Jack had a slight fever yesterday so I kept him home from school. He spent the day on the couch soaking in cartoons and not really eating or drinking much at all. I knew he was coming down with something but overall just seemed tired. He perked up when daddy came home and got off the sofa for the first time in several hours and played with Morgan while Jason and I watched the news. Jack stood up at the table in our living room with Morgan under his feet and suddenly tensed up and flew backwards a lot like a solid brick of ice -- and landed on the back of his head on the hardwood floor. For a brief second I thought he had just lost his balance, until I realized he was still rigid and turning grey. I pulled him away from the table by his foot and Jason grabbed the diastat and called 911. He wasn't breathing because he was locked in a tonic phase and really turning grey/blue. I administered 5 mg of diastat and his body released from the clenched, rigid tone to loose and floppy and he began breathing very shallow breaths. The paramedics, fire department and police got here within moments and he was coming out of the seizure but was still unresponsive. They took his stats and medical info and loaded him onto a board with a neck brace and secured him so he couldn't move as a precaution for the nasty fall he had. Jason stayed with Morgan and I rode in the ambulance. During the ride to the medical center Jack was coming to and was agitated because he was strapped down. Once we got to the hospital he was responsive and asking for a drink. Jason had called my family to come watch Morgan and he arrived at the hospital shortly after we did. The ER was quiet so we got attention pretty quickly. They took blood to test for medication levels and started an iv for fluids. They took him for a head and neck CT scan and we waited for the results. His blood levels came back low and his CT scan came back clear. We were released after several hours of observation with instructions to increase his valproic acid and follow up by phone with peds and neurology today. Jack went to bed shortly after we came home. Morgan, on the other hand, was thrilled to be spending time with Grandma, daddy and mommy and wondered why we don’t have late night “parties” like this more often. So far this morning Jack is tired and coughing and again, slightly feverish. I will be setting up an appointment with his pediatrician in the next day to make sure he’s getting better and not in need of antibiotics.
There was no warning with this seizure…no twitches, no vomiting or lip smacking…nothing. It came on so quickly and suddenly. I keep replaying the scene over and over and can’t get the sound of his precious little head hitting the floor out of my mind. I have made the executive decision to get carpeting in our living room and hallway. In fact, while I’m making executive decisions, any way we can simply carpet and pad the rest of the world too?
I will keep you all posted. Keep our little man in your thoughts and prayers and send plenty of “NO MORE SEIZURES” vibes our way.
Oh Angela! Jack and Landen are breaking my heart! I want them both to STOP this!!! Yesterday, on Landen's fourth birthday, he spent time in the ER too getting stiches in his lip from a seizure that knocked him off his bed. Praying for Jack too.
ReplyDeleteHi. It's Landen's mommy, Susie. I am going to send you a personal email after this, but I wanted to let you know that I have just adopted your family into my heart, your one brief posting here, speaks understandable words to me. I am praying for you and sending you cyber hugs.
ReplyDeleteI'm so sorry to hear about this:( I hate seizures- they are so unpredictable and frightening. We are still working on getting diastat in the home. Now, I will give the ped another "reminder" call to phone in the prescription. You did say his valproic acid levels were low so at least you have that to go off of. I will keep you in my thoughts and prayers.
ReplyDeleteMy adrenaline is pumping just reading that post. Good vibes and prayers are coming your way.
ReplyDeleteMy baby has a VERY different form of epilepsy, but I know that seizures can be completely frightening no matter what the cause. Yeah, carpet the living room, but hopefully you'll get those med levels worked out. My OT suggested monthly bloodwork to keep tabs on med levels. I haven't asked our nuero about it, but it is something to consider when the kids grow so fast.
"No more seizures. No more seizures." You're in my thoughts.
ReplyDeleteHugs,
Heesun
I'm new to reading your blog and just saw the seizure post! Poor Jack. I hate those things.
ReplyDeleteWe also recently spent 10 days in the hospital after a prolonged seizure/RSV/pneumonia. Abby was put on a vent (another nightmare) this time.
I'm glad little Jack is on the mend. He sure is a cutie. I like the key board you got him.. very cool.
-Patty
Abby's mom (fmr 23 wkr)
Just wanted to share that when we took our son off all dairy, including all foods made with it or fortified with calcium all of the seizures stopped. Eventually went to a whole foods diet and with lots of fruits, vegetables, (no corn) and some meat, our son was a different kid. Developed in so many areas. Oh and the eyes got better with days, no more eye patch! Doctors wont tell you this. A DAN doctor helped us out. Good luck. You can help your son more than any doctor. Just do some of your own research. Trust me, they just kept pumping our son with meds and he only got worse until I took matters into my own hands. There are lots of us out there in the same boat as you and your son and family. Follow your mommy gut.
ReplyDelete