I temporarily, royally messed up Jack's Blog!!! I was in total panic mode. The only thing I could not recover were my links on the right hand side, but those are easy to add!
Thank goodness everything's working again -- I would have stayed up all night trying to fix it! So if anyone caught my BIG oops -- sorry! We're up and running again!
Thursday, June 29, 2006
Wednesday, June 28, 2006
Tuesday, June 27, 2006
Video Poll...
***Thanks everyone for voting...I have decided to do a video album that works a lot like the photo albums! I am getting rid of the poll now :) ***
Please take a moment to vote in the Video Poll over on the right hand side of the screen. If you can't view the videos please comment here to let me know which ones aren't working!
(You will need Quicktime installed to view the videos)
View Jack's Videos
THANK YOU!!!
Please take a moment to vote in the Video Poll over on the right hand side of the screen. If you can't view the videos please comment here to let me know which ones aren't working!
(You will need Quicktime installed to view the videos)
View Jack's Videos
THANK YOU!!!
Wednesday, June 21, 2006
Jack's Medical Information
I’ve been wanting to do this for quite some time...for those interested in the medical side of things.
We currently see a developmental pediatrician, neurologist, neurosurgeon, orthopedic surgeon, Dr. of physical medicine, peds ophthalmologist, feeding clinic, cerebral palsy clinic, physical therapist, speech therapist, occupational therapist, and vision therapist.
Jack wears bilateral DAFO’s, a joe cool splint, an eye patch, a resting hand splint, and knee immobilizers. Just not all at once...LOL! He uses a reverse Kaye walker and is becoming independent with it. He is still learning how to get himself into the walker.
Jack has what’s called spastic tone and low tone. He also has dynamic tone as well. His right arm and both legs have a great deal of spasticity — which have lead his doctors to diagnose him with Triplegic Cerebral Palsy. His low tone is apparent in his trunk and his high (spastic) tone is apparent in his legs and right arm. He’s received Botox injections which has helped quite a bit. He’s also taking oral Baclofen which is a muscle relaxant. He’s currently taking 17 mg daily.
To say Jack’s been through a lot is an understatement. When researching to write this post it brought back a lot of memories and I realize just how much he’s had to go through. He’s an amazing kid. If you have any questions at all, please ask!
Ongoing Issues:
Developmental Delay -- A developmental delay occurs when your child has the delayed achievement of one or more of his milestones. This may affect your child's speech and language, his fine and gross motor skills, and/or his personal and social skills. Read more...
Spastic Triplegia Cerebral Palsy -- Cerebral palsy (CP) is a term used to describe a group of disorders effecting body movement and muscle co-ordination. The medical definition of CP is "a non-progressive but not unchanging disorder of movement and/or posture, due to an insult or anomaly of the developing brain." Read more...
Dyspraxia -- People with dyspraxia often find it very difficult to learn physical movements and adapt them to different situations, even when the movements are learnt, they are often executed without confidence or coordination. The motor difficulties experienced by people with dyspraxia are not a result of physical deficits. Dyspraxia, like many developmental disorders, is neurological in origin, that is, it has its basis in the brain. The brain is a network of neural connections that allow us to process the information we receive. Dyspraxia is a result of weak or disorganized connections in the brain, which then translates to trouble with motor coordination. Read more...
Hydrocephalus (VP Shunt) -- Hydrocephalus is a condition in which excess fluid builds up in your brain. The word "hydrocephalus" comes from the roots "hydro" meaning "water" and "cephalus" meaning "head." The fluid that accumulates is cerebrospinal fluid (CSF), a fluid that normally surrounds your brain and spinal cord. In hydrocephalus too much fluid builds up, causing abnormal enlargement of the cavities in the brain (ventricles) that contain CSF. Too much CSF in the ventricles can put increased pressure on the brain, potentially damaging the brain. Read more...
Partial Focal Seizures -- A partial seizure is an episode of abnormal activity in a localized (specific) part of the brain which causes changes in attention, movement, and/or behavior. Read more...
Generalized Seizures -- Generalized tonic-clonic seizures (also called grand mal seizures) are the type of seizure that most people associate with the term "seizure," convulsion, or epilepsy . They may occur in people of any age, as a single episode or as a repeated, chronic condition (epilepsy). The majority of seizures that do occur as just a single episode are generalized tonic-clonic seizures rather than other types. Read more...
