have a nice Sunday!
Sunday, June 29, 2003
Jack’s trip to the neurologist went well. His ventricles look really good on the ultrasound -- a lot better than the last (in the exact words of the neuro). He said the shunt is definitely doing its job. He did note a tiny swollen spot behind Jack's ear (along the shunt tubing) but just told us to keep an eye on it and call if it seems to get bigger -- or "sausage-like" as he said. He only wants to see him again in September. So we’ll continue our daily inspection of Jack’s shunt site.
Jack's oxygen company is willing to bring us a great big tank for our first floor! This means we'll no longer only have 7 feet to move Jack around -- we'll have 50! We are VERY happy about this! Now he’ll get to see more than the living room! They are coming on Monday to deliver it.
This week Jack sees his pediatrician on Thursday. We are looking forward to another weigh-in! He was 8lbs, 1oz on June 18th, so we’re excited to get the newest numbers!
We learned that Jack’s other friend (the same one we saw at the eye doc) is now back in the hospital with a possible infection. They took him in through the ER last night. We would like to ask you to keep him in your thoughts and prayers. We keep in contact with his family by e-mail mostly and we’ll keep you posted on how he’s doing. Jack’s other friend is still recovering (at home) from his stay.
Jack's oxygen company is willing to bring us a great big tank for our first floor! This means we'll no longer only have 7 feet to move Jack around -- we'll have 50! We are VERY happy about this! Now he’ll get to see more than the living room! They are coming on Monday to deliver it.
This week Jack sees his pediatrician on Thursday. We are looking forward to another weigh-in! He was 8lbs, 1oz on June 18th, so we’re excited to get the newest numbers!
We learned that Jack’s other friend (the same one we saw at the eye doc) is now back in the hospital with a possible infection. They took him in through the ER last night. We would like to ask you to keep him in your thoughts and prayers. We keep in contact with his family by e-mail mostly and we’ll keep you posted on how he’s doing. Jack’s other friend is still recovering (at home) from his stay.
Thursday, June 26, 2003
Jack went on a trip to see his eye doctor yesterday. We even saw one of Jack’s very best little friends there! It was so special to see them together again. Jack really doesn’t like these eye exams!! He cried so loud he made the doctor’s ears hurt. It was over almost as soon as it started and we were on our way home again. Right now they are keeping an close watch on Jack’s eyes. Almost all preemies end up with a condition called ROP (Retinopathy of Prematurity) and ranges from mild to severe. ROP is when abnormal development of the blood vessels supplying the retina of the eye occurs. This can be very serious if not monitored and treated. Jack’s ROP is very mild and he’s almost “in the clear.” He’ll go back for another exam in three weeks. Jack also suffered Optic Nerve Atrophy close to or at the time of his brain bleed a few days after birth. This is something that we will not know the long term effects of until Jack is older. This is damage that occurred, and won’t get worse and won’t get better, basically what’s done is done. There is no treatment or surgery for Optic Nerve Atrophy and we were told it’s “wait and see.” We do feel Jack has vision and it’s getting more and more obvious to us. He follows our faces (even without voices) and loves to look at his little Elmo doll. So we take these as very good signs.
Tomorrow Jack sees his neurologist for a check up. He’ll be able to tell us if Jack’s shunt is doing its job by doing a cranial ultrasound and observing Jack’s behavior. We left the hospital with a bulleted list of things to watch out for when a shunt malfunctions. So far everything looks okay when we do our daily checks. We’ll keep you updated on how his appointment goes.
Tomorrow Jack sees his neurologist for a check up. He’ll be able to tell us if Jack’s shunt is doing its job by doing a cranial ultrasound and observing Jack’s behavior. We left the hospital with a bulleted list of things to watch out for when a shunt malfunctions. So far everything looks okay when we do our daily checks. We’ll keep you updated on how his appointment goes.
Saturday, June 21, 2003
Jack seems to be growing right before our eyes! He’s totally outgrown all of his preemie clothing and is now filling out his “big boy” clothing quite nicely. He’s continuing to eat very well – it’s been over a week without the feeding tube. He even gets one ounce of apple juice every day!
We pretty much are still living out of two rooms downstairs. Jack has yet to be upstairs to his nursery and we have yet to sleep in our bed since he’s been home. Right now we take turns sleeping at night on the sofa. Once he is off the oxygen it will be so much easier to move him from room to room. We hope it’s not too much longer! We’ll know more next month after we meet with his neonatologist at Hershey.
Jack has long periods of alertness now. He doesn’t sleep all the time anymore. It’s so neat to see his personality take shape each passing day. He has certain things he loves and certain things he really dislikes. His strength is also amazing us as well. He has great head control and is pushing himself up when he’s on his belly.
Jack is involved in a program called Early Intervention which is a group consisting of physical, occupational and speech therapists. They are coming soon for their first evaluation of Jack. They make sure Jack has all the extra help he needs to catch up and they help identify any delays he may have. Early Intervention helps a lot of children and especially preemies. It’s a proactive approach to facing any difficulties that may exist. We are glad to be involved with such a program.
Have a nice weekend everyone!
We pretty much are still living out of two rooms downstairs. Jack has yet to be upstairs to his nursery and we have yet to sleep in our bed since he’s been home. Right now we take turns sleeping at night on the sofa. Once he is off the oxygen it will be so much easier to move him from room to room. We hope it’s not too much longer! We’ll know more next month after we meet with his neonatologist at Hershey.
Jack has long periods of alertness now. He doesn’t sleep all the time anymore. It’s so neat to see his personality take shape each passing day. He has certain things he loves and certain things he really dislikes. His strength is also amazing us as well. He has great head control and is pushing himself up when he’s on his belly.
Jack is involved in a program called Early Intervention which is a group consisting of physical, occupational and speech therapists. They are coming soon for their first evaluation of Jack. They make sure Jack has all the extra help he needs to catch up and they help identify any delays he may have. Early Intervention helps a lot of children and especially preemies. It’s a proactive approach to facing any difficulties that may exist. We are glad to be involved with such a program.
Have a nice weekend everyone!
Thursday, June 19, 2003
We got an update on Jack’s little friend. He’s home now from the hospital with his mommy and daddy! Our thoughts continue to be with them as their little one recovers.
Jack got his weigh-in yesterday….he’s now 8lbs, 1oz!!! So using all that extra energy to finish his bottles has not slowed his weight gain. He’s continuing to gain over an ounce a day! We are so proud of Jack!
This week Jack was appointment free (except his quick trip to use the scale) and this coming week Jack sees his eye doctor and his neurologist – both appointments are at the medical center. Jack enjoys these road trips – we just can’t wait until he can go somewhere other than the doctor!
Jack got his weigh-in yesterday….he’s now 8lbs, 1oz!!! So using all that extra energy to finish his bottles has not slowed his weight gain. He’s continuing to gain over an ounce a day! We are so proud of Jack!
This week Jack was appointment free (except his quick trip to use the scale) and this coming week Jack sees his eye doctor and his neurologist – both appointments are at the medical center. Jack enjoys these road trips – we just can’t wait until he can go somewhere other than the doctor!
Tuesday, June 17, 2003
Jack is doing great. He seems to be in a routine now which is good except for we think he has his days and nights mixed up! He is sleeping wonderfully in his bed through the day, but as soon as we get sleepy and are ready to doze off Jack is wide eyed and not interested in sleeping!
Jack is continuing to take all of his bottles like a pro. He goes to his pediatrician for a “weigh-in” just to make sure he’s continuing to gain weight and not spending too much of his energy and calories taking his bottle. So we’re anxious to see how much he weighs tomorrow!
We became close to two families in the NICU. All of our boys had similar issues including shunt surgeries. We just learned that one of Jack’s little friends is back in the hospital due to a shunt malfunction and there were complications with the surgery. He’s still in the hospital now, and our hearts are breaking for his family. Please keep your thoughts and prayers with them.
Jack is continuing to take all of his bottles like a pro. He goes to his pediatrician for a “weigh-in” just to make sure he’s continuing to gain weight and not spending too much of his energy and calories taking his bottle. So we’re anxious to see how much he weighs tomorrow!
We became close to two families in the NICU. All of our boys had similar issues including shunt surgeries. We just learned that one of Jack’s little friends is back in the hospital due to a shunt malfunction and there were complications with the surgery. He’s still in the hospital now, and our hearts are breaking for his family. Please keep your thoughts and prayers with them.
Sunday, June 15, 2003
Happy Father’s Day to all the dads out there!
Jack is really surprising us! He’s been taking all of his feedings by bottle since Friday. He can take anywhere from 60-90ccs every 3-4 hours. We almost can’t keep up with his demands. Sometimes he is hungry two hours after he eats, but we have to wait a little long than that because Jack should get used to set schedules. During the nighttime hours it is much different. We usually have to wake him to eat and he never is too interested. It’s important that he does eat at every scheduled feeding because he needs as many calories as possible.
Jack’s reflux seems to be getting better. We are starting to lay him down for more extended time periods. It usually takes about twenty minutes for him to start crying. That is definitely better than when we first brought him home and he would cry immediately as we laid him down. It’s probably helping that he no longer has his feeding tube.
Along with his weight gain, Jack’s strength is increasing as well. When he lies on our chests he raises his head and looks all around. That’s great. Soon he’ll be doing summersaults in his crib.
Jack is really surprising us! He’s been taking all of his feedings by bottle since Friday. He can take anywhere from 60-90ccs every 3-4 hours. We almost can’t keep up with his demands. Sometimes he is hungry two hours after he eats, but we have to wait a little long than that because Jack should get used to set schedules. During the nighttime hours it is much different. We usually have to wake him to eat and he never is too interested. It’s important that he does eat at every scheduled feeding because he needs as many calories as possible.
Jack’s reflux seems to be getting better. We are starting to lay him down for more extended time periods. It usually takes about twenty minutes for him to start crying. That is definitely better than when we first brought him home and he would cry immediately as we laid him down. It’s probably helping that he no longer has his feeding tube.
Along with his weight gain, Jack’s strength is increasing as well. When he lies on our chests he raises his head and looks all around. That’s great. Soon he’ll be doing summersaults in his crib.
Friday, June 13, 2003
Well, today June 13th, was Jack’s original due date! He’s officially supposed to “be here” now. It’s hard to believe just how amazing it is that he was so strong to face the world almost 15 weeks before he was supposed to. He came into the world at only 2lbs 2oz (even dropping under 2lbs for a while) and not given much hope of survival. But just look at him now! He’s done nothing but truly amaze us with his spirit, strength and character and is really showing us what life is all about. We’ll never truly understand all that Jack had to endure early in his life, but we are so very proud of him for just being Jack.
Thursday, June 12, 2003
Jack is really doing well here at home! He’s gained a lot of weight too! He’s up to 7lbs, 8oz. His pediatrician was very pleased with how well he’s gaining weight. She also told us we can try him without any tube feedings today to see how he does on his own. So far he’s been taking a lot, in fact he normally gets 60ccs, and now that he’s bigger he can have anywhere from 60-90ccs every three or four hours. Well, he just took 79 all by bottle! We’ll get rid of that tube very soon, we’re sure!
His pediatrician also gave him a prescription for another Reflux medicine called Reglan. This worked well for him in the NICU, so we are confident that it will work for him again. We’ll all be so much happier when he doesn’t have to deal with Reflux anymore.
We are a little more comfortable with caring for Jack too. We aren’t as nervous or scared anymore. Even 4am feedings are becoming ordinary around here. We are sleeping on and off and not minding it as much as we did in the first few days. So it’s safe to say we’re adjusting!
Jack saw his eye doctor yesterday. They still were not able to tell us the prognosis as far as how well Jack will see, but we do notice him tracking things with his eyes much more. He even turns his head to follow your face! So we are hopeful that his vision will continue to develop as well as it is now.
Thanks for your calls and thoughts! They mean a lot. Take care and we’ll keep you up to date on how Jack is doing. We hope you’re enjoying the warm weather!
His pediatrician also gave him a prescription for another Reflux medicine called Reglan. This worked well for him in the NICU, so we are confident that it will work for him again. We’ll all be so much happier when he doesn’t have to deal with Reflux anymore.
We are a little more comfortable with caring for Jack too. We aren’t as nervous or scared anymore. Even 4am feedings are becoming ordinary around here. We are sleeping on and off and not minding it as much as we did in the first few days. So it’s safe to say we’re adjusting!
Jack saw his eye doctor yesterday. They still were not able to tell us the prognosis as far as how well Jack will see, but we do notice him tracking things with his eyes much more. He even turns his head to follow your face! So we are hopeful that his vision will continue to develop as well as it is now.
Thanks for your calls and thoughts! They mean a lot. Take care and we’ll keep you up to date on how Jack is doing. We hope you’re enjoying the warm weather!
Saturday, June 07, 2003
Well, hello world! Around here we’re not even sure what day it is anymore : )
Jack is doing well, although his Reflux is still bothering him. We’ve learned to just hold him upright against our chest almost all of the time. When his reflux isn’t acting up, he loves to be in his bassinet. We’ve have it all cozy for him with the great baby blankets we received at the shower. Unfortunately, he doesn’t stay comfortable very long. He sees his pediatrician this week and we’ll be asking her for some advice on how to help Jack’s Reflux.
Jack has such a busy schedule! The little man needs a personal assistant just to handle all of his engagements…(okay, really they’re just doctor’s appointments). It’s a bit daunting getting Jack where he has to go. We’re getting better at carrying Jack and all of his equipment – it really helps that he loves to be in his car seat! His eyes get wide and he clasps his little hands almost like saying, “Hey, I’m ready when you are!”
Well, it’s time to make more bottles! We’ll keep you updated! Have a nice weekend.
Jack is doing well, although his Reflux is still bothering him. We’ve learned to just hold him upright against our chest almost all of the time. When his reflux isn’t acting up, he loves to be in his bassinet. We’ve have it all cozy for him with the great baby blankets we received at the shower. Unfortunately, he doesn’t stay comfortable very long. He sees his pediatrician this week and we’ll be asking her for some advice on how to help Jack’s Reflux.
Jack has such a busy schedule! The little man needs a personal assistant just to handle all of his engagements…(okay, really they’re just doctor’s appointments). It’s a bit daunting getting Jack where he has to go. We’re getting better at carrying Jack and all of his equipment – it really helps that he loves to be in his car seat! His eyes get wide and he clasps his little hands almost like saying, “Hey, I’m ready when you are!”
Well, it’s time to make more bottles! We’ll keep you updated! Have a nice weekend.
Wednesday, June 04, 2003
Jack is three months old tomorrow! Happy Birthday Jack!
We are starting to adjust to no sleep. Jack is having problems with Reflux. It’s like heartburn. He is very uncomfortable for him and will only settle once he is being held upright. We saw his pediatrician this week and she increased his dosage of Zantac. She said he’s probably just outgrown the old dosage. He seems a little better in the last day or so, but we can still see that it hurts him at times.
He’s getting better and better at taking his food by bottle. He’s taking over half now, which is much better! We think he’ll get rid of that feeding tube pretty darn soon! The feeding team at Hershey Med said that each week he should be taking about 10 percent more by the bottle. We’ve been charting his feedings and it looks like he is right where they would like him to be.
