Wednesday, April 30, 2003

Day 56

Day 56

Jack is doing very well recovering from his surgery. He is still a bit uncomfortable and suffers from occasionally bouts of oxygen desaturation, but it far less frequent than yesterday. He did have to be put back on CPAP because his blood gases came back showing that his CO2 was a bit high. This is only temporary and he should be off the CPAP tomorrow. In fact, he was put back on nasal cannula so we could hold him. He likes that a lot more.

His neurosurgeon said that his shunt seems to be doing its job. His fontanel (soft spot on his head) is a bit full, but his shunt may take a couple of days to work properly. Finding the right valve for the shunt can be tricky because it is a pressure release valve. If it is too sensitive to pressure, then too much cerebral spinal fluid can pass into his abdomen. If it isn’t sensitive enough then not enough fluid will pass leading to too much pressure. He had a few X-rays today to see if there were any problems and there were not. When we left the NICU tonight his fontanel seemed to be less swollen. His nurse will keep track of that tonight and tomorrow morning the surgeons will come back and check it.

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