Hypoplasia of the Corups Callosum (Partial Agenensis) -- Agenesis of the corpus callosum (ACC) is a birth defect in which the structure that connects the two hemispheres of the brain (the corpus callosum) is partially or completely absent. Read more...
Cortical Visual Impairment -- Cortical Visual Impairment (CVI) is a temporary or permanent visual impairment caused by the disturbance of the posterior visual pathways and/or the occipital lobes of the brain. The degree of vision impairment can range from severe visual impairment to total blindness. Read more...
Amblyopia/Strabismus -- Strabismus is misalignment of the eyes. One eye may look straight ahead, while the other turns inward, outward, upward or downward. Although the problem appears to be improperly coordinated eye muscles, it is sometimes accompanied by vision loss. Amblyopia is reduced vision in one or both eyes as a consequence of failure to develop normal sight in early childhood. Amblyopia can result from a number of underlying abnormalities, including strabismus and focusing abnormalities. Read more...
Optic Nerve Atrophy -- Optic Nerve Atrophy (ONA) is a permanent visual impairment caused by damage to the optic nerve. The optic nerve functions like a cable carrying information from the eye to be processed by the brain. The optic nerve is comprised of over a million small nerve fibers (axons). When some of these nerve fibers are damaged through disease, the brain doesn't receive complete vision information and sight becomes blurred. Read more...
Apraxia -- Childhood apraxia of speech (CAS, also known as DVD -- developmental verbal dyspraxia, and DAS -- developmental apraxia of speech) is a disorder that is more easily defined by what it is not. It is not a muscle disorder. It is not a cognitive disorder (although it may have some impact on language as well as speech). The problem occurs when the brain tries to tell the muscles what to do -- somehow that message gets scrambled. It's like trying to watch cable t.v. stations without the right descrambler. There is nothing wrong with the t.v. station, and nothing wrong with your set. It's just that your set can't read the signal that the station is sending out. Read more...
Dysarthria -- Dysarthria is a speech disorder that is due to a weakness or incoordination of the speech muscles. Speech is slow, weak, imprecise or uncoordinated. It can affect both children and adults. "Childhood dysarthria" can be congenital or acquired. It is often a symptom of a disease, such as cerebral palsy, Duchenne muscular dystrophy, myotonic dystrophy, Bell palsy. In both adults and children, it can result from head injury. Read more...
Dysphagia -- People with dysphagia have difficulty swallowing and may also experience pain while swallowing. Some people may be completely unable to swallow or may have trouble swallowing liquids, foods, or saliva. Eating then becomes a challenge. Often, dysphagia makes it difficult to take in enough calories and fluids to nourish the body. Read more...
NICU/Neonatal Issues:
Extreme Prematurity/Micro Preemie — Jack was born at 25 weeks gestation (3 and 3/4ths months early), weighing 2 lbs.
Jaundice/Hyperbilirubinemia -- "Hyper" means high; "emia" means in the blood. Hyperbilirubinemia is a high level of bilirubin in the blood. Jaundice is the yellow color to the skin that is often seen in the first few days after birth. The yellow color is due to bilirubin. Read more...
Grade 4 intraventricular hemorrhage (IVH) -- Intraventricular hemorrhage means bleeding into the normal fluid spaces (ventricles) within the brain. IVH is also used to refer to bleeding in areas near the ventricles even if the blood is not within them. Read more...
Periventricular Leukomalacia (PVL) -- "Peri" means near; "ventricular" refers to the ventricles or fluid spaces of the brain, "leukomalacia" is softening of the white matter of the brain. Periventricular leukomalacia is softening of the brain near the ventricles. The softening occurs because brain tissue in this area has died. Read more...
Retinopathy of Prematurity -- Retinopathy of Prematurity (ROP) is an eye disorder affecting premature infants. This disorder was called Retrolental Fibroplasia in the past. ROP affects immature blood vessels of the retina. It occurs weeks after birth. Once development of blood vessels is complete, a child is no longer a candidate for this disorder. Read more...
