Happy Halloween!!

Create Your Own!

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Oh wow, we're back after a lot of technical difficulty! I switched to the blogger/google/beta and was quite lost for a bit. I believe everything should look and run smoothly now.

I have so much to tell you! Pictures will have to wait because I am on daddy's work laptop at the moment (shhhh!!) because our mac is having power issues (it won't turn on) and we have yet to get it looked at.

Anyway, things have been very busy of course -- Jack's been well, no seizures, and up until recently very healthy! He has a cold now but should hopefully be at the tail end of it. He's at school today and he was acting fine, no fever just some left over sniffles...

We went to visit Kris, Mike and their daughter Alicia in the Poconos two weeks ago while daddy was in LA on business. Alicia has cerebral palsy too. Kris and I have been friends for almost 4 years now and it's been amazing to watch our kids grow up and accomplish so much! We spend a lot of time chatting on the phone and running our online support group so we're always in touch, but there's something about actually kicking back and hanging out together that's SO MUCH FUN!! The kids had a blast too. They played and played and played...Jack got to meet Alicia's occupational therapist, and they loved playing with Mike in the Dora tent. Jack's Christmas list grew every time he would play with one of Alicia's toys! lol! We had a wonderful time and hope they will come stay with us soon!

Jack had an MRI under general anesthesia on Friday. He did so well. This is just routine and will give a better picture than his CT scan on file so we can get a look and discuss things with his neurologist. Most kids with neurological conditions should have an MRI within the first few years...we have our meeting with the neuro on Nov. 17th.

I am a little ticked at the seating clinic! We had our appointment the first week of August with the hopes that everything would be approved and ordered and ready 3 months later, which would be the first week of November. Well...they JUST GOT the letters of medical necessity on Friday....which means the last three months have been a total waste of time!!!!!!!!!!! If I knew who dropped the ball I'd go kick them REALLY, REALLY hard right now. I am so mad with myself for not following up sooner. I am going to call every Monday until we get the equipment. The woman I spoke to was very nice -- I didn't take out my frustrations on her. She explained the process and once they have the letters and get approval from insurance her job won't take but a week or two (purchasing and delivery). I do understand the wait...but my child NEEDS this equipment and because someone didn't get the letters out in a timely fashion it's going to take even longer.......... but there's nothing I can do.

I have been concerned about the special needs carseat for some time...I just wasn't sure it was going to fit in our minivan (the seats are small). Anyway, I still think Jack would benefit from it but I found something that I feel is a much better fit for Jack.When I learned that the seat hadn't been ordered yet, I immediately placed an order for this seat from Graco:

Graco CarGo Booster Seat

It goes from 20 to 100 lbs and has what I feel is just the right amount of support. So sometimes things happen for a reason. I also wanted to share this seat for those who have smaller cars and can't fit the bigger SN carseats. So now I must call the vendor and cancel the seat. I'll keep you posted!

Grandma Josie had to have surgery last week -- she's home now and on the mend. We are going to go over to her house and hand out candy. We'll probably do some trick or treating as well around her neighborhood. I will post a picture of Jack in his costume tomorrow, or later this evening if I get a moment.

Jack's sleeping has been ROTTEN for about a week now. He's going to bed with little fuss (which is a bonus for sure because that's usually not the case) -- but he's waking up very upset around 2 am every morning. He won't go back to sleep and wants to play after I get him settled down. I've tried shortening his nap which I would take away compleltey but he will fall over and go to sleep at school when I do that!! Anway, just a little vent on how little sleep we're getting. He does this from time to time and it hasn't helped that he's had a cold either. Pleas keep your fingers crossed for more sound sleep in our future.

Have a safe Trick or Treat tonight everyone!!!!!!!!!