I loved your video! Jack is such a cutie and has come so far! Katie used a walker like that. She started walking independently about about 4 1/2. She still has balance problems, especially outside, but can get around inside pretty well now.
Good luck on the seizures and behaviors. Katie has a lot of puzzling neurological issues, too. She's had two EEGs, and they've come back negative for seizures but positive for continous epileptic activity (brain spikes) in both hemispheres. Her behaviors sometimes mimic seizures, I think, even if the EEG says they aren't. Sometimes she has an episode, and then her behavior is just "off" for a few days after that, like it's messed up the firing in her brain. It's definitely hard to watch them go through that, especially when no one can give you true answers or help for it.
that was beautiful! he has accomplished so much....im still sort of at the beginning of this journey....so thank you so much for sharing your experiences and jack's accomplishments...
Oh Angela. I haven't visited in a while and that video has just made me smile from ear to ear. I have never seen a little boy so determined. He's truly and inspiration. Hope you are all well! Cath & Corey xxx
LOVE it!!! Thanks for sharing that. :)
ReplyDeleteI loved your video! Jack is such a cutie and has come so far! Katie used a walker like that. She started walking independently about about 4 1/2. She still has balance problems, especially outside, but can get around inside pretty well now.
ReplyDeleteGood luck on the seizures and behaviors. Katie has a lot of puzzling neurological issues, too. She's had two EEGs, and they've come back negative for seizures but positive for continous epileptic activity (brain spikes) in both hemispheres. Her behaviors sometimes mimic seizures, I think, even if the EEG says they aren't. Sometimes she has an episode, and then her behavior is just "off" for a few days after that, like it's messed up the firing in her brain. It's definitely hard to watch them go through that, especially when no one can give you true answers or help for it.
I look forward to checking in on Jack!
that was beautiful! he has accomplished so much....im still sort of at the beginning of this journey....so thank you so much for sharing your experiences and jack's accomplishments...
ReplyDeleteOh Angela. I haven't visited in a while and that video has just made me smile from ear to ear. I have never seen a little boy so determined. He's truly and inspiration.
ReplyDeleteHope you are all well!
Cath & Corey xxx