Patent Ductus Arteriosus -- Patent mean "open". The ductus arteriosus is a blood vessel connecting the main vessel leading to the lungs (pulmonary artery) to the main vessel of the body (aorta). Read more...
Respiratory Distress Syndrome -- Respiratory Distress Syndrome (RDS) is the most common lung disease of premature infants. RDS occurs in babies with incomplete lung development. The more premature the infant, the greater likelihood of RDS. RDS is due to insufficient surfactant in the lungs. Surfactant is a material normally produced by the lung that spreads like a film over the tiny air sacs allowing them to stay open. Open air sacs are essential for oxygen to enter the blood from the lung and for carbon dioxide to be released from the blood into the lung for exhalation. Read more...
Bronchopulmonary Dysplasia-- BPD is a reaction of the premature lung to its disease and to the oxygen and mechanical ventilation that were needed to treat the infants lung disease. Occasionally very premature infants get BPD even if they did not need mechanical ventilation or much extra oxygen after birth. Read more...
Pneumothorax -- where the air is trapped inside the chest between the chest wall and the lung, causing the lung to collapse. Read more...
Apnea and Bradycardia -- Apnea is a pause in breathing that has one or more of the following characteristics: lasts more than 15-20 seconds, is associated with the baby's color changing to pale, purplish or blue, is associated with bradycardia or a slowing of the heart rate. Bradycardia is a slowing of the heart rate, usually to less than 80 beats per minute for a premature baby. Bradycardia often follows apnea or periods of very shallow breathing. Sometimes it is due to a reflex, especially with the placing of a feeding tube or when the baby is trying to have a stool. Read more...
Anemia (requiring many blood transfusions) -- Anemia is having too few red blood cells. Red blood cells carry oxygen to the body. Read more...
Inguinal Hernia (Repaired Surgically) -- An inguinal hernia develops in the groin at the level of the skin crease between the leg and the abdomen. In a baby boy the bowel loop protrudes into the scrotum. An umbilical hernia develops after the cord comes off and is an outpouching where the cord used to be. Hernias are usually not present when the baby is born but develop later. Read more...
Reflux (Reglan and Zantac) -- Normally the muscles of the food pipe propel the food or liquid down to the stomach by a series of squeezes. Once in the stomach, the food or drink is mixed with acid to start digestion. When this mixing occurs, the mucles at the lower end of the esophagus should become tight keeping the food from backing up. In premature infants and some term infants these mucles are not yet fully developed and coordinated. They sometimes relax when they should be squeezing. This allows the liquid to come back up again. Read more...
TPN/NG Tube/Feeding Difficulty -- With TPN, protein, fat, sugar, vitamins and minerals are added to the fluids that the baby receives by vein. Your baby can receive complete nutrition and grow on TPN alone. As your baby tolerates other feedings, the TPN will be decreased. Your baby may be started on tube feedings. A tube is passed through the mouth or the nose into your baby's stomach. Milk is put through the tube. This may be as a constant slow drip, called continuous infusion or drip feeds, or as prescribed amounts given every few hours, called gavage feeding. Either way, the amounts will be very small at first and gradually increase. There is often a transition period between TPN and tube feedings where the amount of nutrition from TPN slowly decreases as the amount from tube feeding increases. Read more...
Weaned from home oxygen 1/8 liter @ 100% and apnea monitor.
We currently see a developmental pediatrician, neurologist, neurosurgeon, orthopedic surgeon, Dr. of physical medicine, peds ophthalmologist, feeding clinic, cerebral palsy clinic, physical therapist, speech therapist, occupational therapist, and vision therapist.
Jack wears bilateral DAFO’s, a joe cool splint, an eye patch, a resting hand splint, and knee immobilizers. Just not all at once...LOL! He uses a reverse Kaye walker and is becoming independent with it. He is still learning how to get himself into the walker.
Jack has what’s called spastic tone and low tone. He also has dynamic tone as well. His right arm and both legs have a great deal of spasticity — which have lead his doctors to diagnose him with Triplegic Cerebral Palsy. His low tone is apparent in his trunk and his high (spastic) tone is apparent in his legs and right arm. He’s received Botox injections which has helped quite a bit. He’s also taking oral Baclofen which is a muscle relaxant. He’s currently taking 17 mg daily.
