We are getting Botox for Jack this afternoon -- we used to travel to CHOP but we've started seeing the pediatric physiatrist at the Med Center and decided to have it done there.
Jack will not be sedated for the procedure. I am nervous. At CHOP they used numbing cream and sedation -- here they only use the EMLA numbing cream. I don't like sedation, but I also know they sedate for a reason (pain and memory). I even had a dream about Jack's old neurologist lecturing me and damning me for not listening to him. UGH. Although last time Jack was sedated for Botox he had that horrible apnea episode that dropped his sats waaaay down and he turned gray/blue and aspirated which several weeks later caused pneumonia and a seizure that lasted for hours/911/ER stay....so I am all for trying it without sedation at this point. Double UGH.
Then of course afterwards he has an eye appointment. This is going to be one long day!
Please wish Jack luck!
OH, that does sound like a long day! I don't have experience with Botox, but my oldest and G have had percutaneous tenotomies (achilles tendons cut for clubfeet) without sedation and just had a local anesthetic. They reacted to being held still more than the procedure.
ReplyDeleteDoes Botox take a long time to inject? I hope the procedure goes smoothly for Jack and you.