A year later in January 2008 another call to 911 for a major seizure...So after several more seizures in 2008 -- I am left wondering what 2009 will bring.
They say hindsight is 20/20. This is true in so many aspects of life. I didn't know it at the time -- but at least twice Jack has been in Status Epilepticus. Status can be life-threatening. It's the suspected cause of Jett Travolta's death.
I don't normally live in fear. I have come to terms (as much as humanly possible) that we cannot control what happens -- especially when it comes to seizures. I just have my hope that this January remains uneventful and 2009 is seizure free.
For us, it's been January 2006 and 2007! Shunt revisions not seizures, but it was stressful. Here's hoping you have a seizure free and stress free January 2009.
ReplyDeleteWell you already know we are right there with you! (((hugs))) Hopefully we will all get through the winter with out any status or major issues!
ReplyDeleteSecond person I know to comment that the winter is bad for seizures--maybe it has to do with vitamin D? Should we be sticking our kids under sun lamps?
ReplyDeleteHmm, this post has me thinking about the winter connection, too. They've never caught Katie with a true seizure on EEG, although the EEGs have shown that she has constant epileptic-type activity in both hemispheres but just not full-blown seizures. I've still always suspected her to have seizures from time to time, though, from observations and symptoms, but just don't think they've been able to catch them on the EEG. The epileptic activity puts her more at risk for them, though. And her symptoms have always been majorly worse in the winter months. I've always wondered if there's a connection with the cold or the lack of sunlight. We have her on a high regimen of Vitamin D this winter, and the symptoms have been much less than in previous years. Weird, but I do think there's a connection somewhere.
ReplyDelete