To say Jack’s been through a lot is an understatement. When researching to write this post it brought back a lot of memories and I realize just how much he’s had to go through. He’s an amazing kid. If you have any questions at all, please ask!
Ongoing Issues:
Developmental Delay -- A developmental delay occurs when your child has the delayed achievement of one or more of his milestones. This may affect your child's speech and language, his fine and gross motor skills, and/or his personal and social skills. Read more...
Spastic Triplegia Cerebral Palsy -- Cerebral palsy (CP) is a term used to describe a group of disorders effecting body movement and muscle co-ordination. The medical definition of CP is "a non-progressive but not unchanging disorder of movement and/or posture, due to an insult or anomaly of the developing brain." Read more...
Dyspraxia -- People with dyspraxia often find it very difficult to learn physical movements and adapt them to different situations, even when the movements are learnt, they are often executed without confidence or coordination. The motor difficulties experienced by people with dyspraxia are not a result of physical deficits. Dyspraxia, like many developmental disorders, is neurological in origin, that is, it has its basis in the brain. The brain is a network of neural connections that allow us to process the information we receive. Dyspraxia is a result of weak or disorganized connections in the brain, which then translates to trouble with motor coordination. Read more...
Hydrocephalus (VP Shunt) -- Hydrocephalus is a condition in which excess fluid builds up in your brain. The word "hydrocephalus" comes from the roots "hydro" meaning "water" and "cephalus" meaning "head." The fluid that accumulates is cerebrospinal fluid (CSF), a fluid that normally surrounds your brain and spinal cord. In hydrocephalus too much fluid builds up, causing abnormal enlargement of the cavities in the brain (ventricles) that contain CSF. Too much CSF in the ventricles can put increased pressure on the brain, potentially damaging the brain. Read more...
Partial Focal Seizures -- A partial seizure is an episode of abnormal activity in a localized (specific) part of the brain which causes changes in attention, movement, and/or behavior. Read more...
Generalized Seizures -- Generalized tonic-clonic seizures (also called grand mal seizures) are the type of seizure that most people associate with the term "seizure," convulsion, or epilepsy . They may occur in people of any age, as a single episode or as a repeated, chronic condition (epilepsy). The majority of seizures that do occur as just a single episode are generalized tonic-clonic seizures rather than other types. Read more...
Hypoplasia of the Corups Callosum (Partial Agenensis) -- Agenesis of the corpus callosum (ACC) is a birth defect in which the structure that connects the two hemispheres of the brain (the corpus callosum) is partially or completely absent. Read more...
Cortical Visual Impairment -- Cortical Visual Impairment (CVI) is a temporary or permanent visual impairment caused by the disturbance of the posterior visual pathways and/or the occipital lobes of the brain. The degree of vision impairment can range from severe visual impairment to total blindness. Read more...
Amblyopia/Strabismus -- Strabismus is misalignment of the eyes. One eye may look straight ahead, while the other turns inward, outward, upward or downward. Although the problem appears to be improperly coordinated eye muscles, it is sometimes accompanied by vision loss. Amblyopia is reduced vision in one or both eyes as a consequence of failure to develop normal sight in early childhood. Amblyopia can result from a number of underlying abnormalities, including strabismus and focusing abnormalities. Read more...
Optic Nerve Atrophy -- Optic Nerve Atrophy (ONA) is a permanent visual impairment caused by damage to the optic nerve. The optic nerve functions like a cable carrying information from the eye to be processed by the brain. The optic nerve is comprised of over a million small nerve fibers (axons). When some of these nerve fibers are damaged through disease, the brain doesn't receive complete vision information and sight becomes blurred. Read more...
Apraxia -- Childhood apraxia of speech (CAS, also known as DVD -- developmental verbal dyspraxia, and DAS -- developmental apraxia of speech) is a disorder that is more easily defined by what it is not. It is not a muscle disorder. It is not a cognitive disorder (although it may have some impact on language as well as speech). The problem occurs when the brain tries to tell the muscles what to do -- somehow that message gets scrambled. It's like trying to watch cable t.v. stations without the right descrambler. There is nothing wrong with the t.v. station, and nothing wrong with your set. It's just that your set can't read the signal that the station is sending out. Read more...