We love having him home! Our little Jack, home at last! And, no more trips to the hospital. However, we do miss the staff – we were told if we ever had any questions about Jack we could call them. This is great because there “open” 24 hours a day. So far we’ve only called them twice. It’s still nice to know that there’s always help or advice available.
We can’t believe it’s been a week already. All the days are sort of running together, but that’s what we (happily) expected : )
We are starting to adjust to no sleep. Jack is having problems with Reflux. It’s like heartburn. He is very uncomfortable for him and will only settle once he is being held upright. We saw his pediatrician this week and she increased his dosage of Zantac. She said he’s probably just outgrown the old dosage. He seems a little better in the last day or so, but we can still see that it hurts him at times.
He’s getting better and better at taking his food by bottle. He’s taking over half now, which is much better! We think he’ll get rid of that feeding tube pretty darn soon! The feeding team at Hershey Med said that each week he should be taking about 10 percent more by the bottle. We’ve been charting his feedings and it looks like he is right where they would like him to be.
We love having him home! Our little Jack, home at last! And, no more trips to the hospital. However, we do miss the staff – we were told if we ever had any questions about Jack we could call them. This is great because there “open” 24 hours a day. So far we’ve only called them twice. It’s still nice to know that there’s always help or advice available.
We can’t believe it’s been a week already. All the days are sort of running together, but that’s what we (happily) expected : )
Saturday, May 31, 2003
Hello everybody! Jack’s continuing to do very well. Last night he slept very well, thus we slept well too. Only a few times did Jack wake up crying, but it didn’t take much to get him to go back to sleep. Not a single alarm went off either. That’s because when the monitor man brought the new monitor (because the memory was full from all the false alarms) , he also showed us how to use the belt instead of the sticky leads. They just were not cutting it. Now the belt holds the leads in place and they have a harder time falling off. It also makes it much simpler to remove the monitor for the occasional bath.
The visiting nurse came by today as well. She gave Jack a checkup and everything was just fine. In fact, she said Jack is doing very well. He was put on a sat monitor and that showed that Jack was at 100%. We also changed his feeding tube while she was here. We still strongly dislike doing this and Jack doesn’t really have a different opinion about it, but the nurse gave us a few pointers that help. We are getting all sorts of helpful hints from so many people, that we are becoming the experts.
He was also weighed and is 6lbs 2oz. We think the pediatrician’s scale was a bit wacky on Thursday.
Jack got another bath today. He still doesn’t really know how to feel about it but he is beginning to not be so shocked when his little butt hits the water. He’s starting to let himself enjoy it. One thing he defiantly likes to do in the tub is peeing.
The visiting nurse came by today as well. She gave Jack a checkup and everything was just fine. In fact, she said Jack is doing very well. He was put on a sat monitor and that showed that Jack was at 100%. We also changed his feeding tube while she was here. We still strongly dislike doing this and Jack doesn’t really have a different opinion about it, but the nurse gave us a few pointers that help. We are getting all sorts of helpful hints from so many people, that we are becoming the experts.
He was also weighed and is 6lbs 2oz. We think the pediatrician’s scale was a bit wacky on Thursday.
Jack got another bath today. He still doesn’t really know how to feel about it but he is beginning to not be so shocked when his little butt hits the water. He’s starting to let himself enjoy it. One thing he defiantly likes to do in the tub is peeing.
Friday, May 30, 2003
Good morning everyone! Jack is doing great. He’s adapting just fine to his new surroundings. Yesterday we had him to his pediatrician (she was the one who worked so hard to get Jack intubated and breathing right after he was born) and she was amazed at how far he’s come. He weighs 6lbs, 6oz! It will be strange for us not to get a daily weight on Jack anymore. Some time soon, a visiting nurse will come see Jack here at home and help us if we have any questions.
Jack had a bath last night in his own little tub. He seemed to enjoy himself! We have been snapping all kinds of pictures, so some time soon (if Jack lets us) we will add his new pictures.
Jack is on a 4 hour feeding schedule – this has made life a little interesting for us! We take turns doing the 2am and 6am care sessions and catching sleep when we can. Right now we are spending all of our time on the first floor. It’s working out well for us. Jack is in his bassinet and we can be right next to him sleeping on the sofa and the kitchen is near for when he needs a bottle!
Jack’s apnea monitor is driving us a little crazy! It’s very sensitive and goes off a lot when Jack is sleeping because he tends to breathe shallow when he’s resting. It also alarms if either of the leads come off or slide around. The alarm is loud and piercing and won’t stop until the problem is fixed. We realize that this is a good feature in a real emergency, but false alarms at 3am at the exact moment when everyone falls asleep is driving us nuts. It’s definitely a necessary evil though.
It’s still a little hard to believe he’s actually home! It’s so wonderful to finally have him here. Thanks everyone for your thoughts of us in the last few days. We appreciate it!
Jack had a bath last night in his own little tub. He seemed to enjoy himself! We have been snapping all kinds of pictures, so some time soon (if Jack lets us) we will add his new pictures.
Jack is on a 4 hour feeding schedule – this has made life a little interesting for us! We take turns doing the 2am and 6am care sessions and catching sleep when we can. Right now we are spending all of our time on the first floor. It’s working out well for us. Jack is in his bassinet and we can be right next to him sleeping on the sofa and the kitchen is near for when he needs a bottle!
Jack’s apnea monitor is driving us a little crazy! It’s very sensitive and goes off a lot when Jack is sleeping because he tends to breathe shallow when he’s resting. It also alarms if either of the leads come off or slide around. The alarm is loud and piercing and won’t stop until the problem is fixed. We realize that this is a good feature in a real emergency, but false alarms at 3am at the exact moment when everyone falls asleep is driving us nuts. It’s definitely a necessary evil though.
It’s still a little hard to believe he’s actually home! It’s so wonderful to finally have him here. Thanks everyone for your thoughts of us in the last few days. We appreciate it!
Wednesday, May 28, 2003
Day 84
Day 84
Jack is home! This is the first time that we are updating the website with Jack in clear site. It seems odd because we’re so used to coming home from the NICU and going straight to the computer. This is a totally different routine. Better get used to it, right?
Jack is resting very comfortably in his favorite position, on his belly on his mommy’s chest. He absolutely loves that. If he is crying and if you hold him close, he stops.
Wow! Getting Jack ready to come home and actually bringing him home was extremely stressful. The day didn’t really start off that stress-free either. When we tried to pick up Jack’s prescriptions, the pharmacy informed us that they lost the prescriptions and to top it off, they didn’t even bother to call. AHHH! We have that all straightened out now though.
We really didn’t waste any time at the hospital getting Jack and his things all packed up. We said our goodbyes, signed some papers and off we went. We took his stroller to the NICU, which is really nice because his car seat/carrier clicks right into it. We need that with everything we have to carry. It really is a big job to get Jack’s monitor and oxygen coordinated so that you don’t trip over the cords. And then to get everything into the car is an ordeal. The drive home was a bit stressful as well, but it went quick.
So now Jack is home and he is completely under our care. We were skeptical about whether we were up for the task, but now that he is here we feel more than ready. Of course there will be some difficult times. There will be a lot of appointments, a tight schedule to maintain, and all along with the regular duties of daily life. But, now that Jack is home, we are so happy that none of that matters now.
Jack is home! This is the first time that we are updating the website with Jack in clear site. It seems odd because we’re so used to coming home from the NICU and going straight to the computer. This is a totally different routine. Better get used to it, right?
Jack is resting very comfortably in his favorite position, on his belly on his mommy’s chest. He absolutely loves that. If he is crying and if you hold him close, he stops.
Wow! Getting Jack ready to come home and actually bringing him home was extremely stressful. The day didn’t really start off that stress-free either. When we tried to pick up Jack’s prescriptions, the pharmacy informed us that they lost the prescriptions and to top it off, they didn’t even bother to call. AHHH! We have that all straightened out now though.
We really didn’t waste any time at the hospital getting Jack and his things all packed up. We said our goodbyes, signed some papers and off we went. We took his stroller to the NICU, which is really nice because his car seat/carrier clicks right into it. We need that with everything we have to carry. It really is a big job to get Jack’s monitor and oxygen coordinated so that you don’t trip over the cords. And then to get everything into the car is an ordeal. The drive home was a bit stressful as well, but it went quick.
So now Jack is home and he is completely under our care. We were skeptical about whether we were up for the task, but now that he is here we feel more than ready. Of course there will be some difficult times. There will be a lot of appointments, a tight schedule to maintain, and all along with the regular duties of daily life. But, now that Jack is home, we are so happy that none of that matters now.
Tuesday, May 27, 2003
Day 83
Day 83
Wow, it’s almost here! We can hardly believe it…Jack’s day has finally come! Today was our last visit to the NICU, tomorrow we’re taking our little guy home.
We are looking forward to spending hours and hours spending time together as a little family! We will keep you updated on how he’s doing in his new surroundings.
Wow, it’s almost here! We can hardly believe it…Jack’s day has finally come! Today was our last visit to the NICU, tomorrow we’re taking our little guy home.
We are looking forward to spending hours and hours spending time together as a little family! We will keep you updated on how he’s doing in his new surroundings.
Monday, May 26, 2003
Day 82
Day 82
Happy Memorial Day everyone!
We had a very busy day today…we cleaned the entire house today top to bottom and got all last minute items in place, so now all we really need is for Jack to come home! We are starting to get so excited, it’s really time!
In a way, we’ll miss the NICU. We’ve become close with some of the other parents and NICU staff. It will be strange not hopping in the car and heading to the hospital. Of course we won’t miss it too much!!
Jack is really trying to finish his bottles! He’s getting better each day so we don’t think he’ll have to have the NG tube very long. The (not-so-little-anymore) guy is up to 5lbs, 12.8oz! He may even reach 6lbs before we take him home. WOW!
We visited Jack this evening and packed up most of his things. We told him it’s soon time to go! He just gave us wide eyes and half a grin. It will be so great to have him home at last.
Happy Memorial Day everyone!
We had a very busy day today…we cleaned the entire house today top to bottom and got all last minute items in place, so now all we really need is for Jack to come home! We are starting to get so excited, it’s really time!
In a way, we’ll miss the NICU. We’ve become close with some of the other parents and NICU staff. It will be strange not hopping in the car and heading to the hospital. Of course we won’t miss it too much!!
Jack is really trying to finish his bottles! He’s getting better each day so we don’t think he’ll have to have the NG tube very long. The (not-so-little-anymore) guy is up to 5lbs, 12.8oz! He may even reach 6lbs before we take him home. WOW!
We visited Jack this evening and packed up most of his things. We told him it’s soon time to go! He just gave us wide eyes and half a grin. It will be so great to have him home at last.
Sunday, May 25, 2003
Day 81
Day 81
Jack passed his car seat test! Good boy Jack! He also did very well rooming in with us last night.
At first it was strangely quiet. We could actually hear Jack breathing from across the room! The NICU is a very busy and noisy place so it was nice to relax in our PJ’s in a private room with our little guy! He didn’t fuss much at all, although at least one of us was tending to him each minute of the night!
He definitely lets us know when it’s time to eat! He either cries or just stares at us while sucking on his hands or arms or clothing or pacifier…it’s the cutest thing. He took about half of all of his feedings by bottle last night. He’s also got a new feeding schedule. He’s getting right under 2oz (56ccs) every 4 hours. He was used to smaller amounts every three hours. He did well for his first trial run on the new schedule. We are getting better and better at feeding him with the tube. It’s really not that big of a deal. Like most things you just want to make sure you have everything you need right next to you before you start! Either that or pick up an extra pair of hands somewhere…
His monitor alarm did go off a few times last night. They were all false alarms. The apnea alarm is very sensitive and won’t always pick up shallow breathing. There’s also an alarm if either of the leads falls off or gets loose so we discovered that as well. And this thing is so loud it could probably wake our next door neighbors! So it does its job, and that’s exactly what we want it to do!
All in all, it’s a great idea to room in before coming home. We feel much more comfortable caring for Jack now. It’s not as scary as we thought it would be. So after nearly three months, home is only days away. It will be the happiest day of our lives
Jack passed his car seat test! Good boy Jack! He also did very well rooming in with us last night.
At first it was strangely quiet. We could actually hear Jack breathing from across the room! The NICU is a very busy and noisy place so it was nice to relax in our PJ’s in a private room with our little guy! He didn’t fuss much at all, although at least one of us was tending to him each minute of the night!
He definitely lets us know when it’s time to eat! He either cries or just stares at us while sucking on his hands or arms or clothing or pacifier…it’s the cutest thing. He took about half of all of his feedings by bottle last night. He’s also got a new feeding schedule. He’s getting right under 2oz (56ccs) every 4 hours. He was used to smaller amounts every three hours. He did well for his first trial run on the new schedule. We are getting better and better at feeding him with the tube. It’s really not that big of a deal. Like most things you just want to make sure you have everything you need right next to you before you start! Either that or pick up an extra pair of hands somewhere…
His monitor alarm did go off a few times last night. They were all false alarms. The apnea alarm is very sensitive and won’t always pick up shallow breathing. There’s also an alarm if either of the leads falls off or gets loose so we discovered that as well. And this thing is so loud it could probably wake our next door neighbors! So it does its job, and that’s exactly what we want it to do!
All in all, it’s a great idea to room in before coming home. We feel much more comfortable caring for Jack now. It’s not as scary as we thought it would be. So after nearly three months, home is only days away. It will be the happiest day of our lives
Friday, May 23, 2003
Day 79
Day 79
We had a very busy day with Jack today. We met with the company that supplies the oxygen and monitors. The representative gave us training on both. It felt a little overwhelming at the time, but now that we practiced everything a few times it isn’t so bad.
Jack had his official baby picture taken today. He was a very good boy and even opened his eyes for the camera! We can’t wait to see them – though it may be a few weeks.
We are preparing even more at home. We have a drawer for all of Jack’s medical supplies like feeding tubes, oxygen tubes, tape, stethoscope, and some other things. Even though we never pictured those items would be a part of our lives, it feels better now that we’re all ready to go.
Tomorrow night we are rooming in at the hospital. We are VERY excited for this. It’s kind of a practice run of how it’ll be to care for Jack all by ourselves. We will let you know how it went on Sunday! Wish us luck!
We had a very busy day with Jack today. We met with the company that supplies the oxygen and monitors. The representative gave us training on both. It felt a little overwhelming at the time, but now that we practiced everything a few times it isn’t so bad.
Jack had his official baby picture taken today. He was a very good boy and even opened his eyes for the camera! We can’t wait to see them – though it may be a few weeks.
We are preparing even more at home. We have a drawer for all of Jack’s medical supplies like feeding tubes, oxygen tubes, tape, stethoscope, and some other things. Even though we never pictured those items would be a part of our lives, it feels better now that we’re all ready to go.
Tomorrow night we are rooming in at the hospital. We are VERY excited for this. It’s kind of a practice run of how it’ll be to care for Jack all by ourselves. We will let you know how it went on Sunday! Wish us luck!
