Over the last 6 weeks or so I've noticed what I think is a small seizure about 4 times. He'll start with what looks like he's tasting something --which is usually what he does when he's about to vomit and then have a seizure. His heart races slightly, his mouth moves like he's tasting something and he looks a little scared. He then smiles like nothing is wrong and moves about his business. These episodes only last seconds and don't progress any further. Afterwards he's a little clammy and pale.
We're still on vacation and he did this right before breakfast this morning. This does sound like seizures, doesn't it? We just had blood work done last week so when we return I will call his neuro and run it by him as well as check his levels.
The kids are having a wonderful time on vacation! If you want to know where we are think "Watch the Tram car please!", aggressive seagulls that steal whole pieces of pizza and chicken legs off of hot grills, Khor Bros. Ice Cream, Mack's Pizza...lol, it's the Jersey Shore!!!!
The sun rising yesterday morning -- beautiful!!
Angela - I am sorry to say that yes it sounds like an atonic complex seizure - I think that is what it might be called. I just read about this. That is a bummer. At least they are only lasting for a short time.
ReplyDeleteI am glad you are having a nice vacation despite the odd seizure and a the aggressive seagulls.
Hi Kathryn! The atonic complex partial would fit with Jack's current seizure disorder diagnosis of Temoral Lobe Epilepsy. I've learned that Jack's seizures nearly ALWAYS start this way -- sometimes they progress to complex partial and then they generalize into tonic clonic seizures if no intervention is made. It was interesting to watch it start and stop so suddenly. Thank you for your opinion, especially the name atonic, I had not heard that term before.
ReplyDeleteWe are home from vacation and I left a message with his neurologist. Hopefully I will hear something tomorrow.
He hasn't had any more that I saw, and hopefully we'll learn his levels are a little low and he'll be good with a slight increase...fingers crossed.
Thanks again!
Angela, I wish they weren't seizures too. Moo's been having some odd behaviour lately too.
ReplyDeleteAnyway, know all about agressive sea birds. We had a day out a few months ago when Moo was eating his lunch and an Ibis (really vulger bird) came and snapped it straight out of his hand. Could not believe that it was not intimidated in the least and knew instinctively who was most vunerable.
Your holiday sounds fab!
i went there.. the seagulls will kill people for food!!!!!
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