Dysarthria -- Dysarthria is a speech disorder that is due to a weakness or incoordination of the speech muscles. Speech is slow, weak, imprecise or uncoordinated. It can affect both children and adults. "Childhood dysarthria" can be congenital or acquired. It is often a symptom of a disease, such as cerebral palsy, Duchenne muscular dystrophy, myotonic dystrophy, Bell palsy. In both adults and children, it can result from head injury. Read more...
Dysphagia -- People with dysphagia have difficulty swallowing and may also experience pain while swallowing. Some people may be completely unable to swallow or may have trouble swallowing liquids, foods, or saliva. Eating then becomes a challenge. Often, dysphagia makes it difficult to take in enough calories and fluids to nourish the body. Read more...
NICU/Neonatal Issues:
Extreme Prematurity/Micro Preemie — Jack was born at 25 weeks gestation (3 and 3/4ths months early), weighing 2 lbs.
Jaundice/Hyperbilirubinemia -- "Hyper" means high; "emia" means in the blood. Hyperbilirubinemia is a high level of bilirubin in the blood. Jaundice is the yellow color to the skin that is often seen in the first few days after birth. The yellow color is due to bilirubin. Read more...
Grade 4 intraventricular hemorrhage (IVH) -- Intraventricular hemorrhage means bleeding into the normal fluid spaces (ventricles) within the brain. IVH is also used to refer to bleeding in areas near the ventricles even if the blood is not within them. Read more...
Periventricular Leukomalacia (PVL) -- "Peri" means near; "ventricular" refers to the ventricles or fluid spaces of the brain, "leukomalacia" is softening of the white matter of the brain. Periventricular leukomalacia is softening of the brain near the ventricles. The softening occurs because brain tissue in this area has died. Read more...
Retinopathy of Prematurity -- Retinopathy of Prematurity (ROP) is an eye disorder affecting premature infants. This disorder was called Retrolental Fibroplasia in the past. ROP affects immature blood vessels of the retina. It occurs weeks after birth. Once development of blood vessels is complete, a child is no longer a candidate for this disorder. Read more...
Patent Ductus Arteriosus -- Patent mean "open". The ductus arteriosus is a blood vessel connecting the main vessel leading to the lungs (pulmonary artery) to the main vessel of the body (aorta). Read more...
Respiratory Distress Syndrome -- Respiratory Distress Syndrome (RDS) is the most common lung disease of premature infants. RDS occurs in babies with incomplete lung development. The more premature the infant, the greater likelihood of RDS. RDS is due to insufficient surfactant in the lungs. Surfactant is a material normally produced by the lung that spreads like a film over the tiny air sacs allowing them to stay open. Open air sacs are essential for oxygen to enter the blood from the lung and for carbon dioxide to be released from the blood into the lung for exhalation. Read more...
Bronchopulmonary Dysplasia-- BPD is a reaction of the premature lung to its disease and to the oxygen and mechanical ventilation that were needed to treat the infants lung disease. Occasionally very premature infants get BPD even if they did not need mechanical ventilation or much extra oxygen after birth. Read more...
Pneumothorax -- where the air is trapped inside the chest between the chest wall and the lung, causing the lung to collapse. Read more...
Apnea and Bradycardia -- Apnea is a pause in breathing that has one or more of the following characteristics: lasts more than 15-20 seconds, is associated with the baby's color changing to pale, purplish or blue, is associated with bradycardia or a slowing of the heart rate. Bradycardia is a slowing of the heart rate, usually to less than 80 beats per minute for a premature baby. Bradycardia often follows apnea or periods of very shallow breathing. Sometimes it is due to a reflex, especially with the placing of a feeding tube or when the baby is trying to have a stool. Read more...
Anemia (requiring many blood transfusions) -- Anemia is having too few red blood cells. Red blood cells carry oxygen to the body. Read more...
Inguinal Hernia (Repaired Surgically) -- An inguinal hernia develops in the groin at the level of the skin crease between the leg and the abdomen. In a baby boy the bowel loop protrudes into the scrotum. An umbilical hernia develops after the cord comes off and is an outpouching where the cord used to be. Hernias are usually not present when the baby is born but develop later. Read more...
