Another Seizure...NOW WHAT?

This morning Jack and I were on our way to the NEUROLOGIST'S office and about half way there he vomited all over the car I pulled over at a very unsafe location -- so I checked him breifly and drove a little while longer until we got to Wal-Mart's parking lot. I kept looking at him and he seemed fine just a little green in the face. I started cleaning him the best I could and didn't know whether or not to cancel the neuro appointment. I called Jason and he said to reschedule that no one wants to be out when they're throwing up and if it happened again on the highway Jack could be in trouble.

I called the neuro and talked to the front desk -- I asked the neuro to call back with instructions on re-dosing Tegretol if Jack vomits after getting his seizure meds. When we were walking in the phone was ringing. Had a nice conversation with the neuro told him no new seizures, levels looked good (last month) and he said we could slowly give Jack his Tegretol over an hour or so tonight so he won't vomit it all in one shot. I thanked him and told him we'd see him in a few weeks since we had to reschedule.

Jack helped me sort laundry and even helped vacuum (MAJOR SENSORY MILESTONE!!!) and then he went to play in his room. I sat down to check the forum and email -- I heard him playing on his bed. Then I heard some gutteral, gurgling sounds and thougt he was throwing up...when I got to his room I saw that he was having a seizure. His arms were held tight in fists and he was shaking and purple/blue looking. He was breathing better than last time so I had to snap to it and make a choice. I grabbed the phone and the diastat (emergency seizure meds) and ran back to Jack. I had my finger on the 9, almost dialing 911 -- but I thought "No, I CAN handle this" and gave him the diastat rectally. He stopped seizing immediately. He was post-itcal for about a half hour...whithin that time i called the neuro's nurse and she said I did everything right and I should watch his breathing and call emergency services if anything changed.

I hated seeing him so unresponsive. His eyes were open but he had no idea I was there. He slowly came out of it and said an (unidentifiable) word or two and touched his wall and played with his blanket a little. I called my mom to come over and I also called the ped. I gave him a bit of pedialyte which all came back up instantly...

Our plan right now is to stay home today, give him small amounts of fluids as tolerated. Tomorrow morning our neuro wants a blood level -- and he wants our ped to check him out. So we'll head to the lab and then to the ped.

Since this wasn't a febrile seizure and his levels should not be too low WHY ON EARTH DID THIS HAPPEN?? We'll know for sure about the levels tomorrow but we just increased his dose 6 weeks ago...I am hoping that's all it is. But if not I have so many questions.

Sorry if I rambled.

My mom and Paul were here. They brought me lunch and sat with Jack in his room. They also carried my laundry and went to the store for Tylenol suppositories (just in case he needs fever reducer but can't keep meds down). They are going with me to the lab and the ped tomorrow as well. Thank goodness for family!

I am thinking this could be the very reason Jack's been so out of sorts the past few days. I don't think ALL of the behavior can be explained away -- but maybe the particularly cranky days we've had recently.

I will update soon -- hopefully tomorrow.