Thursday, May 22, 2003
Day 78
Day 78
We heard great news today. Jack is scheduled to come home this coming Wednesday! He weighs 5lbs 8oz already, which is more than enough weight. He still has not mastered eating completely from a bottle, so we have to learn how to place his feeding tube. He will have to continue to be fed at least partially through the tube at home. Hopefully he will get better at eating this week so he can get rid of the tube, but right now it looks like that won’t be the case. Placing the feeding tube sounds a lot scarier than what it actually is. We both placed it today and did just fine. When he is at home he’ll only have to have it changed once a week, unless of course he manages to pull it out or dislodge it himself.
He’ll also be coming home on oxygen. Although we were hoping that Jack wouldn’t need it, it’s not really a shock for us. In addition to his oxygen, he’ll also come home on an apnea monitor. This is actually a relief for us because it provides a small sense of security.
Tomorrow we will get our monitor & oxygen training and Jack will also have his car seat test. It is a big learning day for all of us. And, he’ll also get his official hospital picture taken. Say cheese Jack!
We heard great news today. Jack is scheduled to come home this coming Wednesday! He weighs 5lbs 8oz already, which is more than enough weight. He still has not mastered eating completely from a bottle, so we have to learn how to place his feeding tube. He will have to continue to be fed at least partially through the tube at home. Hopefully he will get better at eating this week so he can get rid of the tube, but right now it looks like that won’t be the case. Placing the feeding tube sounds a lot scarier than what it actually is. We both placed it today and did just fine. When he is at home he’ll only have to have it changed once a week, unless of course he manages to pull it out or dislodge it himself.
He’ll also be coming home on oxygen. Although we were hoping that Jack wouldn’t need it, it’s not really a shock for us. In addition to his oxygen, he’ll also come home on an apnea monitor. This is actually a relief for us because it provides a small sense of security.
Tomorrow we will get our monitor & oxygen training and Jack will also have his car seat test. It is a big learning day for all of us. And, he’ll also get his official hospital picture taken. Say cheese Jack!
Wednesday, May 21, 2003
Day 77
Day 77
Jack is still working on his bottle skills! He has taken more today than yesterday so he’s improving. He’ll be home in no time! He’s up to 5lbs 5.9 oz. All of his nurses can’t believe how big he is especially because they don’t see him every day so it’s neat to hear.
He had another head ultrasound this week and it shows that his shunt is really working well. He’ll be seeing his neurologist every so often to track his progress. It’s good to know that his shunt is doing its job.
Tonight we put together Jack’s stroller, after that we only have his high chair to assemble! We are so happy with everything and can’t wait for Jack to use it all.
Jack is still working on his bottle skills! He has taken more today than yesterday so he’s improving. He’ll be home in no time! He’s up to 5lbs 5.9 oz. All of his nurses can’t believe how big he is especially because they don’t see him every day so it’s neat to hear.
He had another head ultrasound this week and it shows that his shunt is really working well. He’ll be seeing his neurologist every so often to track his progress. It’s good to know that his shunt is doing its job.
Tonight we put together Jack’s stroller, after that we only have his high chair to assemble! We are so happy with everything and can’t wait for Jack to use it all.
Tuesday, May 20, 2003
Day 76
Day 76
Jack is doing great! He is up to 40ccs of food every three hours and he’s up to 5lbs, 4.7oz! He’s such a big boy now! One of Jack’s neighbors is going home on Friday. We will miss him and his parents and we wish them the best! Soon it will be Jack’s turn.
Mommy spends her days taking care of Jack, feeding, bathing, changing and holding him. Dad comes every evening and does the same. We keep picturing Jack at home in his own bed, his own bathtub and his own rocker. It will be very soon. We won’t know which day for sure until two or three days before they plan on discharging him.
He still isn’t taking all of his feedings by the bottle. He’s getting better each day, and one of our favorite nurses says it will just click one day and Jack will finally get it. He’s such a trooper! He’s been through an awful lot at his young age, but we know this will only shape him into a strong-willed and secure person!
Jack is doing great! He is up to 40ccs of food every three hours and he’s up to 5lbs, 4.7oz! He’s such a big boy now! One of Jack’s neighbors is going home on Friday. We will miss him and his parents and we wish them the best! Soon it will be Jack’s turn.
Mommy spends her days taking care of Jack, feeding, bathing, changing and holding him. Dad comes every evening and does the same. We keep picturing Jack at home in his own bed, his own bathtub and his own rocker. It will be very soon. We won’t know which day for sure until two or three days before they plan on discharging him.
He still isn’t taking all of his feedings by the bottle. He’s getting better each day, and one of our favorite nurses says it will just click one day and Jack will finally get it. He’s such a trooper! He’s been through an awful lot at his young age, but we know this will only shape him into a strong-willed and secure person!
Sunday, May 18, 2003
Day 74
Day 74
Jack is doing wonderful! He know weighs over 5lbs at 5lbs 1.9 oz. Between yesterday and today he only gained .1 of an ounce, but that’s ok. He is burning a lot of calories just feeding from a bottle.
He still has not mastered that. We know that he is perfectly capable of doing so, however he has not consistently decided to. Sometimes he just falls asleep in the middle of his feeds, so we pour the rest of his milk in a syringe and he gets it through the tube. Every day he seems to get more from the bottle before giving up, and we know he soon will mostly always take the entire bottle and that means he can come home!
We still aren’t completely sure when Jack will be coming home. We are hoping for by the end of the month. We were given a rough estimate of the end of next week when he is 37 weeks adjusted, but at this point it seems that we will have to wait just a small time longer. Although this is somewhat disappointing, we want to be totally sure that Jack is really ready to come home. We’ve been told time and time again by the NICU that they will not send him home until they are very sure that he will do fine at home.
Jack is doing wonderful! He know weighs over 5lbs at 5lbs 1.9 oz. Between yesterday and today he only gained .1 of an ounce, but that’s ok. He is burning a lot of calories just feeding from a bottle.
He still has not mastered that. We know that he is perfectly capable of doing so, however he has not consistently decided to. Sometimes he just falls asleep in the middle of his feeds, so we pour the rest of his milk in a syringe and he gets it through the tube. Every day he seems to get more from the bottle before giving up, and we know he soon will mostly always take the entire bottle and that means he can come home!
We still aren’t completely sure when Jack will be coming home. We are hoping for by the end of the month. We were given a rough estimate of the end of next week when he is 37 weeks adjusted, but at this point it seems that we will have to wait just a small time longer. Although this is somewhat disappointing, we want to be totally sure that Jack is really ready to come home. We’ve been told time and time again by the NICU that they will not send him home until they are very sure that he will do fine at home.
Friday, May 16, 2003
Day 72
Day 72
Jack had his first tub bath last night! The nurse gave him a “Preemie Jacuzzi” by hooking up some tubing to the oxygen and making lots and lots of bubbles for Jack. At first he didn’t seem so sure, but by the end he was smiling and having a good time.
He is up to 4lbs, 15.9oz. Okay, so that’s almost 5 pounds!! I am sure by now he’s passed the 5 pound mark! He’s eating better and better, but still needs a lot of work. He’s working so hard at it!
We’re very happy that soon we will be able to have Jack all to ourselves! It’s getting very exhausting traveling every day to and from the hospital. And lately in the evenings, we’re assembling more of Jack’s gear! We’ll be ready for him to come home soon, that’s for sure.
And as far as the website goes, don’t worry! It’ll be here for quite some time. It will probably embarrass Jack when we’re telling everyone how he went on his first date! We love updating it as much as everyone likes to read it.
Jack had his first tub bath last night! The nurse gave him a “Preemie Jacuzzi” by hooking up some tubing to the oxygen and making lots and lots of bubbles for Jack. At first he didn’t seem so sure, but by the end he was smiling and having a good time.
He is up to 4lbs, 15.9oz. Okay, so that’s almost 5 pounds!! I am sure by now he’s passed the 5 pound mark! He’s eating better and better, but still needs a lot of work. He’s working so hard at it!
We’re very happy that soon we will be able to have Jack all to ourselves! It’s getting very exhausting traveling every day to and from the hospital. And lately in the evenings, we’re assembling more of Jack’s gear! We’ll be ready for him to come home soon, that’s for sure.
And as far as the website goes, don’t worry! It’ll be here for quite some time. It will probably embarrass Jack when we’re telling everyone how he went on his first date! We love updating it as much as everyone likes to read it.
Wednesday, May 14, 2003
Day 70
Day 70
We spoke to his nurse a little more today about Jack coming home. A lot of what we talked about helps us anticipate how it will be when we are Jack’s primary caregivers, but a lot of it also makes us nervous. It will be great when Jack is finally home with us, even though there are so many things to do and remember. Now we are trying to determine where Jack will sleep for the first few nights, how we are going to coordinate sleeping and taking care of him, and how we are going to find time to do the things that must be done to run a home, but we’re sure that most of that planning will have to be changed as soon as the little guy comes home.
We spoke to his nurse a little more today about Jack coming home. A lot of what we talked about helps us anticipate how it will be when we are Jack’s primary caregivers, but a lot of it also makes us nervous. It will be great when Jack is finally home with us, even though there are so many things to do and remember. Now we are trying to determine where Jack will sleep for the first few nights, how we are going to coordinate sleeping and taking care of him, and how we are going to find time to do the things that must be done to run a home, but we’re sure that most of that planning will have to be changed as soon as the little guy comes home.
Tuesday, May 13, 2003
Day 69
Day 69
We heard the greatest news today. Jack will be coming home in only 10 days! (Memorial Day Weekend!) That is when he is exactly 37 (adjusted) weeks old. He showed some great signs that he’ll be ready by that time. He took an entire 37cc bottle of milk all by himself each time he was fed today. He also weighs 4lbs 14oz. Only two more ounces till he is 5 lbs!
He also had a hearing test and he passed with flying colors! Even though we expected that he would pass, it is still a relief to know for sure that he can hear.
We got Jack’s Pack ‘n’ Play all put together tonight. It is really cool. It serves as a changing table and bassinette while Jack is young. And, then when he is older, it turns into a playpen. We found a perfect spot for it too…right near the computer in the dining room so he can watch us while we update the journal. Its funny because we only found this spot after we totally rearranged our living room.
We heard the greatest news today. Jack will be coming home in only 10 days! (Memorial Day Weekend!) That is when he is exactly 37 (adjusted) weeks old. He showed some great signs that he’ll be ready by that time. He took an entire 37cc bottle of milk all by himself each time he was fed today. He also weighs 4lbs 14oz. Only two more ounces till he is 5 lbs!
He also had a hearing test and he passed with flying colors! Even though we expected that he would pass, it is still a relief to know for sure that he can hear.
We got Jack’s Pack ‘n’ Play all put together tonight. It is really cool. It serves as a changing table and bassinette while Jack is young. And, then when he is older, it turns into a playpen. We found a perfect spot for it too…right near the computer in the dining room so he can watch us while we update the journal. Its funny because we only found this spot after we totally rearranged our living room.
Monday, May 12, 2003
Day 68
Day 68
As each day goes by, Jack is getting better and better at eating from a bottle. We are so proud of him. During two feeds today, Jack took a full bottle of milk and didn’t have to get fed through the feeding tube. He used to be on a slow flow nipple, but now he is using the regular one.
He is up to 4lbs 13ozs. The reason that Jack isn’t gaining weight as fast as he once did, is because he is using a lot of energy and burning calories just from the act of eating. It is hard to coordinate sucking, swallowing, and breathing for somebody his size and immaturity. As he becomes bigger, stronger, and more experienced at eating, he will not use as much energy during his daily activities.
Jack’s room at home is really taking shape. His little clothes were laundered and put away. All his new blankets have been folded and put under his crib. And, one by one we’re assembling all the baby gear. Who knew one little boy could have so many possessions!
As each day goes by, Jack is getting better and better at eating from a bottle. We are so proud of him. During two feeds today, Jack took a full bottle of milk and didn’t have to get fed through the feeding tube. He used to be on a slow flow nipple, but now he is using the regular one.
He is up to 4lbs 13ozs. The reason that Jack isn’t gaining weight as fast as he once did, is because he is using a lot of energy and burning calories just from the act of eating. It is hard to coordinate sucking, swallowing, and breathing for somebody his size and immaturity. As he becomes bigger, stronger, and more experienced at eating, he will not use as much energy during his daily activities.
Jack’s room at home is really taking shape. His little clothes were laundered and put away. All his new blankets have been folded and put under his crib. And, one by one we’re assembling all the baby gear. Who knew one little boy could have so many possessions!
Saturday, May 10, 2003
Day 66
Day 66
What a great day! Almost everybody who has been supporting Jack for the past 2 ½ months had a chance to get together. It was a perfect day and it didn’t even rain. Thanks for all the gifts! They’ll all go to great use.
Even though we were beat from today’s festivities, we still had to go in and visit Jack. He is continuing to do well. Mommy got to feed him again tonight and he took more than half of his food from the bottle. He is getting better and better at eating everyday!
We spoke to Jack’s doctor tonight was well. He is very pleased at how far Jack has come. He told us that if we didn’t already starting getting things in order for him to come home, we better start now! That is great to hear from his doctor. We still don’t know if he will come home of with oxygen or a monitor, but all that is determined by Jack’s progress.
What a great day! Almost everybody who has been supporting Jack for the past 2 ½ months had a chance to get together. It was a perfect day and it didn’t even rain. Thanks for all the gifts! They’ll all go to great use.
Even though we were beat from today’s festivities, we still had to go in and visit Jack. He is continuing to do well. Mommy got to feed him again tonight and he took more than half of his food from the bottle. He is getting better and better at eating everyday!
We spoke to Jack’s doctor tonight was well. He is very pleased at how far Jack has come. He told us that if we didn’t already starting getting things in order for him to come home, we better start now! That is great to hear from his doctor. We still don’t know if he will come home of with oxygen or a monitor, but all that is determined by Jack’s progress.
Thursday, May 08, 2003
Day 64
Day 64
Jack is off his nasal cannula! Now his is breathing totally unassisted and he’s doing great. The only time that he is put back on the cannula is occasionally during his feedings when he is using up a lot of his energy. This is another major milestone for him. Now all he has to master is being fed completely by the bottle.
We are very excited for the party on Saturday. We’re looking forward to seeing everybody that has been supporting us tremendously for the past two months. There is going to be lots of food and fun. Too bad the little guy can’t come, but daddy will make sure to take lots of pictures for Jack. See you Saturday!
Jack is off his nasal cannula! Now his is breathing totally unassisted and he’s doing great. The only time that he is put back on the cannula is occasionally during his feedings when he is using up a lot of his energy. This is another major milestone for him. Now all he has to master is being fed completely by the bottle.
We are very excited for the party on Saturday. We’re looking forward to seeing everybody that has been supporting us tremendously for the past two months. There is going to be lots of food and fun. Too bad the little guy can’t come, but daddy will make sure to take lots of pictures for Jack. See you Saturday!
