Jack had his Botox injections done at CHOP last week. He was such a good boy and a major trooper all day! They did 4 injections in his right arm and 4 in each leg as well. We got there right on time but had to wait on the sedation unit because they didn't have a bed available. Once we were called back we didn't really know what to expect. A nurse came in and explained that they were going to be examining Jack closely to mark the injection sites. Jack got to wear a cool kids gown with trains all over it. The dr. came in and used a black sharpie marker to put the dots on Jack's arm and legs. He also put EMLA cream (a numbing cream) on the sites and placed medical tape over the cream. They started an IV on Jack and hooked him up to monitors to watch his vitals. Then they explained that they were going to give Jack two medications (versed and fentenol) to put him in a "twighlight" state. When they gave him the versed Jack started laughing and giggling -- which in turn made all of us laugh. We had to wipe tears from our eyes -- it was sooo funny! Jack handled the injections very well. He was awake and crying, but we could tell it wasn't hurting him as much as if he weren't doped up. Jack needed a bit of oxygen but only for a moment every now and then. When it was all over they watched Jack for a while and the medicine was wearing off a bit, so they gave him a snack and some apple juice and since he did well we got to go home!
They said we'd notice the full effect of the Botox in about a week. Already we notice his right hand is open and loose!! His legs are nice as well. He's using his walker with more ease and overall it looks great already and it hasn't even been a full week. We go back to CHOP for a three week check up this month. I am sure they'll be pleased with the results.
The move went smoothly -- we're pretty much settled in with some rooms more complete than others. Everything is unpacked and put away and now we're working on decorating and arranging furniture. We LOVE, LOVE, LOVE our new house. It feels wonderful to say that! Jack loves it too...we have a great back yard with a swing and Jack loves to crawl in the grass!
I hope to get some pictures online soon! I'll be sure to post them when I do.
It's hard to believe that you are all settled already! What's your secret? We've been here almost 3 weeks and still have boxes and boxes and boxes in the garage! We hope to be able to park at least one vehicle in there by the end of the year!! You're right! YOUR house looks beautiful. I'll bet Nana is looking down and smiling and thinking, "Why didn't I do that?" She would be so proud to know that the house stayed in her family and that more Wilhelms' will be raised where she raised her own children.
ReplyDeleteIt's so good to hear that you see results already from his shots. It can only get better from here and it WILL!! Keep the faith in your little guy. He will amaze you each and every day!
Jack, did you start your garden yet? Soon time to get those veggies in the ground. You'll have a great time playing in the dirt this summer, and Mommy---don't worry about him getting too dirty--I've been told that dirt makes little ones grow!! And even if it doesn't, at least he'll have a great time!!
Can't wait to see the new pictures! Well, better get going, I asked Max to mop the floors, but since she hasn't moved from the deck in the last hour or so, I guess I'll have to do it myself!
Have a great day in school and don't forget to wish Daddy and Uncle Ben, Happy Birthday!!
Love you,
Grammie
I'm so pleased the Botox injections seem to be having some effect Angela, hopefully things will get even better.
ReplyDeleteGlad you've settled into your new house!