Our CP Clinic Visit at CHOP

What a long day!

We left at 11:30 am and got to CHOP at 1:30. It was an easy drive with zero traffic. We checked in and Jack made a few new friends in the waiting area. He's so friendly -- and the other kids were so cute!

We met with the occupational therapist first. She had him show off some of his fine motor skills and Jack took to her right away. He was practically ready to go home with her! They tested his ability to handle small objects, draw, use scissors and she measured the range of motion in his right hand and arm. She suggested we have a new brace made that will hold his hand open a little more aggresively than our current Joe cool splint and our night splint (which he hasn't been wearing too much lately because it's too easy for him to take it off).

Our next visitor was a resident doctor of physical medicine. He came in and measured Jack's range of motion in his legs, and tested all of his refelxes. Jack liked him too -- although I think it's because he let Jack play with his stethoscope! Then Dr. Drake came in to see Jack. He suggested we do another round of Botox injections in both legs and his right hand. After the injections he will evaluate Jack for a new pair of DAFO braces for his legs. He felt we can get a few more weeks out of our current pair -- which I am hoping is true because it doesn't look like Jack has much more room to grow!

We then met with the physical therapist. He's very easy to talk to. We discussed different ways to "sneak" in some extra stretching. He said we should keep doing what we're doing!

We then went for hip xrays -- which I assume are okay, because we haven't heard anything to the contrary. His hips felt fine on examination -- the xray is just to be absolutely sure.