Wednesday, May 07, 2003
Day 63
Day 63
Jack got a bath today from Mommy. He was wide awake and didn’t cry at all. He actually seemed to enjoy his bath this time. Next time, we should be able to give him his bath in a basin.
He also got a visit from his eye doctor as well and we finally got a chance to have a word with him. It turns out that he didn’t have any additional news on Jack’s vision prognosis, but otherwise reiterated that only time will tell. Boy have we heard that a million times. He said that he did see patents with the optic nerve atrophy that hardly showed any signs of vision impairment. That was good news for us. He also said that it was very good that Jack responds to light, which is basically the only indicator of Jack’s ability at this stage in his life. It is far too early for him to follow objects or even really focus on anything. That will come a month or two after he is home. All we can do now is try to stimulate his vision by placing objects of high contrast in front of him. We are already doing that as anybody can tell by looking at all his stuffed creatures.
Jack also got a visit from the feeding team, who are basically occupational therapists. The assessed Jack’s ability to coordinate sucking, swallowing and breathing while being fed. They did find that he does have an immature suck-swallow response, but that is due to him being so young. They set strict feeding guidelines and restrictions such as only feeding him for 15 minutes at a time from a bottle. The rest he will have to get from his feeding tube. They’ll continue to monitor his progress and help us take the necessary steps to get him 100% on the bottle. Of course this is one of the major milestones that he must reach in order to come home, so we are hoping that he does this in a few weeks
Jack got a bath today from Mommy. He was wide awake and didn’t cry at all. He actually seemed to enjoy his bath this time. Next time, we should be able to give him his bath in a basin.
He also got a visit from his eye doctor as well and we finally got a chance to have a word with him. It turns out that he didn’t have any additional news on Jack’s vision prognosis, but otherwise reiterated that only time will tell. Boy have we heard that a million times. He said that he did see patents with the optic nerve atrophy that hardly showed any signs of vision impairment. That was good news for us. He also said that it was very good that Jack responds to light, which is basically the only indicator of Jack’s ability at this stage in his life. It is far too early for him to follow objects or even really focus on anything. That will come a month or two after he is home. All we can do now is try to stimulate his vision by placing objects of high contrast in front of him. We are already doing that as anybody can tell by looking at all his stuffed creatures.
Jack also got a visit from the feeding team, who are basically occupational therapists. The assessed Jack’s ability to coordinate sucking, swallowing and breathing while being fed. They did find that he does have an immature suck-swallow response, but that is due to him being so young. They set strict feeding guidelines and restrictions such as only feeding him for 15 minutes at a time from a bottle. The rest he will have to get from his feeding tube. They’ll continue to monitor his progress and help us take the necessary steps to get him 100% on the bottle. Of course this is one of the major milestones that he must reach in order to come home, so we are hoping that he does this in a few weeks
Tuesday, May 06, 2003
Day 62
Day 62
Jack is continuing to progress great. He got a head ultrasound and his neurosurgeon said that his ventricles are decreasing in size, which means that his shunt is doing its job.
Not much has changed since yesterday. When we visited him today it was clear that he is soon ready to come home. He was trying to pry off his nasal cannula which was at just a bit above room air and was wide awake. We think he is getting bored in his crib and wants to see more of the world. We assure him that this day will soon come.
Jack is continuing to progress great. He got a head ultrasound and his neurosurgeon said that his ventricles are decreasing in size, which means that his shunt is doing its job.
Not much has changed since yesterday. When we visited him today it was clear that he is soon ready to come home. He was trying to pry off his nasal cannula which was at just a bit above room air and was wide awake. We think he is getting bored in his crib and wants to see more of the world. We assure him that this day will soon come.
Monday, May 05, 2003
Day 61
Day 61
Boy did we get some great news on Jack’s 2 month B-day! One of his nurse practitioners said that since Jack is doing so well, he will most likely be able to come home in 2-3 weeks…definitely before the end of this month! All he has to do is continue to grow strong like he has been doing for a while now.
His neurosurgeon stopped by today and was very impressed by how well he is doing. He felt his head and said it feels great and the shunt is working perfectly. He’ll have another head ultrasound to confirm this.
Soon we have to take his car seat into the NICU and Jack will be put into it for an hour to see how he does. This tells if he can keep his airway open in a sitting position for the entire car ride home. We will also be able to “room in” with Jack at the hospital called the rooming in room. We will be in a private room with Jack over night so we can get used to having him almost completely under our care. He will still be on monitors so if we do need the nurses, they can quickly come to our assistance.
Boy did we get some great news on Jack’s 2 month B-day! One of his nurse practitioners said that since Jack is doing so well, he will most likely be able to come home in 2-3 weeks…definitely before the end of this month! All he has to do is continue to grow strong like he has been doing for a while now.
His neurosurgeon stopped by today and was very impressed by how well he is doing. He felt his head and said it feels great and the shunt is working perfectly. He’ll have another head ultrasound to confirm this.
Soon we have to take his car seat into the NICU and Jack will be put into it for an hour to see how he does. This tells if he can keep his airway open in a sitting position for the entire car ride home. We will also be able to “room in” with Jack at the hospital called the rooming in room. We will be in a private room with Jack over night so we can get used to having him almost completely under our care. He will still be on monitors so if we do need the nurses, they can quickly come to our assistance.
Sunday, May 04, 2003
Day 60
Day 60
Jack had a great weekend. He is on very low oxygen settings with only little dips in his oxygen saturation. No major episodes for Jack all weekend! He is still healing very well, but he still has some sore spots like where his hernia was fixed so he gets VERY upset when its diaper changing time. The doctors checked his hernia surgery and they did note that the incision looked red and swollen, but it is nothing to be concerned about. His nurse said that it even looks better today than it did yesterday.
Jack had a bath today as well. We were all set to bathe him in a tiny tub, but then the nurse remembered that he can’t get his sutures wet, so mommy had to give him a sponge bath instead. That was a bit disappointing for us, that he couldn’t go into his tub, but whatever is best for Jack, is best for us. Soon though he will be all healed and we can give him is bath in the tub.
We had our infant CPR and car seat safety classes last week. They are definitely a critical step in making sure that we are ready for Jack’s homecoming, even though they made us a bit nervous
Jack had a great weekend. He is on very low oxygen settings with only little dips in his oxygen saturation. No major episodes for Jack all weekend! He is still healing very well, but he still has some sore spots like where his hernia was fixed so he gets VERY upset when its diaper changing time. The doctors checked his hernia surgery and they did note that the incision looked red and swollen, but it is nothing to be concerned about. His nurse said that it even looks better today than it did yesterday.
Jack had a bath today as well. We were all set to bathe him in a tiny tub, but then the nurse remembered that he can’t get his sutures wet, so mommy had to give him a sponge bath instead. That was a bit disappointing for us, that he couldn’t go into his tub, but whatever is best for Jack, is best for us. Soon though he will be all healed and we can give him is bath in the tub.
We had our infant CPR and car seat safety classes last week. They are definitely a critical step in making sure that we are ready for Jack’s homecoming, even though they made us a bit nervous
Friday, May 02, 2003
Day 58
Day 58
Jack is doing awesome with the shunt. He is on a low oxygen setting with hardly any desaturations. That is probably due to the shunt working properly. He’s up to 4lbs 10 oz. His doctor said that the remaining time in the hospital will be devoted to getting him ready to come home! That includes feeding only from a bottle, no oxygen desaturations and completely regulating his temperature. We have a lot of work to do getting the house ready for Jack to come home!
Jack is doing awesome with the shunt. He is on a low oxygen setting with hardly any desaturations. That is probably due to the shunt working properly. He’s up to 4lbs 10 oz. His doctor said that the remaining time in the hospital will be devoted to getting him ready to come home! That includes feeding only from a bottle, no oxygen desaturations and completely regulating his temperature. We have a lot of work to do getting the house ready for Jack to come home!
Thursday, May 01, 2003
Day 57
Day 57
Jack is really doing great. He is off the CPAP and back on to Nasal Cannula. His breathing was really good today, hardly any drops in his oxygen saturation. He’s a real trooper!
The doctors examined Jack’s fontanel again today and it is exactly as it should be, not full at all. It actually feels strange to us because we are so used to it feeling full. All of his incisions look great and he doesn’t seem to be in any pain.
Mommy gave him a bath today and he cried so loud that many other moms and dads turned to look to see who the “loud mouth” was. They all kind of gave us a secret smile knowing that Jack must be doing well after his surgery to be so vocal. It was a great feeling.
A typical pregnancy lasts 40 weeks gestation – which for Jack would have been June 13th. Jack was born at almost 26 weeks on March 5th. Jack is now 34 weeks gestational age (tomorrow). This is the time when they really like to start introducing the bottle to preemies. He took his feeding from a bottle tonight and did very well. This is only his second try and he aced it. So he’s had two practice rounds and we expect many more tries this week.
We are very happy that Jack’s surgeries are behind him. This means it’s getting closer and closer to the time when he can come home. We can hardly wait.
Jack is really doing great. He is off the CPAP and back on to Nasal Cannula. His breathing was really good today, hardly any drops in his oxygen saturation. He’s a real trooper!
The doctors examined Jack’s fontanel again today and it is exactly as it should be, not full at all. It actually feels strange to us because we are so used to it feeling full. All of his incisions look great and he doesn’t seem to be in any pain.
Mommy gave him a bath today and he cried so loud that many other moms and dads turned to look to see who the “loud mouth” was. They all kind of gave us a secret smile knowing that Jack must be doing well after his surgery to be so vocal. It was a great feeling.
A typical pregnancy lasts 40 weeks gestation – which for Jack would have been June 13th. Jack was born at almost 26 weeks on March 5th. Jack is now 34 weeks gestational age (tomorrow). This is the time when they really like to start introducing the bottle to preemies. He took his feeding from a bottle tonight and did very well. This is only his second try and he aced it. So he’s had two practice rounds and we expect many more tries this week.
We are very happy that Jack’s surgeries are behind him. This means it’s getting closer and closer to the time when he can come home. We can hardly wait.
Wednesday, April 30, 2003
Day 56
Day 56
Jack is doing very well recovering from his surgery. He is still a bit uncomfortable and suffers from occasionally bouts of oxygen desaturation, but it far less frequent than yesterday. He did have to be put back on CPAP because his blood gases came back showing that his CO2 was a bit high. This is only temporary and he should be off the CPAP tomorrow. In fact, he was put back on nasal cannula so we could hold him. He likes that a lot more.
His neurosurgeon said that his shunt seems to be doing its job. His fontanel (soft spot on his head) is a bit full, but his shunt may take a couple of days to work properly. Finding the right valve for the shunt can be tricky because it is a pressure release valve. If it is too sensitive to pressure, then too much cerebral spinal fluid can pass into his abdomen. If it isn’t sensitive enough then not enough fluid will pass leading to too much pressure. He had a few X-rays today to see if there were any problems and there were not. When we left the NICU tonight his fontanel seemed to be less swollen. His nurse will keep track of that tonight and tomorrow morning the surgeons will come back and check it.
Jack is doing very well recovering from his surgery. He is still a bit uncomfortable and suffers from occasionally bouts of oxygen desaturation, but it far less frequent than yesterday. He did have to be put back on CPAP because his blood gases came back showing that his CO2 was a bit high. This is only temporary and he should be off the CPAP tomorrow. In fact, he was put back on nasal cannula so we could hold him. He likes that a lot more.
His neurosurgeon said that his shunt seems to be doing its job. His fontanel (soft spot on his head) is a bit full, but his shunt may take a couple of days to work properly. Finding the right valve for the shunt can be tricky because it is a pressure release valve. If it is too sensitive to pressure, then too much cerebral spinal fluid can pass into his abdomen. If it isn’t sensitive enough then not enough fluid will pass leading to too much pressure. He had a few X-rays today to see if there were any problems and there were not. When we left the NICU tonight his fontanel seemed to be less swollen. His nurse will keep track of that tonight and tomorrow morning the surgeons will come back and check it.
Tuesday, April 29, 2003
Day 55
Day 55
Jack had his shunt and hernia surgeries today and all went well. To read more about the procedure click here.
We went in to the NICU bright and early this morning because Jack had his surgeries scheduled for 7:30. We wanted to be by his side before he was whisked away to the OR. His surgery was actually moved to 9:40 and unfortunately the NICU was closed to visitors so we couldn’t be with him for a very long time. So, we waited outside of the NICU for his crib to come wheeled down the hall. That happened pretty much right at 9:40 so we were prepared. We followed him down a couple of floors to the OR and wished him good luck.
His surgery lasted about four hours and we spent that time in the Family Waiting Room and took a few breaks to walk around a bit. At about halfway through, his neurosurgeon found us and gave us the great news that Jack’s shunt surgery was a success and there were no complications. We still had to wait until his hernia surgery was completed before we could see him. That call finally came and we learned that was without incident as well. What a relief! Now all we had to do was wait for Jack to be wheeled back up to his home in the NICU.
So there we sat for what seemed like a long time. Finally, we saw the elevator doors open and there was Jack. We yelled, “Is that Jack? Can we see him?!” And they said yes. There he was, wide awake and looking all around. We thought that he was going to have to be intubated for a few days. It was great to see him doing fine and without a tube in his mouth.
We gave his nurse about twenty minutes to get Jack off his temporary oxygen and monitoring system and then went into the NICU. He was still a very active boy at that point too. He was on a lot of caffeine to help stimulate his breathing and was quite alert. We also managed to get to his bedside when the doctors were making their rounds. They said he is looking very good. He was having some issues maintaining his oxygen levels and a few times they dropped rapidly. Actually more rapidly than we have ever seen. We were very nervous, but the nurse said that this sort of thing is normal after surgery. That kinda put our minds at ease. He also didn’t seem very comfortable soon after he returned. We’re sure he was in pain, but we just don’t know how much. The nurse soon gave him a pain reliever and that seemed to help.
We took a small break and went for a walk, hoping that Jack would be better when we returned. And he was! The nurse said that he only destabilized once compared to every three or four minutes when we were first with him. He also seemed much more relaxed. The medicine was doing it’s job.
We left earlier than normal since we were pretty exhausted and Jack fell into a deep sleep. We also didn’t want to disturb him because we know he needs his rest too.
We called in and spoke to his nurse about a half an hour ago and she said Jack is doing fine. He only had a few episodes and is in no noticeable pain. Once again he proved that he can not only overcome obstacles, but also exceed everybody’s expectations.
Jack had his shunt and hernia surgeries today and all went well. To read more about the procedure click here.
We went in to the NICU bright and early this morning because Jack had his surgeries scheduled for 7:30. We wanted to be by his side before he was whisked away to the OR. His surgery was actually moved to 9:40 and unfortunately the NICU was closed to visitors so we couldn’t be with him for a very long time. So, we waited outside of the NICU for his crib to come wheeled down the hall. That happened pretty much right at 9:40 so we were prepared. We followed him down a couple of floors to the OR and wished him good luck.
His surgery lasted about four hours and we spent that time in the Family Waiting Room and took a few breaks to walk around a bit. At about halfway through, his neurosurgeon found us and gave us the great news that Jack’s shunt surgery was a success and there were no complications. We still had to wait until his hernia surgery was completed before we could see him. That call finally came and we learned that was without incident as well. What a relief! Now all we had to do was wait for Jack to be wheeled back up to his home in the NICU.