Reflux (Reglan and Zantac) -- Normally the muscles of the food pipe propel the food or liquid down to the stomach by a series of squeezes. Once in the stomach, the food or drink is mixed with acid to start digestion. When this mixing occurs, the mucles at the lower end of the esophagus should become tight keeping the food from backing up. In premature infants and some term infants these mucles are not yet fully developed and coordinated. They sometimes relax when they should be squeezing. This allows the liquid to come back up again. Read more...
TPN/NG Tube/Feeding Difficulty -- With TPN, protein, fat, sugar, vitamins and minerals are added to the fluids that the baby receives by vein. Your baby can receive complete nutrition and grow on TPN alone. As your baby tolerates other feedings, the TPN will be decreased. Your baby may be started on tube feedings. A tube is passed through the mouth or the nose into your baby's stomach. Milk is put through the tube. This may be as a constant slow drip, called continuous infusion or drip feeds, or as prescribed amounts given every few hours, called gavage feeding. Either way, the amounts will be very small at first and gradually increase. There is often a transition period between TPN and tube feedings where the amount of nutrition from TPN slowly decreases as the amount from tube feeding increases. Read more...
Weaned from home oxygen 1/8 liter @ 100% and apnea monitor.
Tuesday, June 20, 2006
A 'Free' Week....
Jack is getting better but still has a lingering cough and runny nose. The school is on vacation this week and I just got off the phone with the Med Center's therapy services. I cleared our calendar for the entire week. I feel torn, but I know this is best for Jack. I want him to fully recover and not end up getting sick again. -- here's to a full recovery and nothing to do this week!
Thursday, June 15, 2006
Update on Mr. Jack
Jack's been out of school all week and although his fever's all but gone this afternoon he's still coughing and stuffy. I am not sure at this point it's anything more than a viral cold. So we're not going back to the dr. yet.
Right now he's in his room listening to Macaday Kids 100 Silly Songs and dancing and smiling. So I'd say he's not exactly down and out.
Oh, wow, I spoke TOO SOON. As I was typing this update Jack started wailing...and when I went to him he asked me "uppa" which means pick me up. When I did he felt really warm -- so I gave him some medicine and rocked him a little and off to sleep he went. I changed my mind! I am taking him back to Priority Care when he wakes up. I just want to be on the safe side -- if it turns out to still be a viral thing that's great! But if he does have an infection he needs antibiotics. So I must hop in the shower and get ready to go.
I'll post an update when we get back!
(of all weeks for his pediatrician to be on vacation!!!! ugh...)
UPDATED:
We're back! Jack didn't have anything that jumped out at the Dr. His left ear was red...and his nodes and glands were swollen. He put him on a 5 day antibiotic and also did a strep test. Jack developed a rash on his chest which resembled the strep rash -- so in any case he put him on meds. We'll find out about the strep test tomorrow.
Thanks
-- I will keep you posted!
Right now he's in his room listening to Macaday Kids 100 Silly Songs and dancing and smiling. So I'd say he's not exactly down and out.
Oh, wow, I spoke TOO SOON. As I was typing this update Jack started wailing...and when I went to him he asked me "uppa" which means pick me up. When I did he felt really warm -- so I gave him some medicine and rocked him a little and off to sleep he went. I changed my mind! I am taking him back to Priority Care when he wakes up. I just want to be on the safe side -- if it turns out to still be a viral thing that's great! But if he does have an infection he needs antibiotics. So I must hop in the shower and get ready to go.
I'll post an update when we get back!
(of all weeks for his pediatrician to be on vacation!!!! ugh...)
UPDATED:
We're back! Jack didn't have anything that jumped out at the Dr. His left ear was red...and his nodes and glands were swollen. He put him on a 5 day antibiotic and also did a strep test. Jack developed a rash on his chest which resembled the strep rash -- so in any case he put him on meds. We'll find out about the strep test tomorrow.
Thanks
-- I will keep you posted!
Wednesday, June 14, 2006
icky sicky...
On Monday Jack got sent hom from school with a fever. That was a terrible phone call to get! I saw the caller ID and nearly had a heart attack -- then when they said Jack was sleeping and he had a fever of 101 (under the arm) I was practially in my car already! The teachers really took action though so I am glad. When I went to pick him up he looked AWFUL! I called the pediatrician's office and she was on vacation so we went over to Priority Care.
