I spoke to Jack's neurologist this morning...I was so fuzzy headed, Morgan was up until 3:00 am -- (teething woes) and Dr. N. woke me from a dead sleep. What I got from the conversation is that he wasn't happy about yesterday's 4 seizures and we are increasing the rate of increase of the valproic acid after he did some weight calculations (mg per kilo).
He's on call all weekend and we see him on Tuesday. He also said to give Jack his meds as soon as he wakes up in the morning instead of waiting until 9 am -- because his night time dose isn't carrying over 12 hours.
I did ask him if this was "normal" for the situation (as in the bumpy road reference) and he said yes. We are hanging in there, and hopefully the increased rate will help get us seizure free faster!!
I stumbled onto your blog through the blog on the list of a blog of a friend... I'm lost already, lol. I have to say, I can't imagine what it must be like to deal with seizures. My daughter has had a lot of surgeries, she's DD, she has two diagnosed disorders and also has a mystery syndrome... but seizures are one arena we have not had to go through. Good luck to you in this! My prayers are with Jack. I am guessing it can be pretty scary to be the kid going through it all.
ReplyDeleteOh Angela, I hope that the seizures stop soon. Know all about the lack of sleep issues - Sumo has decided to cut all of his incizors at once. And has roseola to boot. I hope Jack comes out of it. Must be scary for him too. Love, Jacqui
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