So there we sat for what seemed like a long time. Finally, we saw the elevator doors open and there was Jack. We yelled, “Is that Jack? Can we see him?!” And they said yes. There he was, wide awake and looking all around. We thought that he was going to have to be intubated for a few days. It was great to see him doing fine and without a tube in his mouth.
We gave his nurse about twenty minutes to get Jack off his temporary oxygen and monitoring system and then went into the NICU. He was still a very active boy at that point too. He was on a lot of caffeine to help stimulate his breathing and was quite alert. We also managed to get to his bedside when the doctors were making their rounds. They said he is looking very good. He was having some issues maintaining his oxygen levels and a few times they dropped rapidly. Actually more rapidly than we have ever seen. We were very nervous, but the nurse said that this sort of thing is normal after surgery. That kinda put our minds at ease. He also didn’t seem very comfortable soon after he returned. We’re sure he was in pain, but we just don’t know how much. The nurse soon gave him a pain reliever and that seemed to help.
We took a small break and went for a walk, hoping that Jack would be better when we returned. And he was! The nurse said that he only destabilized once compared to every three or four minutes when we were first with him. He also seemed much more relaxed. The medicine was doing it’s job.
We left earlier than normal since we were pretty exhausted and Jack fell into a deep sleep. We also didn’t want to disturb him because we know he needs his rest too.
We called in and spoke to his nurse about a half an hour ago and she said Jack is doing fine. He only had a few episodes and is in no noticeable pain. Once again he proved that he can not only overcome obstacles, but also exceed everybody’s expectations.
Monday, April 28, 2003
Day 54
Day 54
Tomorrow is an important day for Jack. He is having surgery to have the shunt implanted and also to fix his hernia. We weren’t expecting the surgery to happen tomorrow, so the news was a surprise. Tonight he will get his last feeding before the surgery and very early in the morning he will be taken to the OR. Unfortunately he will have to be intubated again during the surgery but he will probably only need the breathing tube for a day or two.
We are very nervous but the neurosurgeon has performed hundreds of these procedures and the likelihood of complications is small. We are more worried about infections in the coming days and the possibility that the shunt may not work properly. Jack has been a real trooper so far in his life, so we feel optimistic that everything will be ok. We mostly feel sorry for the little guy…that he has to go through this, because despite occasionally experiencing refluxes after eating, he seems very comfortable and relaxed in his little home. Any discomfort for him is hard on our hearts. But, we know that this needs to happen, so we are trying to be strong for him.
Tonight, Jack is continuing to do well. Sometimes his oxygen levels drop a bit, but that is only because he gets so comfortable he forgets to breathe. It only takes a little stimulation to get him to take deep breaths and sometimes the oxygen needs to be increased slightly. We are so grateful for the nurses who keep a watchful eye on him, ready to come to his aid if he needs it.
We will be seeing Jack bright and early at 6am to wish him well. Please keep him in your thoughts and prayers.
Tomorrow is an important day for Jack. He is having surgery to have the shunt implanted and also to fix his hernia. We weren’t expecting the surgery to happen tomorrow, so the news was a surprise. Tonight he will get his last feeding before the surgery and very early in the morning he will be taken to the OR. Unfortunately he will have to be intubated again during the surgery but he will probably only need the breathing tube for a day or two.
We are very nervous but the neurosurgeon has performed hundreds of these procedures and the likelihood of complications is small. We are more worried about infections in the coming days and the possibility that the shunt may not work properly. Jack has been a real trooper so far in his life, so we feel optimistic that everything will be ok. We mostly feel sorry for the little guy…that he has to go through this, because despite occasionally experiencing refluxes after eating, he seems very comfortable and relaxed in his little home. Any discomfort for him is hard on our hearts. But, we know that this needs to happen, so we are trying to be strong for him.
Tonight, Jack is continuing to do well. Sometimes his oxygen levels drop a bit, but that is only because he gets so comfortable he forgets to breathe. It only takes a little stimulation to get him to take deep breaths and sometimes the oxygen needs to be increased slightly. We are so grateful for the nurses who keep a watchful eye on him, ready to come to his aid if he needs it.
We will be seeing Jack bright and early at 6am to wish him well. Please keep him in your thoughts and prayers.
Sunday, April 27, 2003
Day 53
Day 53
We had a nice time at the WalkAmercia event today, thanks Grandpa Bob, Steph, and Jill for walking with us!! Check out the WalkAmerica link for our grand total!
We also had a very nice visit with Jack this afternoon. He was sleeping mostly, but that’s okay, he works so hard! We tucked him in for the night and told him we’d see him tomorrow.
We are hoping to know tomorrow what day his surgery will be this week. Most likely Wednesday or Thursday. We will keep you posted. Please keep Jack in your thoughts and prayers!
We had a nice time at the WalkAmercia event today, thanks Grandpa Bob, Steph, and Jill for walking with us!! Check out the WalkAmerica link for our grand total!
We also had a very nice visit with Jack this afternoon. He was sleeping mostly, but that’s okay, he works so hard! We tucked him in for the night and told him we’d see him tomorrow.
We are hoping to know tomorrow what day his surgery will be this week. Most likely Wednesday or Thursday. We will keep you posted. Please keep Jack in your thoughts and prayers!
Saturday, April 26, 2003
Day 52
Day 52
After a long pause in development, Jack’s room is really taking shape with the addition of his crib and changing table/chest of drawers. They match the woodwork perfectly. Thanks to Grandpa Bob and Tina we could get the furniture to our house. Thanks to G-Pauly, we could get the furniture up the stairs and assembled. And thanks to Great-Grandpa Umpa, we could get the furniture! It truly was a team effort and it looks wonderful up there, but yes, it will only be complete when Jack comes home.
And, that time is getting closer and closer. Jack is doing great. His nurses say that he looks wonderful. On his medical chart, the doctors even said he is “growing like a weed!” He weighs 4lbs 4.3oz.
His rapid weight gain of course is good, but that also means that he will be getting the shunt put in soon. This week to be exact. Probably Wednesday or Thursday. While under anesthesia he will also get his hernia taken care of. This will be a crucial time, but we know Jack is strong enough to get through it A-Ok.
After a long pause in development, Jack’s room is really taking shape with the addition of his crib and changing table/chest of drawers. They match the woodwork perfectly. Thanks to Grandpa Bob and Tina we could get the furniture to our house. Thanks to G-Pauly, we could get the furniture up the stairs and assembled. And thanks to Great-Grandpa Umpa, we could get the furniture! It truly was a team effort and it looks wonderful up there, but yes, it will only be complete when Jack comes home.
And, that time is getting closer and closer. Jack is doing great. His nurses say that he looks wonderful. On his medical chart, the doctors even said he is “growing like a weed!” He weighs 4lbs 4.3oz.
His rapid weight gain of course is good, but that also means that he will be getting the shunt put in soon. This week to be exact. Probably Wednesday or Thursday. While under anesthesia he will also get his hernia taken care of. This will be a crucial time, but we know Jack is strong enough to get through it A-Ok.
Day 52
Day 52
Boy it’s late way past our bedtime! Jack had a great day today. He’s up to 4lbs, 1.5oz. He’s our big boy!
Mommy got to hold Jack all afternoon, and he hardly needed his nurse at all…we’re getting used to taking care of Jack all on our own.
Tomorrow we will pick up Jack’s crib and changing table from BabiesRus. We are very excited!
Goodnight everyone and have a great weekend!
Boy it’s late way past our bedtime! Jack had a great day today. He’s up to 4lbs, 1.5oz. He’s our big boy!
Mommy got to hold Jack all afternoon, and he hardly needed his nurse at all…we’re getting used to taking care of Jack all on our own.
Tomorrow we will pick up Jack’s crib and changing table from BabiesRus. We are very excited!
Goodnight everyone and have a great weekend!
Thursday, April 24, 2003
Day 50
Day 50
Jack is a whopping 4lbs today!! He’s actually just a tad over 4lbs…YAY, way to go Jack! He’s continuing to amaze us with his rapid weight gain. Jack’s eating well, but sometimes has bouts of acid reflux. This is uncomfortable for Jack so they put him on a medicine called Reglan to help him digest his food faster to relieve the reflux.
Jack really loves his crib! Well, actually we really love his crib too. It’s so much easier to see him and take care of him. We don’t even need a nurse around when we want to get him out to hold him. This freedom is absolutely wonderful!
It looks like Jack will need the shunt surgery. This is not a surprise to us. This will take the place of his temporary reservoir and will be a permanent solution to drain the fluid to prevent swelling from Hydrocephalus. He also has a small hernia that will also be repaired at the time of his shunt surgery. This is good because then he’ll only have to go under anesthesia once. They want him to be just a little bit bigger before they do the surgery so we are not sure of an exact time frame yet.
Jack will have another eye exam in two weeks. We will then meet with the eye doctor to see if he can tell us anything more. Even though a lot of things are “wait and see” we know Jack is strong and will pull through everything just fine!
Jack is a whopping 4lbs today!! He’s actually just a tad over 4lbs…YAY, way to go Jack! He’s continuing to amaze us with his rapid weight gain. Jack’s eating well, but sometimes has bouts of acid reflux. This is uncomfortable for Jack so they put him on a medicine called Reglan to help him digest his food faster to relieve the reflux.
Jack really loves his crib! Well, actually we really love his crib too. It’s so much easier to see him and take care of him. We don’t even need a nurse around when we want to get him out to hold him. This freedom is absolutely wonderful!
It looks like Jack will need the shunt surgery. This is not a surprise to us. This will take the place of his temporary reservoir and will be a permanent solution to drain the fluid to prevent swelling from Hydrocephalus. He also has a small hernia that will also be repaired at the time of his shunt surgery. This is good because then he’ll only have to go under anesthesia once. They want him to be just a little bit bigger before they do the surgery so we are not sure of an exact time frame yet.
Jack will have another eye exam in two weeks. We will then meet with the eye doctor to see if he can tell us anything more. Even though a lot of things are “wait and see” we know Jack is strong and will pull through everything just fine!
Wednesday, April 23, 2003
Day 49
Day 49
We got many surprises today when we went in to see Jack. He is in a CRIB! Way to go Jack. He was doing such a good job keeping his temperature where it needs to be that they decided he no longer needed an incubator. Now we have to shop for a mobile for him!
In addition to that great news, Mommy fed Jack with a bottle! Yes…Jack did very well mastering the act of sucking and swallowing at the same time and remembering to breathe. He was given 15ccs of food and managed to only get about 3 on his bib. What a great job!
He is up to 34ccs of food every three hours and that is contributing to his rapid weight gain. He is 3lbs 15.6oz. Just .4oz away from an astonishing four pounds. That is great news.
We did get the results from the eye exam today and found that Jack suffered some optic nerve damage at the time of his bleed. Its frustrating, but like seemingly everything else, only time will tell. It might turn out that he may need glasses at an early age. We are optimistic because we know that Jack can see. When we take pictures of him, he flinches and quickly closes his eyes because of the flash. He also looks at us all the time.
We had a nice chat with one of his nurses today. We discussed Jack’s trip home and all the joys and challenges that come along with it. Of course we can’t wait till the day that Jack will be coming home, but it will be a stressful time. We are used to having our most of our daily worries lessened by knowing the NICU staff is there ready to jump in at any time. But, we are preparing in advance by doing as much as we can with Jack now and asking the nurses many questions.
We got many surprises today when we went in to see Jack. He is in a CRIB! Way to go Jack. He was doing such a good job keeping his temperature where it needs to be that they decided he no longer needed an incubator. Now we have to shop for a mobile for him!
In addition to that great news, Mommy fed Jack with a bottle! Yes…Jack did very well mastering the act of sucking and swallowing at the same time and remembering to breathe. He was given 15ccs of food and managed to only get about 3 on his bib. What a great job!
He is up to 34ccs of food every three hours and that is contributing to his rapid weight gain. He is 3lbs 15.6oz. Just .4oz away from an astonishing four pounds. That is great news.
We did get the results from the eye exam today and found that Jack suffered some optic nerve damage at the time of his bleed. Its frustrating, but like seemingly everything else, only time will tell. It might turn out that he may need glasses at an early age. We are optimistic because we know that Jack can see. When we take pictures of him, he flinches and quickly closes his eyes because of the flash. He also looks at us all the time.
We had a nice chat with one of his nurses today. We discussed Jack’s trip home and all the joys and challenges that come along with it. Of course we can’t wait till the day that Jack will be coming home, but it will be a stressful time. We are used to having our most of our daily worries lessened by knowing the NICU staff is there ready to jump in at any time. But, we are preparing in advance by doing as much as we can with Jack now and asking the nurses many questions.
Tuesday, April 22, 2003
Day 48
Day 48
Jack weighs 3lbs 13.2oz today. We can’t wait till he reaches 4 pounds.
Jack slept in his mommy’s arms most of the afternoon and then even was held by his daddy when he arrived. Then he got a little upset and went back into his bed (not from his daddy though).
Jack had an eye exam today and we are still awaiting the results. We should have them tomorrow.
There was little new news today, but Jack is still on the right path. He’s getting bigger and stronger every day!
Jack weighs 3lbs 13.2oz today. We can’t wait till he reaches 4 pounds.
Jack slept in his mommy’s arms most of the afternoon and then even was held by his daddy when he arrived. Then he got a little upset and went back into his bed (not from his daddy though).
Jack had an eye exam today and we are still awaiting the results. We should have them tomorrow.
There was little new news today, but Jack is still on the right path. He’s getting bigger and stronger every day!
Monday, April 21, 2003
Day 47
Day 47
Jack is officially off CPAP! At least for the time being. He is doing all the work on his own now, but that doesn’t mean that he won’t need the assistance of CPAP sometime in the future. We are just happy, and we’re sure Jack is too, that no more bothersome nasal prongs are needed. He still has the small ones for the nasal cannula, but they are no sweat for him. He does try to pull them out occasionally.
Mommy got to hold Jack again this evening and he did very well. He was looking all around switching glances back and forth between Mommy and Daddy. He even snuck in a few great big smiles.
He’s up to 3lbs 11.5oz already. Soon he’ll be up to 4 pounds! It wasn’t too long ago that he barely gained an ounce every three days. Now he gains an ounce a day and sometimes more.
He is doing really well regulating his body temperature, so soon he’ll be in a crib instead of an incubator. That will be great because it will be so much easier to get him out of bed and hold him.
Jack is officially off CPAP! At least for the time being. He is doing all the work on his own now, but that doesn’t mean that he won’t need the assistance of CPAP sometime in the future. We are just happy, and we’re sure Jack is too, that no more bothersome nasal prongs are needed. He still has the small ones for the nasal cannula, but they are no sweat for him. He does try to pull them out occasionally.
Mommy got to hold Jack again this evening and he did very well. He was looking all around switching glances back and forth between Mommy and Daddy. He even snuck in a few great big smiles.
