Urgent Neurology Appointment Today

I wrote this yesterday:

I am concerned about Jack. As I posted earlier he had a seizure on Saturday. He ended up sleeping for a couple of hours afterwards. He was okay mood wise (we even went for a long walk) but then he went haywire. His mood was all over the place...he cried and raged...I forget when he went to bed but it was close to normal time. Sunday was a lot of the same -- moody, cranky, raging...then he fell asleep at 6pm and only woke up for meds a drink and a diaper and slept all night till 7am. I called his neuro to update on the seizure. He said he really thinks it is time to switch to a new med due to the fact that we increased the Tegretol 10 days ago. He said the mood is most likely from the meds (we've seen this before). He is fitting us in tomorrow at 9am. I have to take Jack for bloodwork in the morning at 6:30 so he can have the levels by the end of the day.I don't like seeing him so upset -- it's like he's possessed. It breaks my heart because I know he isn't doing it on purpose. It has been a "walk on eggshells, waiting for the other shoe to drop" kind of day.I will update when we get home tomorrow afternoon.

**UPDATE**

We discussed Jack at length and decided the best course of action is to reduce the Tegretol slightly and add Valproic Acid (Depokene). He said by using both meds we have more wiggle room and he won't be maxed out on Tegretol and still have seizures like he is now. Instead if the Tegretol covers most of the seizures, the valproic acid will hopefully cover the rest with room to increase the dose. Please keep your fingers crossed that the road to being seizure free and side effect free is a smooth one. Although I know there is the possibility for bumps along the transition...