Yesterday morning Jack and I were lying in my bed and he had a seizure lasting several minutes. I ran to get the diastat and opened the back door because our dog was barking madly to go out and pee. I ran back to Jack and watched him and he seemed to be coming out of it so I did not give him the diastat. He was out of it for a little while and then was totally fine.
I know we are to expect this to happen until the meds are up to therapeutic levels -- but I still don't like it. It truly is like constantly waiting for the other shoe to drop. I can handle it, but the stress is getting to me. Every time I hear a bump or noise coming from the other room I run in expecting to find Jack having a seizure.
I realized that I had the dog outside and hadn't attached her tie! When I went to let her in she was gone. I called and called. Jack was still post-ictal and Morgan was napping and I didn't feel comfortable putting them in the car to scout the neighborhood...so I went out every now and then to call for her. Finally one time when I was out I saw her head pop up over the neighbor's bushes! She came running back all happy and excited. Poor dog had to take herself for a walk...lol. I am glad she came home!
Later in the morning Jack had a massive poopy that was gross and sticky and went up his back and down his legs...I ended up throwing away his jammies and he had a nice long bath. It was just one of those days.
He went to school and had a great day. This was his first day back since the end of September -- they have weeks off here and there because they are on the extended school year schedule. I wrote a note to the teacher explaining what to look for and I also told Jack's nurse to keep an extra eye on him.
Then, this morning he had another seizure at the breakfast table. I moved him to the sofa and carried the diastat along with us. It was shorter than yesterday's seizure and he's lounging and watching the Backyardigans "The Yeti" episode.
I hope once the new meds reach their therapeutic levels that we can say GOODBYE to seizures.
Oh, I'm so sorry! It's heartbreaking the things you go through with Jack. I'm sure this to will pass once the meds kick in... still it isn't fun. ((HUGS))
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