I spoke to Jack's neurologist last night. I almost forgot that I had called him at some time during Jack's 48 hour meltdown this past weekend. We have decided to hold tight with any med changes and ride it out, so to speak. Stick to the plan he came up with last week. I told him how we had 48 hours of meltdowns, then two of the best days, even during the EEG. He was quiet for a moment and here, he was looking up Jack's EEG results just to see if that related to the worsening behavior. The EEG showed "Jack has the potential for seizures" basically the same thing it always said. Which is good, it means he didn't have any seizures during the test, not even small ones (that I thought could be happening when he's tuning out or staring off). So some great behavior, no changes in his EEG...we should be good. But we're not.
Jack had a seizure last night and we had to give him diastat (the rescue medication). We waited until the 10 minute mark because it wasn't stopping or showing any signs of slowing up. He came to, looked at us, and went right back to sleep. He had a very, very restless night, lots of little jerks and jumps, thirsty, and over all didn't sleep too well.
I emailed school and called his TSS and made myself a note to call transportation in the morning...so I am finally resting (SLEEPING) well next to Jack who is also resting well and the doorbell rings. I immediately thought of the bus driver. DARN! I answered the door and a man and woman are smiling big smiles and I was soooo confused because I saw the bus in the background...finally after what felt like minutes of staring at them they said they were here to get Jack, his normal bus driver was out sick. I apologized profusely and said this never happens, I always call (read -- I am not one of THOSE people), and I am so sorry, I will call and let you know about tomorrow. They left and I came to blog..still a little fuzzy as I haven't had my coffee yet.
I will keep you posted.
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