The clinic was empty - -thank goodness! The nurse and Dr. were sooo nice and they appreciated the fact that I brought a print out of his medical history (and they seemed confused too almost like that never happened to them before...
)
Jack looked clear (chest, nose, ears and throat) , but it was only the first few hours of the fever.
He's had fevers before but he was so very lethargic when I picked him up from school that it worried me. He was out of it and at one point scared me because he seemed unresponsive...but he "came to" and looked very annoyed that I was yelling in his face! Then when we got home and it read 102.7 I knew we were going SOMEWHERE. lol.
They gave him a dose of Motrin at the clinic and said to call the ped on call if he's still so down and out after the meds kick in...and of course to keep him hydrated. He's been sleeping on and off since Monday.
I did give him a dose of Tylenol after the Motrin and he's hanging out at 100 now...he slept most of the afternoon and ate some peanut butter crackers and drank warm sprite (it was one of the few times I saw his face light up when I told him he could have SODA!) I know it's not the best for hydration but I knew he would drink it and he's since had a nice wet diaper 
He started coughing at dinner last night -- I am thinking it's heading that way
...
There were two other kiddos sleeping at Jack's school (all three of them nodded off during story time. I am wondering what on earth the teacher was reading today)i...so I am sure it's something that's going around at school. I do plan on asking when I call today!
He was up most of the night coughing some and with a very high temp...after alternating Motrin and Tylenol it came down but this morning it went up to 103.8! I gave him meds and a luke warm bath. Each time the meds kick in it's coming down to about 100-101. If he's still coughing/runny nose tomorrow we'll be heading back in to make sure he doesn't need an antibiotic.
we BOTH took a long nap this afternoon...and I've just ordered pizza for dinner. I am one tired mommy today.
Thanks for thinking of us -- I will keep you posted!
We had another long night -- but his temp was down!!! It hasn't gone past 99 yet this morning either. He has a runny nose with post nasal coughing....but he's sooo much more himself today!! He's even chomping on some lucky charms as I type this
The clinic was empty - -thank goodness! The nurse and Dr. were sooo nice and they appreciated the fact that I brought a print out of his medical history (and they seemed confused too almost like that never happened to them before...
)Jack looked clear (chest, nose, ears and throat) , but it was only the first few hours of the fever.
He's had fevers before but he was so very lethargic when I picked him up from school that it worried me. He was out of it and at one point scared me because he seemed unresponsive...but he "came to" and looked very annoyed that I was yelling in his face! Then when we got home and it read 102.7 I knew we were going SOMEWHERE. lol.
They gave him a dose of Motrin at the clinic and said to call the ped on call if he's still so down and out after the meds kick in...and of course to keep him hydrated. He's been sleeping on and off since Monday.
I did give him a dose of Tylenol after the Motrin and he's hanging out at 100 now...he slept most of the afternoon and ate some peanut butter crackers and drank warm sprite (it was one of the few times I saw his face light up when I told him he could have SODA!
) I know it's not the best for hydration but I knew he would drink it and he's since had a nice wet diaper He started coughing at dinner last night -- I am thinking it's heading that way
...There were two other kiddos sleeping at Jack's school (all three of them nodded off during story time. I am wondering what on earth the teacher was reading today
)i...so I am sure it's something that's going around at school. I do plan on asking when I call today!He was up most of the night coughing some and with a very high temp...after alternating Motrin and Tylenol it came down but this morning it went up to 103.8! I gave him meds and a luke warm bath. Each time the meds kick in it's coming down to about 100-101. If he's still coughing/runny nose tomorrow we'll be heading back in to make sure he doesn't need an antibiotic.
we BOTH took a long nap this afternoon...and I've just ordered pizza for dinner. I am one tired mommy today.
Thanks for thinking of us -- I will keep you posted!
We had another long night -- but his temp was down!!! It hasn't gone past 99 yet this morning either. He has a runny nose with post nasal coughing....but he's sooo much more himself today!! He's even chomping on some lucky charms as I type this
Monday, June 12, 2006
Jack's "Report Card"
I must say I am pleased with how well Jack is doing in school!