He’s up to 3lbs 11.5oz already. Soon he’ll be up to 4 pounds! It wasn’t too long ago that he barely gained an ounce every three days. Now he gains an ounce a day and sometimes more.
He is doing really well regulating his body temperature, so soon he’ll be in a crib instead of an incubator. That will be great because it will be so much easier to get him out of bed and hold him.
Sunday, April 20, 2003
Day 46
Day 46
HAPPY EASTER! Jack had a very happy Easter today. He got his picture taken with the Easter Bunny and everything! The nurses posed him with the Bunny and snapped a Polaroid of him and put it into a cute card for us. That truly made our day!
He is up to 3lbs, 10.6 oz and is getting 31ccs of food. He’s continuing to grow right before our eyes. He’s still on 9 hours of Nasal Cannula and 3 hours of CPAP. He’s getting there!
HAPPY EASTER! Jack had a very happy Easter today. He got his picture taken with the Easter Bunny and everything! The nurses posed him with the Bunny and snapped a Polaroid of him and put it into a cute card for us. That truly made our day!
He is up to 3lbs, 10.6 oz and is getting 31ccs of food. He’s continuing to grow right before our eyes. He’s still on 9 hours of Nasal Cannula and 3 hours of CPAP. He’s getting there!
Saturday, April 19, 2003
Day 45
Day 45
Jack weighs 3lbs, 9.5 oz! He had a big weight gain in the last two days. He’s now getting 30ccs of food every three hours. He’s also on 9 hours of Nasal Cannula and only 3 hours of CPAP. Tomorrow they hope to eliminate the CPAP completely!! He’s making great progress since he was only off the ventilator less than a week ago.
We got to hold Jack again today, he’s such a good boy! We are so looking forward to the day when he comes home. We’ll be so happy. But until that day, we know he’s getting the best care anywhere!
Jack weighs 3lbs, 9.5 oz! He had a big weight gain in the last two days. He’s now getting 30ccs of food every three hours. He’s also on 9 hours of Nasal Cannula and only 3 hours of CPAP. Tomorrow they hope to eliminate the CPAP completely!! He’s making great progress since he was only off the ventilator less than a week ago.
We got to hold Jack again today, he’s such a good boy! We are so looking forward to the day when he comes home. We’ll be so happy. But until that day, we know he’s getting the best care anywhere!
Friday, April 18, 2003
Day 44
Day 44
Jack was so alert and wide awake during our visit today. His little facial expressions are priceless! He’s such a cutie. He amazes us more and more each passing day – he’s getting so big and strong. We’re hooked on the kid!
We gave him a bath this afternoon and he didn’t seem to mind it at all! He was such a good boy. They also extended his time off CPAP! He’s switching from CPAP to Nasal Cannula every 6 hours. This is a great accomplishment. He didn’t have any Apnea episodes today, which is also very good.
We hope everyone has a safe and happy Easter! Goodnight everyone!
Jack was so alert and wide awake during our visit today. His little facial expressions are priceless! He’s such a cutie. He amazes us more and more each passing day – he’s getting so big and strong. We’re hooked on the kid!
We gave him a bath this afternoon and he didn’t seem to mind it at all! He was such a good boy. They also extended his time off CPAP! He’s switching from CPAP to Nasal Cannula every 6 hours. This is a great accomplishment. He didn’t have any Apnea episodes today, which is also very good.
We hope everyone has a safe and happy Easter! Goodnight everyone!
Thursday, April 17, 2003
Day 43
Day 43
Jack and mommy got to bond “kangaroo” style this evening! It was a wonderful thing for both of them. Jack was very content and even had his dinner while on her chest.
Every once in a while preemies get a little too comfortable and forget to breath and have an episode called Apnea. Most times they can be stimulated by a tickle on the foot or a pat on the back. Jack has these every so often, and this is something he’ll grow out of eventually. It’s very scary for us to watch, but we are getting accustomed to it. Other than that, Jack is doing very well with his breathing. He is cycling between CPAP and nasal cannula every few hours. They will continue to decrease the amount of time spent on CPAP and increase the time spent on nasal cannula as the days go by.
Jack weighs 3lbs, 6oz and is getting 29ccs of food every three hours. That’s 1cc shy of a whole ounce! He is getting bigger and changing so much as the weeks go by. He’s getting chubby cheeks and everything!
Jack and mommy got to bond “kangaroo” style this evening! It was a wonderful thing for both of them. Jack was very content and even had his dinner while on her chest.
Every once in a while preemies get a little too comfortable and forget to breath and have an episode called Apnea. Most times they can be stimulated by a tickle on the foot or a pat on the back. Jack has these every so often, and this is something he’ll grow out of eventually. It’s very scary for us to watch, but we are getting accustomed to it. Other than that, Jack is doing very well with his breathing. He is cycling between CPAP and nasal cannula every few hours. They will continue to decrease the amount of time spent on CPAP and increase the time spent on nasal cannula as the days go by.
Jack weighs 3lbs, 6oz and is getting 29ccs of food every three hours. That’s 1cc shy of a whole ounce! He is getting bigger and changing so much as the weeks go by. He’s getting chubby cheeks and everything!
Wednesday, April 16, 2003
Day 42
Day 42
Well, little Jack surprised us again. He was actually off the CPAP today and just got a little assistance from nasal cannula, which just provided oxygen for him to breath. He was on that for over two hours! In fact, the tube wasn’t even hooked up properly so he wasn’t getting any oxygen and only after 15 minutes did his oxygen saturation drop a bit. That’s 15 minutes of breathing without any assistance! What an accomplishment!
Tomorrow they are going to take him off CPAP for a little longer. They’ll continue this until he is off totally. That doesn’t mean that he will never be on it again. In fact, if preemies off CPAP develop an infection, it is not uncommon for them to have to be intubated for a while until their body recovers. We’ll just keep our fingers crossed that this won’t be the case for Jack.
Daddy even got to hold Jack today while he was free of CPAP. He looked up at him and smiled a few times. Jason was making funny noises and singing to him. That made him smile. He was so content all day in his mommy’s arms. He loved it.
When it was time to put Jack back on the CPAP, he was not a happy camper at all. He fought the nasal prongs and tried to pull them out (which he did eventually). But mommy and his nurse settled him down and it seemed like he just accepted the fact.
Soon we will start Kangaroo Care with Jack which is bonding skin to skin. A man from Jason’s work who recently had a preemie said once he started Kangaroo Care with his daughter, she started to progress much more rapidly.
Jack got a new home today as well. It was time for his incubator to be changed and he got an older, less advanced model. He doesn’t seem to mind. We just take it as good news that he doesn’t need all those bells and whistles any more… and now we can see him better.
Well, little Jack surprised us again. He was actually off the CPAP today and just got a little assistance from nasal cannula, which just provided oxygen for him to breath. He was on that for over two hours! In fact, the tube wasn’t even hooked up properly so he wasn’t getting any oxygen and only after 15 minutes did his oxygen saturation drop a bit. That’s 15 minutes of breathing without any assistance! What an accomplishment!
Tomorrow they are going to take him off CPAP for a little longer. They’ll continue this until he is off totally. That doesn’t mean that he will never be on it again. In fact, if preemies off CPAP develop an infection, it is not uncommon for them to have to be intubated for a while until their body recovers. We’ll just keep our fingers crossed that this won’t be the case for Jack.
Daddy even got to hold Jack today while he was free of CPAP. He looked up at him and smiled a few times. Jason was making funny noises and singing to him. That made him smile. He was so content all day in his mommy’s arms. He loved it.
When it was time to put Jack back on the CPAP, he was not a happy camper at all. He fought the nasal prongs and tried to pull them out (which he did eventually). But mommy and his nurse settled him down and it seemed like he just accepted the fact.
Soon we will start Kangaroo Care with Jack which is bonding skin to skin. A man from Jason’s work who recently had a preemie said once he started Kangaroo Care with his daughter, she started to progress much more rapidly.
Jack got a new home today as well. It was time for his incubator to be changed and he got an older, less advanced model. He doesn’t seem to mind. We just take it as good news that he doesn’t need all those bells and whistles any more… and now we can see him better.
Tuesday, April 15, 2003
Day 41
Day 41
Mommy got to hold Jack for three hours today! He did very well in her arms. He was making little faces and smiling. She even got to feed him while she held him.
He gained 40 grams today, but he is still officially at 3lbs 3oz. We are very proud of him.
Even though he is doing very well on the CPAP, it can still be uncomfortable for him and sometimes he tries to pull the prongs out or they just accidentally come out. The nurse just comes over and puts them back in, or we can even put them back in if we are there.
He is so cute when he sucks on his pacifier while he gets fed. He really goes to town. He even sneezes! Everything he is doing is cute! It’s great to hear his sweet voice, even if he is very angry sometimes. Most of the time he is not.
Mommy got to hold Jack for three hours today! He did very well in her arms. He was making little faces and smiling. She even got to feed him while she held him.
He gained 40 grams today, but he is still officially at 3lbs 3oz. We are very proud of him.
Even though he is doing very well on the CPAP, it can still be uncomfortable for him and sometimes he tries to pull the prongs out or they just accidentally come out. The nurse just comes over and puts them back in, or we can even put them back in if we are there.
He is so cute when he sucks on his pacifier while he gets fed. He really goes to town. He even sneezes! Everything he is doing is cute! It’s great to hear his sweet voice, even if he is very angry sometimes. Most of the time he is not.
Monday, April 14, 2003
JACK IS OFF THE VENTILATOR!
Day 40
JACK IS OFF THE VENTILATOR! We were so surprised to see that he was breathing all on his own when we got there today. He is such a strong boy. We’re very proud of him. He seems so much more comfortable now that he doesn’t have that tube down his throat anymore. He actually had his own pacifier and he did a good job breaking it in.
His nurse said that once he gets used to the CPAP, they will gradually wean him off that as well. That process consists of taking him off the CPAP for a few hours at a time and then increasing the length of time that he is off. Towards the end, he will only be on the CPAP for a few hours a day. We really don’t know the timeframe yet. It really depends on how well he does.
It will be great to be able to hold him without being hooked to a breathing tube. Of course he will still be on oxygen, but it will be much easier to take him out of his bed.
Right now he is handling the transition very well. His blood gases are good and the only time we saw his oxygen saturation drop is when he pulled the nasal prongs out. This is not a big deal because the nurses quickly respond and put them back in.
We also heard him cry for the first time and he made cute sounds when he hiccupped after his feeding. Soon he will be crying louder and louder after his vocal cords heal from being intubated. We can’t wait!
JACK IS OFF THE VENTILATOR! We were so surprised to see that he was breathing all on his own when we got there today. He is such a strong boy. We’re very proud of him. He seems so much more comfortable now that he doesn’t have that tube down his throat anymore. He actually had his own pacifier and he did a good job breaking it in.
His nurse said that once he gets used to the CPAP, they will gradually wean him off that as well. That process consists of taking him off the CPAP for a few hours at a time and then increasing the length of time that he is off. Towards the end, he will only be on the CPAP for a few hours a day. We really don’t know the timeframe yet. It really depends on how well he does.
It will be great to be able to hold him without being hooked to a breathing tube. Of course he will still be on oxygen, but it will be much easier to take him out of his bed.
Right now he is handling the transition very well. His blood gases are good and the only time we saw his oxygen saturation drop is when he pulled the nasal prongs out. This is not a big deal because the nurses quickly respond and put them back in.
We also heard him cry for the first time and he made cute sounds when he hiccupped after his feeding. Soon he will be crying louder and louder after his vocal cords heal from being intubated. We can’t wait!
Sunday, April 13, 2003
Day 39
Day 39
Jack is officially 3lbs 3oz today. He is making good progress on his weight gaining between 20 to 40 grams a day. That is just what he should be doing. His blood gases are good again today and that is good news if you want to get off a ventilator.
We ordered Jack’s furniture for his room today from Babies ‘R’ Us. He got a nice crib and changing table/ chest of drawers. It should be ready for pick-up in about two weeks. We need to get a lot ready for his trip home.
Jack was sleeping most of the time while we were there. Once in a while he would open his eyes and look around, stopping briefly to look at us. It is an awesome feeling to make eye contact with your baby. Especially when your baby had to wear a protective mask for the first few weeks and you couldn’t even see his eyes. Everyday, he seems to become more aware of his surroundings and more in tune with his facial expressions. Some people think that they see Jack smile at them. That’s not impossible to believe…Jack has surprised us in many ways so far.
Jack is officially 3lbs 3oz today. He is making good progress on his weight gaining between 20 to 40 grams a day. That is just what he should be doing. His blood gases are good again today and that is good news if you want to get off a ventilator.
We ordered Jack’s furniture for his room today from Babies ‘R’ Us. He got a nice crib and changing table/ chest of drawers. It should be ready for pick-up in about two weeks. We need to get a lot ready for his trip home.
Jack was sleeping most of the time while we were there. Once in a while he would open his eyes and look around, stopping briefly to look at us. It is an awesome feeling to make eye contact with your baby. Especially when your baby had to wear a protective mask for the first few weeks and you couldn’t even see his eyes. Everyday, he seems to become more aware of his surroundings and more in tune with his facial expressions. Some people think that they see Jack smile at them. That’s not impossible to believe…Jack has surprised us in many ways so far.
Saturday, April 12, 2003
Day 38
Day 38
Jack seems to be enjoying the lovely day. He was very content during our visit this today. He now weighs 3lbs, 2oz, and is up to 26ccs of food! He’s a big boy!
His vent settings were lowered again to 25 breaths per minute, and this time his blood work came back a-okay! So they will try him on an even lower setting this evening. He’s well on his way to being off that ventilator.
We want to thank everyone for their continued support, it’s your words and your prayers that are helping our little family stay so strong. We hope everyone has a great weekend!
Jack seems to be enjoying the lovely day. He was very content during our visit this today. He now weighs 3lbs, 2oz, and is up to 26ccs of food! He’s a big boy!
His vent settings were lowered again to 25 breaths per minute, and this time his blood work came back a-okay! So they will try him on an even lower setting this evening. He’s well on his way to being off that ventilator.
We want to thank everyone for their continued support, it’s your words and your prayers that are helping our little family stay so strong. We hope everyone has a great weekend!
Friday, April 11, 2003
Day 37
Day 37
Jack is still at 3lbs 1oz, but did gain 20 grams…just not enough to officially gain an ounce. Tomorrow he will be there though.
Jack is being slowing weaned off the ventilator. They lowered his vent settings to only 25 breaths per minute at around 25% oxygen and then took a measurement of his blood gases. His C02 levels were a bit high so they raised his breaths to 30 times per minute. Tomorrow they will most likely try again. Right now Jack is comfortable with the amount of help the ventilator is giving him. In order to get him off that he has to learn to do more on his own. He has been gradually doing that over the past month, but now they are being a bit more aggressive in their approach. Hopefully next week he will be on CPAP
Jack is still at 3lbs 1oz, but did gain 20 grams…just not enough to officially gain an ounce. Tomorrow he will be there though.
