I've been slacking in tracking Jack's behavior via the blog -- I guess because part of me feels bad for needing to share the not so great moments...but that's what this journey is!
This weekend was very trying. We've discussed all sorts of reasons and tried to figure out if there were any specific triggers to those days where he's completely off and banging his head and shrieking with frustration and anger. One thing we've noted is bowel habits. When he's constipated he's more prone to meltdowns...has this resolved the issue? No, but if we can really stay on top of keeping him regular it may, just may help ease what's been going on. The other thing we've noticed is the behavior gets worse after an increase in Keppra. We have two more increases to go -- it will take us into the first week of October. Then, a few days after an increase, like today he has one of the best days...his teacher's note from today made me smile from ear to ear. He enjoyed himself, ate his entire lunch and wanted to participate in the learning activities.
So we continue to wait and see. Hopefully once he's on a full dose of Keppra and weaned off Tegretol we can get some normalcy back into Jack's day. We do see the neuro in October for a follow up and to get a weaning schedule for the Valproic Acid. Wouldn't it be awesome if this kiddo could take just one seizure med instead of three? Fingers crossed!
Oh, and I know -- wrong kiddo in the walker, lol! I have yet to have Jack and the camera at the same time!! The picture of Jack is from this morning waiting for the school bus!
PS -- DHL came to pick up the wrong walker on Friday. I have yet to see a refund from spinlife.com and have not yet heard back via email when I asked the status this morning. This is the last piece of the mess...I will keep you posted!
Edited to add -- I had an email from them -- my money will post in my account this week. I'll be very relieved!
I think the kids look great, I know my younger daughter loves playing with Regan's walker still at age 10! She likes to flip over the back bar, and sit up on the back bar as a chair. I hope things go well with Jack's seizure medicine. I know when regan had a lot of anger issues, we had her see the school councelor once a week to give her some dealing strategies, like counting to ten, first, or taking deep breaths, questioning herself (Is what I am doing the right choice?). It took months for these to sink in, but they did work, and the school counselor came in once a week to take her out and talk to her. It was a good outlet for her to get her frustrations out. Hope that helps!
ReplyDeleteI hope you are able to get down to the one med instead of three! That would be very exciting. :)
ReplyDeleteAs far as the behavioral issues go, it sounds tough determining what's going on. Glad you got a wonderful note, though, from the teacher.
Is the walker the Wenzelite? G will hopefully be getting his soon. Hope that money shows up in your account SOON!