M - Mastered
I - Improvement
SI - Slight Improvement
NC - No Change
R - Regression
Imitate at least 5 consonant vowel combinations (mi for milk, ba for ball, etc.) -- SI
Build a vocabulary of at least 20 words and use two word utterances -- NC
Initiate requests (verbal, signs or pictures) 10 times a day -- NC
Follow one step directions -- NC
Identify 30 vocabulary words (point to object or picture) -- NC
Use two hands together to hold materials steady and use walker -- SI
Visually attend to a book for at least 60 seconds -- SI
During book time visually locate a familiar object or character 4/5 times. -- SI
And, drum roll please...
Use walker in classroom independently -- I
Overall looking at Jack's goals I am really pleased with his progress so far. He's only been in since March! His goals are for the entire year -- so it will be interesting to see how he progresses in the next three quarters!
Saturday, June 03, 2006
A Bedtime Story
There once was a boy named Jack...
His Mommy and Daddy decided he was ready for a BIG BOY bed!
So Mommy and Jack went to K-Mart...
And when they got home they put Daddy to work!
Daddy did a great job!
At first Jack said he didn't want to be a big boy!!
I don't WANNA go in my new bed!!!!!
Now wait....this isn't so bad!
Yes, in fact, I think I like it!
GOOD BYE baby bed!!
Hmmm, am I really ready?
Where's Jack??
THERE HE IS!
A BIG BOY IN HIS BIG BOY BED!!!!!
His Mommy and Daddy decided he was ready for a BIG BOY bed!
So Mommy and Jack went to K-Mart...
And when they got home they put Daddy to work!
Daddy did a great job!
At first Jack said he didn't want to be a big boy!!
I don't WANNA go in my new bed!!!!!
Now wait....this isn't so bad!
Yes, in fact, I think I like it!
GOOD BYE baby bed!!
Hmmm, am I really ready?
Where's Jack??
THERE HE IS!
A BIG BOY IN HIS BIG BOY BED!!!!!
Friday, June 02, 2006
PossibilityPlace
It's a dream come true!
I am so excited!! They are building a special needs playground about 30 minutes from us!!! They have ways to donate and I purchased a fence post that will be engraved as SPECIALPARENT.ORG (an online support group I help manage) -- I also purchased one in Jack's name. I am THRILLED -- it sounds amazing!
Check out the link!
http://www.possibilityplace.org
I am so excited!! They are building a special needs playground about 30 minutes from us!!! They have ways to donate and I purchased a fence post that will be engraved as SPECIALPARENT.ORG (an online support group I help manage) -- I also purchased one in Jack's name. I am THRILLED -- it sounds amazing!
Check out the link!
http://www.possibilityplace.org
Pool Pics!
New pics added to the May album (photography by Jenn W.) THANKS JENN!!!
POOL PICS
It's been VERY warm out the past few days and I decided I wanted to get a pool for Jack. I found a really neat 10 ft. x 5 ft. inflatable pool that's perfect for our yard! Jack loves it -- even though the water was quite cold! Our neighbor (and personal photographer) Jenn came over to take pictures of Jack!
Jack went in the pool this morning and it was warmer so he stayed in longer. It's SO GREAT that it's summertime! I have a feeling we'll be spending quite a bit of time in the pool!
Jack has been fine after his injury. He's 100% better! He still has a lump and he makes a face when I touch it (and prompty pushes my hand away) but other than that he's back to being Jack! Thank goodness it wasn't a serious injury.
Therapy has been going VERY well. We're traveling a lot but it's nicer now that there are no heavy coats and we can just go as we are! Jack is doing well in school too. He comes home singing songs and it's probably the cutest sound I've ever heard. He's singing songs (usually humming or singing with ooohs and ahhhs) in PERFECT pitch! I am quite impressed with how in tune he is! I've heard "Are you Sleeping?" of course "Twinkle Twinkle" and "Row, Row, Row Your Boat" -- I hope to capture it on camera!
Well, the little man is napping now and I have TONS of housework so I'd better get to it!!
Edited to add:
Okay, see where my mind is? I just now realized it isn't MAY anymore -- that I actually should have added those pictures for JUNE! Yikes, time's flying!! LOL
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