Wednesday, June 23, 2004
EEG/Seizure update...Ahh, finally I spoke to someone willing to give me peace of mind (for now anyway) they DO NOT want to wait until August. They are in the process of scheduling an appointment ASAP. This is good news. The sooner we see a neurologist the sooner we'll know what we're dealing with. They are going to let me know by the end of the week. Thanks to my family and friends for listening to me the last few weeks. I honestly don't know what I'd do without all of you. THANKS!
Tuesday, June 22, 2004
Well I am no further with any more knowledge than yesterday. I am so frustrated right now!! The EEG office (neurophysiology) says since Jack's never been seen by the actual neurology department they are NOT ALLOWED to release information to me. They said I should talk to his ped's office as the ball is in their court right now as far as getting him in sooner than August for a neuro appointment. AARRRGGGHHH!! Time for the next round of phone calls! Tomorrow is another day!!! Jack is fine -- no seizure activity since that very first time several weeks ago. He's been fine ever since which is why I think the abnormal results were such a shock! On a much lighter note, Jack has become quite the little swimmer! He loooves the water so much. He has a small innertube and when he's in it he swims across the pool all on his own (with mommy inches away of course). He cries when it's time to get out of the pool. I need to remember to bring my camera so I can get some pictures posted of our little fishy! Thanks for your thoughts the past few weeks -- they mean a lot!
Well our results are back and it's not good. Jack is showing seizure activity...the nurse at his ped's office didn't say much and the office where he got the EEG is closed for the evening. She said we'll more than likely see a neuro sooner than August. I am shocked. I didn't think it would be abnormal. I don't know why but it was just a feeling I had. And to think I had to FIGHT for him to have the test in the first place!!!!! I asked the nurse if Jack was in any danger and she said no, but if he were to have a seizure to take him to the medical center. Please, please keep us in your thoughts.
Thank you all very much for your support. I am sitting by the phone this morning waiting on a return call from the Neurophysiology department...hopefully they will be able to explain the results much better than the nurse from our ped's office.
I have a book that has an entire chapter related to seizures. From what I read it sounds like medication can definitely control seizures, change in diet or no intervention at all. I have my ever ready list of questions -- hopefully they will call back soon.
Thank you all very much for your support. I am sitting by the phone this morning waiting on a return call from the Neurophysiology department...hopefully they will be able to explain the results much better than the nurse from our ped's office.
I have a book that has an entire chapter related to seizures. From what I read it sounds like medication can definitely control seizures, change in diet or no intervention at all. I have my ever ready list of questions -- hopefully they will call back soon.
Tuesday, June 15, 2004
Jack had his EEG today and well, we won't know the results for a WEEK!! and the technician wouldn't tell me if she noticed anything 'odd' so we're in for one of those nail biting weeks.
Jack HATED the test -- it was painless but he hates being held down -- which I had to be the meanie to hold him tight to the table :( Although I wouldn't have wanted anyone else doing it -- I feel like he hated me because I was doing this 'awful' thing to him! The glue they used smelled like gasoline! They put many little probes all over his head, neck and chest...it lasted about 30 minutes and then they 'oiled' up his head to remove the probes. He screamed the entire time :( I felt so sorry for him! He's usually such an easy going kiddo!
I am hoping for good results -- please keep us in your thoughts this week. I must run, the man NEEDS a BATH!!!! Will post another update soon!
Jack HATED the test -- it was painless but he hates being held down -- which I had to be the meanie to hold him tight to the table :( Although I wouldn't have wanted anyone else doing it -- I feel like he hated me because I was doing this 'awful' thing to him! The glue they used smelled like gasoline! They put many little probes all over his head, neck and chest...it lasted about 30 minutes and then they 'oiled' up his head to remove the probes. He screamed the entire time :( I felt so sorry for him! He's usually such an easy going kiddo!
I am hoping for good results -- please keep us in your thoughts this week. I must run, the man NEEDS a BATH!!!! Will post another update soon!
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