Jack is being slowing weaned off the ventilator. They lowered his vent settings to only 25 breaths per minute at around 25% oxygen and then took a measurement of his blood gases. His C02 levels were a bit high so they raised his breaths to 30 times per minute. Tomorrow they will most likely try again. Right now Jack is comfortable with the amount of help the ventilator is giving him. In order to get him off that he has to learn to do more on his own. He has been gradually doing that over the past month, but now they are being a bit more aggressive in their approach. Hopefully next week he will be on CPAP
Thursday, April 10, 2003
Day 36
Day 36
Jack is tipping the scale at 3lbs, 1oz today! He is doing very well. Angie gave him his bath this afternoon, and took part in a few of his care sessions today. We spent some time with him this evening getting him fed and ready for bed.
The doctors think Jack will be ready to be off the ventilator soon, and on to something called CPAP. This will help him breathe using nasal prongs with oxygen and some ventilator control, but he won’t have to have a tube down his throat and he will be taking all the breaths on his own.
We are so happy to be planning Jack’s homecoming, and we look forward to seeing our friends and family all together at Jack’s party!
Jack is tipping the scale at 3lbs, 1oz today! He is doing very well. Angie gave him his bath this afternoon, and took part in a few of his care sessions today. We spent some time with him this evening getting him fed and ready for bed.
The doctors think Jack will be ready to be off the ventilator soon, and on to something called CPAP. This will help him breathe using nasal prongs with oxygen and some ventilator control, but he won’t have to have a tube down his throat and he will be taking all the breaths on his own.
We are so happy to be planning Jack’s homecoming, and we look forward to seeing our friends and family all together at Jack’s party!
Wednesday, April 09, 2003
Day 35
Day 35
Jack has reached 3 lbs! And, along with his weight gain, there must have been a strength gain as well. Today, without being initially noticed, Jack lifted up his head and turned it completely in the other direction. We’ve seen Jack raise his head off his bed a few times in the past, but nothing to this magnitude. Jack’s nurse was surprised. He shouldn’t be moving his head because he is intubated and the nurses have to totally disconnect him to move him around. But, they looked at his oxygen saturation and there were no problems with that. It will probably be soon when Jack is off the ventilator anyway, so this shouldn’t be a problem in the future. We’re just proud of his accomplishment. Soon he’ll be doing jumping jacks.
Jack has reached 3 lbs! And, along with his weight gain, there must have been a strength gain as well. Today, without being initially noticed, Jack lifted up his head and turned it completely in the other direction. We’ve seen Jack raise his head off his bed a few times in the past, but nothing to this magnitude. Jack’s nurse was surprised. He shouldn’t be moving his head because he is intubated and the nurses have to totally disconnect him to move him around. But, they looked at his oxygen saturation and there were no problems with that. It will probably be soon when Jack is off the ventilator anyway, so this shouldn’t be a problem in the future. We’re just proud of his accomplishment. Soon he’ll be doing jumping jacks.
Tuesday, April 08, 2003
Day 34
Day 34
Jack weighs 2lbs 15 ozs. He gained 40 grams in one day. What a big boy!
Jack was very sleepy tonight. We read him “Goodnight Moon.” He responded by opening his eyes a few times, but then it was back to his slumber.
There isn’t much to report tonight, but Jack is continuing to do very well. We just can’t wait for him to come home.
Jack weighs 2lbs 15 ozs. He gained 40 grams in one day. What a big boy!
Jack was very sleepy tonight. We read him “Goodnight Moon.” He responded by opening his eyes a few times, but then it was back to his slumber.
There isn’t much to report tonight, but Jack is continuing to do very well. We just can’t wait for him to come home.
Monday, April 07, 2003
Day 33
Jack was very alert and active tonight. We took part in his evening care session and helped get him ready for bed. While he was getting dinner we sang “Itsy Bitsy Spider” to him. We’ll have to learn more songs though, because too many encores of that song and it’s permanently stuck in your head!
Jack won his first contest! We e-mailed www.earlybirds.com.au an Australian company and told them Jack’s story. He was chosen as “the preemie of the month” and they are going to send Jack clothing made just for preemies! Very cool for Jack to be winning over hearts all the way in Australia. They haven’t updated their site yet to include Jack’s picture, but we keep checking every day!
Jack was looking all around his isolette tonight. He even made eye contact with us a few times, what a wonderful feeling. As he drifted off to sleep we wished him goodnight.
Jack was very alert and active tonight. We took part in his evening care session and helped get him ready for bed. While he was getting dinner we sang “Itsy Bitsy Spider” to him. We’ll have to learn more songs though, because too many encores of that song and it’s permanently stuck in your head!
Jack won his first contest! We e-mailed www.earlybirds.com.au an Australian company and told them Jack’s story. He was chosen as “the preemie of the month” and they are going to send Jack clothing made just for preemies! Very cool for Jack to be winning over hearts all the way in Australia. They haven’t updated their site yet to include Jack’s picture, but we keep checking every day!
Jack was looking all around his isolette tonight. He even made eye contact with us a few times, what a wonderful feeling. As he drifted off to sleep we wished him goodnight.
Sunday, April 06, 2003
Day 32
Day 32
Jack continues to have a great appetite. He is up to 24 ccs of food now. How much can his little tummy hold anyway? Jack weighed about the same as he did yesterday, only gaining a few grams. We aren’t too concerned because depending on the time he pees, his weight can vary. His doctors say he is steadily gaining weight. As long as it increases, we are happy.
Not much has changed from yesterday, except we are talking more and more about the day when Jack will come home. There’s a big party in the works, so stay tuned.
Jack continues to have a great appetite. He is up to 24 ccs of food now. How much can his little tummy hold anyway? Jack weighed about the same as he did yesterday, only gaining a few grams. We aren’t too concerned because depending on the time he pees, his weight can vary. His doctors say he is steadily gaining weight. As long as it increases, we are happy.
Not much has changed from yesterday, except we are talking more and more about the day when Jack will come home. There’s a big party in the works, so stay tuned.
Saturday, April 05, 2003
Day 31
Day 31
We had a chat with Jack’s primary doctor today and he had some encouraging news. First, if all goes well, Jack may be able to come home even before his due date (June 13th)! This is the first time a doctor mentioned him going home. And late next week, he may even be off his ventilator, so that means no more tube down Jack’s throat and we’ll be able to hear his first cry.
Once again, the doctor reiterated that we won’t know exactly how well Jack will do until he actually reaches the points where his developmental milestones should be…breathing completely on his own, sucking and swallowing reflexes, and ultimately muscular control. There aren’t many tests that can accurately predict how he will be. We just have to take the wait and see approach.
The doctor also said that he is seeing signs that the area of the bleed is starting to clear up. This doesn’t mean that the damage will go away, but instead something called a porencephalic cyst is starting to form. This isn’t necessarily bad news, but just something that happens after an IVH. The cyst basically takes up the space where the bleed occurred.
We left feeling pretty good and optimistic after our talk. We got more assurance that he’s progressing well. His lungs are developing well, he’s taking his food well, and he is growing and getting stronger.
Angie got to hold Jack again and as usual he fell asleep in her arms.
We had a chat with Jack’s primary doctor today and he had some encouraging news. First, if all goes well, Jack may be able to come home even before his due date (June 13th)! This is the first time a doctor mentioned him going home. And late next week, he may even be off his ventilator, so that means no more tube down Jack’s throat and we’ll be able to hear his first cry.
Once again, the doctor reiterated that we won’t know exactly how well Jack will do until he actually reaches the points where his developmental milestones should be…breathing completely on his own, sucking and swallowing reflexes, and ultimately muscular control. There aren’t many tests that can accurately predict how he will be. We just have to take the wait and see approach.
The doctor also said that he is seeing signs that the area of the bleed is starting to clear up. This doesn’t mean that the damage will go away, but instead something called a porencephalic cyst is starting to form. This isn’t necessarily bad news, but just something that happens after an IVH. The cyst basically takes up the space where the bleed occurred.
We left feeling pretty good and optimistic after our talk. We got more assurance that he’s progressing well. His lungs are developing well, he’s taking his food well, and he is growing and getting stronger.
Angie got to hold Jack again and as usual he fell asleep in her arms.
Friday, April 04, 2003
Day 30
Day 30
Jack spent the day lounging around in his bed. He didn’t do too much today. He did get a visit from his neurologist, but that is nothing new for him. He is up to 2 lbs 14 oz. Soon he’ll be about 3 lbs and we are going to throw a party!
Angie and his grandma Josie spent the day with him and Angie got to do his afternoon care which consists of changing his diaper, taking his temp and getting him dressed. He didn’t cause too much of a fuss this time.
We think that he is beginning to react to our voice and touch. We are continuing to touch him while talking to him. This would have been too much for him to bear in the early days, but if he gets too stressed we let him rest.
Tomorrow, April 5 will be his official one month birthday. What a milestone!
Jack spent the day lounging around in his bed. He didn’t do too much today. He did get a visit from his neurologist, but that is nothing new for him. He is up to 2 lbs 14 oz. Soon he’ll be about 3 lbs and we are going to throw a party!
Angie and his grandma Josie spent the day with him and Angie got to do his afternoon care which consists of changing his diaper, taking his temp and getting him dressed. He didn’t cause too much of a fuss this time.
We think that he is beginning to react to our voice and touch. We are continuing to touch him while talking to him. This would have been too much for him to bear in the early days, but if he gets too stressed we let him rest.
Tomorrow, April 5 will be his official one month birthday. What a milestone!
Thursday, April 03, 2003
Day 29
Jack was sleeping comfortably on his belly when we were visiting with him tonight. He had just been through his care session and was just finishing his dinner when we got there. He opened his eyes a few times to say hello, but then it was right back to sleep. We can just sit and stare at him forever!
Jack’s getting 21ccs of formula every three hours, and his ventilator settings are even lower tonight and he is taking more breaths on his own. He is continuing to progress each and every day.
Thanks to everyone for your continued support. It means a lot to us! Have a good night everyone!
Jack was sleeping comfortably on his belly when we were visiting with him tonight. He had just been through his care session and was just finishing his dinner when we got there. He opened his eyes a few times to say hello, but then it was right back to sleep. We can just sit and stare at him forever!
Jack’s getting 21ccs of formula every three hours, and his ventilator settings are even lower tonight and he is taking more breaths on his own. He is continuing to progress each and every day.
Thanks to everyone for your continued support. It means a lot to us! Have a good night everyone!
Wednesday, April 02, 2003
Day 28
Day 28
Jack got his first bath from us tonight! Well, it was more of a wipe down with baby body wash. He didn’t like it too much though. It was probably cold for him. First we washed his face with no soap. Then, we added a little soap and washed the rest of him starting at his head. It only took about 10 minutes. We didn’t even realize that Jack gets baths. He has been getting them every other day for a while now. Now that they know we like to bathe him, they are going to wait and let us do it every time.
We also met Jack’s neurosurgeon for the first time. We never had the opportunity to see him because he usually comes in first thing in the morning to see Jack. He was a jolly fellow and very nice. He said Jack is progressing well from his viewpoint. I think I trust the viewpoint of a neurosurgeon. Every day or two they come in and tap his reservoir and get about 10 ccs of fluid, which is pretty standard.
Jack has pretty good reflexes too. He was staring wide-eyed at his kitty when the nurse at the bed across from him turned on the light. He quickly slammed his eyes shut.
Jack got his first bath from us tonight! Well, it was more of a wipe down with baby body wash. He didn’t like it too much though. It was probably cold for him. First we washed his face with no soap. Then, we added a little soap and washed the rest of him starting at his head. It only took about 10 minutes. We didn’t even realize that Jack gets baths. He has been getting them every other day for a while now. Now that they know we like to bathe him, they are going to wait and let us do it every time.
We also met Jack’s neurosurgeon for the first time. We never had the opportunity to see him because he usually comes in first thing in the morning to see Jack. He was a jolly fellow and very nice. He said Jack is progressing well from his viewpoint. I think I trust the viewpoint of a neurosurgeon. Every day or two they come in and tap his reservoir and get about 10 ccs of fluid, which is pretty standard.
Jack has pretty good reflexes too. He was staring wide-eyed at his kitty when the nurse at the bed across from him turned on the light. He quickly slammed his eyes shut.
Tuesday, April 01, 2003
Day 27
Day 27
Jack is up to 21 ccs of food and weighs 2 lbs 14 oz!
He was being fed while we were there tonight. He tolerated his formula very well. There were a couple of times when it seemed that he had an upset stomach, because in his facial expressions it looked like he wanted to cry. His arms became tense and he clenched his fist. A few times he would grab onto his ET tube and yank. We were nervous that he was going to pull it out. We tried a few times to move his arm away from his face, but he was insistent upon quickly moving it back and keeping his hand tightly clenched on it. The nurse reassured us that babies do not often pull their tubes out. Not often, huh?
Jack is getting much stronger as well. During his times of discontent he will almost raise his head completely off the pillow! When you put your finger in and he grabs it, you almost have to fight to get your finger back.
He especially does not like being changed. But, he doesn’t like being wet either. This creates a conflict for Jack, but ultimately he has to be changed and he responds by becoming the seriously mad, kicking preemie. He soon becomes content in a short time after being snuggly wrapped in his blankets.
Tonight he also learned how much Little Brown Hare loves Big Brown Hare from listening to us read, “Guess How Much I Love You?” He drifted off to sleep midway, so don’t spoil the ending for him.
Jack is up to 21 ccs of food and weighs 2 lbs 14 oz!
He was being fed while we were there tonight. He tolerated his formula very well. There were a couple of times when it seemed that he had an upset stomach, because in his facial expressions it looked like he wanted to cry. His arms became tense and he clenched his fist. A few times he would grab onto his ET tube and yank. We were nervous that he was going to pull it out. We tried a few times to move his arm away from his face, but he was insistent upon quickly moving it back and keeping his hand tightly clenched on it. The nurse reassured us that babies do not often pull their tubes out. Not often, huh?
Jack is getting much stronger as well. During his times of discontent he will almost raise his head completely off the pillow! When you put your finger in and he grabs it, you almost have to fight to get your finger back.
He especially does not like being changed. But, he doesn’t like being wet either. This creates a conflict for Jack, but ultimately he has to be changed and he responds by becoming the seriously mad, kicking preemie. He soon becomes content in a short time after being snuggly wrapped in his blankets.
Tonight he also learned how much Little Brown Hare loves Big Brown Hare from listening to us read, “Guess How Much I Love You?” He drifted off to sleep midway, so don’t spoil the ending for him.
Monday, March 31, 2003
Day 26
Day 26
Jack is doing well. He is eating well (something this family knows how to do!) and now weighs 2lbs, 13oz. Before we know it, he’ll be 6ft tall just like his dad!
Jack was really kicking and moving around this afternoon. He sure can get mad when he wants to! Whenever we are there, and it’s time for his care, we love to take part as much as the nurses will let us. This usually involves changing his diaper, taking his temperature, using a tiny massager on his chest and back (to help loosen any build up in his lungs), dressing him, and helping to get him all tucked in for feeding time. This is something we look forward to all day long! The nurses are starting to show us how to reposition Jack, but we are still too nervous to try!
Thanks everyone, have a good night!
Jack is doing well. He is eating well (something this family knows how to do!) and now weighs 2lbs, 13oz. Before we know it, he’ll be 6ft tall just like his dad!
Jack was really kicking and moving around this afternoon. He sure can get mad when he wants to! Whenever we are there, and it’s time for his care, we love to take part as much as the nurses will let us. This usually involves changing his diaper, taking his temperature, using a tiny massager on his chest and back (to help loosen any build up in his lungs), dressing him, and helping to get him all tucked in for feeding time. This is something we look forward to all day long! The nurses are starting to show us how to reposition Jack, but we are still too nervous to try!
Thanks everyone, have a good night!
Sunday, March 30, 2003
Day 25
Day 25
Jason held Jack today! He fell right asleep in his daddy’s arms.
Jack continued to get his regular feedings and is tolerating them well. His ventilator settings are about the same too.
He also had the ET tube taped replaced today. That wasn’t a pleasant feeling for him. We feel so bad for him when they have to do this, but it is important to keep the tape clean.
It’s amazing that it has been almost an entire month since Jack was born. In some aspects it seems like an eternity ago and in others it seems like just yesterday. We are just continuing to be grateful for the support Jack is getting from everybody and for the little successes he makes everyday.
Jason held Jack today! He fell right asleep in his daddy’s arms.
Jack continued to get his regular feedings and is tolerating them well. His ventilator settings are about the same too.
He also had the ET tube taped replaced today. That wasn’t a pleasant feeling for him. We feel so bad for him when they have to do this, but it is important to keep the tape clean.
It’s amazing that it has been almost an entire month since Jack was born. In some aspects it seems like an eternity ago and in others it seems like just yesterday. We are just continuing to be grateful for the support Jack is getting from everybody and for the little successes he makes everyday.
Saturday, March 29, 2003
Day 24
Day 24
We had a nice visit tonight with Jack. His nurse was very informative and gave us information on milestones for preemies. Some of which are graduating from the “Wee Pee” diapers into the bigger ones, which he has done, and getting off that ventilator.
He is doing a very good job breathing in between the ventilator. It is set for him to breath 27 times per minute and Jack is breathing 45 to 50 times. The doctors can’t give a clear time when he will get off the vent. They always tell us that each baby is unique, but as parents, we feel it will be fairly soon.
He continues to be very stable. Occasionally his oxygen level drops a bit but that is just a signal that the nurse needs to suction his ET tube. He is handling his feedings a lot better. He’s up to 18 ccs of the 24 calorie formula every three hours.
We are looking forward to seeing Jack tomorrow, even though we just got back!
We had a nice visit tonight with Jack. His nurse was very informative and gave us information on milestones for preemies. Some of which are graduating from the “Wee Pee” diapers into the bigger ones, which he has done, and getting off that ventilator.
He is doing a very good job breathing in between the ventilator. It is set for him to breath 27 times per minute and Jack is breathing 45 to 50 times. The doctors can’t give a clear time when he will get off the vent. They always tell us that each baby is unique, but as parents, we feel it will be fairly soon.
He continues to be very stable. Occasionally his oxygen level drops a bit but that is just a signal that the nurse needs to suction his ET tube. He is handling his feedings a lot better. He’s up to 18 ccs of the 24 calorie formula every three hours.
We are looking forward to seeing Jack tomorrow, even though we just got back!
Friday, March 28, 2003
Day 23
Day 23
Jack has such a personality already! Even though he sleeps A LOT, we can tell each time he’s going to open his eyes, or yawn or start to fuss or even if he’s just going to sit there and be cute. He’s coming along with his feedings and he seems to enjoy them very much! We are getting more comfortable with the medical staff and the procedures that it’s all becoming part of daily life. We’re also getting more comfortable handling Jack, that when he comes home without all the wires we won’t know what to do!
He is down a little bit more on his ventilator settings, and breathing even more on his own today then he was yesterday. This is such great progress for Jack!
We are looking forward to spending time together with Jack this weekend. Have a nice night everyone!
Jack has such a personality already! Even though he sleeps A LOT, we can tell each time he’s going to open his eyes, or yawn or start to fuss or even if he’s just going to sit there and be cute. He’s coming along with his feedings and he seems to enjoy them very much! We are getting more comfortable with the medical staff and the procedures that it’s all becoming part of daily life. We’re also getting more comfortable handling Jack, that when he comes home without all the wires we won’t know what to do!
He is down a little bit more on his ventilator settings, and breathing even more on his own today then he was yesterday. This is such great progress for Jack!
We are looking forward to spending time together with Jack this weekend. Have a nice night everyone!
Thursday, March 27, 2003
Day 22
Day 22
Angie got to hold Jack again today! We also took his temperature and changed his diaper. While he was being held it was time to feed him, so the nurse let me help give him his formula. He is up to 17ccs, which is a huge jump from the 1cc he was getting just a week ago. We think that he will not be getting too much more now because he is getting a formula that has a higher calorie content so it is not so much a matter of volume anymore.
Jack’s breathing is improving a little everyday. His oxygen is set at the same as room air, but he is set to take a breath only 30 times per minute. He was set at 40 yesterday. It means his lungs are working better and he is also taking more breaths on his own. Even though his vent is set at 30, he is actually taking about 45 breaths. 15 without assistance!
Angie got to hold Jack again today! We also took his temperature and changed his diaper. While he was being held it was time to feed him, so the nurse let me help give him his formula. He is up to 17ccs, which is a huge jump from the 1cc he was getting just a week ago. We think that he will not be getting too much more now because he is getting a formula that has a higher calorie content so it is not so much a matter of volume anymore.
Jack’s breathing is improving a little everyday. His oxygen is set at the same as room air, but he is set to take a breath only 30 times per minute. He was set at 40 yesterday. It means his lungs are working better and he is also taking more breaths on his own. Even though his vent is set at 30, he is actually taking about 45 breaths. 15 without assistance!
Wednesday, March 26, 2003
Day 21
Day 21
Happy, happy, birthday Jack! Three weeks old : )
We just returned from our evening visit with Jack. He was alert and awake when we first arrived, but after having his diaper changed, temperature taken, and getting fed his big 16cc dinner, he went right to sleep. We learned that Jack is now 2lb, 9oz and it seems to us he has definitely grown some!
Jack is totally off his IV nutrients and sugar water, so currently his only IV is the antibiotic, which he will remain on for a few more days just to be sure the infection is gone. They tested his blood today, and it was all clear of the bacteria – great news!
He is still right around 21% oxygen and his ventilator settings are lower. He is taking a few breaths on his own. We are just starting to get the gist of what all of the settings mean. We are certainly getting an education!
He is definitely more alert now that he is off the Phenobarbital and he has not had any seizures. This is wonderful news.
Have a great evening everyone!
Happy, happy, birthday Jack! Three weeks old : )
We just returned from our evening visit with Jack. He was alert and awake when we first arrived, but after having his diaper changed, temperature taken, and getting fed his big 16cc dinner, he went right to sleep. We learned that Jack is now 2lb, 9oz and it seems to us he has definitely grown some!
Jack is totally off his IV nutrients and sugar water, so currently his only IV is the antibiotic, which he will remain on for a few more days just to be sure the infection is gone. They tested his blood today, and it was all clear of the bacteria – great news!
He is still right around 21% oxygen and his ventilator settings are lower. He is taking a few breaths on his own. We are just starting to get the gist of what all of the settings mean. We are certainly getting an education!
He is definitely more alert now that he is off the Phenobarbital and he has not had any seizures. This is wonderful news.
Have a great evening everyone!
Tuesday, March 25, 2003
Day 20
Day 20
Jack is getting excited for his 3 week birthday tomorrow! He is really showing those doctors. I think he is doing so well because he is surrounded by all his furry friends in his isolette chanting him on.
He is developing quite an appetite as he is up to 15ccs of food every three hours. You can see his little tummy is full. We also changed his diaper again tonight. It seems that Jack always feels the necessity to pee at this time. We don’t care though…it’s cute!
Because Jack is always intubated, he needs to get periodically suctioned to clear the tube of fluid. They send the fluid to get tested for bacteria and yesterday a small amount was found. Today they tested his blood and found the same bacteria. Although infections can be serious, the doctors are not alarmed at the news. He started on antibiotics yesterday and they seem to be working. Jack is showing no signs of the infection like fever or respiratory problems. He’ll continue on the medicine till they no longer find the bacteria.
We found out even more good news tonight. Jack is totally off his Phenobarbital, the medicine to control his seizures. The docs really just want to know if the seizures will come back, but it has been almost 24 hours and there are no signs of them. We are very happy.
Throughout most of the day, Jack has been on only 21% oxygen, which is the same as room air. He is still on the ventilator because his lungs are not yet strong enough to get enough oxygen on their own, but he is on a lower ventilator setting.
Jack was also read, “If You Give a Pig a Pancake.” I think he liked it. I was also teaching him states and capitals…just kidding. His eyes were wide open tonight and it seemed like he was looking around. Elmo was kept away to avoid any confusion.
Make sure to wish Jack a happy three week birthday tomorrow!
Jack is getting excited for his 3 week birthday tomorrow! He is really showing those doctors. I think he is doing so well because he is surrounded by all his furry friends in his isolette chanting him on.
He is developing quite an appetite as he is up to 15ccs of food every three hours. You can see his little tummy is full. We also changed his diaper again tonight. It seems that Jack always feels the necessity to pee at this time. We don’t care though…it’s cute!
Because Jack is always intubated, he needs to get periodically suctioned to clear the tube of fluid. They send the fluid to get tested for bacteria and yesterday a small amount was found. Today they tested his blood and found the same bacteria. Although infections can be serious, the doctors are not alarmed at the news. He started on antibiotics yesterday and they seem to be working. Jack is showing no signs of the infection like fever or respiratory problems. He’ll continue on the medicine till they no longer find the bacteria.
We found out even more good news tonight. Jack is totally off his Phenobarbital, the medicine to control his seizures. The docs really just want to know if the seizures will come back, but it has been almost 24 hours and there are no signs of them. We are very happy.
Throughout most of the day, Jack has been on only 21% oxygen, which is the same as room air. He is still on the ventilator because his lungs are not yet strong enough to get enough oxygen on their own, but he is on a lower ventilator setting.
Jack was also read, “If You Give a Pig a Pancake.” I think he liked it. I was also teaching him states and capitals…just kidding. His eyes were wide open tonight and it seemed like he was looking around. Elmo was kept away to avoid any confusion.
Make sure to wish Jack a happy three week birthday tomorrow!
Monday, March 24, 2003
Day 19
Day 19
We had a very special evening with Jack. We spent a lot of time telling him all about our day and telling him how much everyone loves him. I got to take his temperature and change his diaper and the little guy didn’t even wait for me to get the new diaper on, if you know what I mean! He was moving his arms and kicking his legs so hard, but after he was done with his care session, he settled right back to sleep. Jason even hummed a few tunes to him. He looked so comfortable and warm in his bed when we left him.
Jack’s Doctor was very pleased that his oxygen settings were down to 21% (room air) for a long stretch this afternoon. She was also pleased that they will soon be able to take him off his IV nutrients and have him depend only on formula for his nutrition. He has no problems taking his feedings. He’ll soon be ready for Grandma Josie’s Sunday dinners!
We had a very special evening with Jack. We spent a lot of time telling him all about our day and telling him how much everyone loves him. I got to take his temperature and change his diaper and the little guy didn’t even wait for me to get the new diaper on, if you know what I mean! He was moving his arms and kicking his legs so hard, but after he was done with his care session, he settled right back to sleep. Jason even hummed a few tunes to him. He looked so comfortable and warm in his bed when we left him.
Jack’s Doctor was very pleased that his oxygen settings were down to 21% (room air) for a long stretch this afternoon. She was also pleased that they will soon be able to take him off his IV nutrients and have him depend only on formula for his nutrition. He has no problems taking his feedings. He’ll soon be ready for Grandma Josie’s Sunday dinners!
Day 19
Day 19
Just called in to Jack’s nurse (one of our favorites!) and she said Jack is now getting 10ccs of food and will be getting 11ccs by the end of the night! He is on 25% oxygen at the moment (which is very good) and he is getting some antibiotics to help fight some germs they saw on a culture last night, nothing too serious.
She said he wasn’t having any problems and that he was behaving himself for her this afternoon. Good boy Jack! We will be in later this evening to visit.
Just called in to Jack’s nurse (one of our favorites!) and she said Jack is now getting 10ccs of food and will be getting 11ccs by the end of the night! He is on 25% oxygen at the moment (which is very good) and he is getting some antibiotics to help fight some germs they saw on a culture last night, nothing too serious.
She said he wasn’t having any problems and that he was behaving himself for her this afternoon. Good boy Jack! We will be in later this evening to visit.
Sunday, March 23, 2003
Day 18
day 18
Jack had on pajamas today! We were delighted when we got first glance of him and he wasn’t down to his diaper anymore. He was dressed in the tiniest outfit that we ever saw. It was basically a shirt that covered his entire body and Velcroed in the front. Sorry, but we didn’t get a picture because we forgot the camera. :(
Today was a monumental day for another reason… Angie got to hold Jack for the first time! We were both with Jack like we normally are and the nurse asked her if we ever got to hold him. We thought that she meant putting our arms in the windows on the side of the incubator and laying our hands on him so we said yes. Then she said, “No. No. I mean…did you ever get to really hold him?” We were like, “Can we really?” and she said yes.
So, it took a little maneuvering and some teamwork to get all the monitoring wires, IVs and ventilator lines in order so the nurse could gently pick Jack up and put him in Angie’s arms. The nurse was very helpful and also snapped a Polaroid. Jack was able to be held for about 15 minutes and then he had to go back to his bed. It was a great bonding experience and the smile is still on Angie’s face.
He’ll also be up to 9ccs of formula by the end of the night. The doctor said that he was handling his food very well and that he will continue to get increasing amounts.
Goodnight everybody!
Jack had on pajamas today! We were delighted when we got first glance of him and he wasn’t down to his diaper anymore. He was dressed in the tiniest outfit that we ever saw. It was basically a shirt that covered his entire body and Velcroed in the front. Sorry, but we didn’t get a picture because we forgot the camera. :(
Today was a monumental day for another reason… Angie got to hold Jack for the first time! We were both with Jack like we normally are and the nurse asked her if we ever got to hold him. We thought that she meant putting our arms in the windows on the side of the incubator and laying our hands on him so we said yes. Then she said, “No. No. I mean…did you ever get to really hold him?” We were like, “Can we really?” and she said yes.
So, it took a little maneuvering and some teamwork to get all the monitoring wires, IVs and ventilator lines in order so the nurse could gently pick Jack up and put him in Angie’s arms. The nurse was very helpful and also snapped a Polaroid. Jack was able to be held for about 15 minutes and then he had to go back to his bed. It was a great bonding experience and the smile is still on Angie’s face.
He’ll also be up to 9ccs of formula by the end of the night. The doctor said that he was handling his food very well and that he will continue to get increasing amounts.
Goodnight everybody!
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