Our neurology appointment went very well. He really listened to everything and had some very sage words of advice too. He referred us to a speech therapy clinic which offers private therapy as well as some other programs. We are also seeing the neurodevelopmental team. He's sending us for a repeat EEG in July with an appointment following so he can read the results to us immediately. He upped Jack's dosage of Tegretol and will send us for blood work in 4 weeks. So luckily we did not have to go to the lab that day!

I had a MAJOR SCARE at the dietician's office. We went there for a quick weight check and the nurse put Jack on the scale and got his weigh in kilograms -- when she converted it to pounds she told us Jack was 20 lbs 7 oz. 6 weeks ago, when we started the duocal and Pediasure (more than his usual 1 can a day) he weighed in at 20 lbs 8 oz...which meant after all of our hard work he LOST an ounce...I was so upset and worried. I called the dietician this morning (who by the way is a SWEETHEART over the phone ) and expressed my concerns over Jack's loss and no gain with the duocal and Pediasure. Well she redid the calculations and GUESS WHAT!!!!???!!! Jack weighs 21 lbs 4 oz!!!!!!!!!! He averaged a gain of 4 grams a day and kids in his age range should gain between 4-10 grams a day...we are finally on track (even if it's the low end) for gaining. She said she would like to see him gain more -- but was pleased with how he's doing. We got to talking about some of Jack's issues and I mentioned CP and she said she has a 13 year old son with CP. I thought that was interesting. I guess I never figured her to 'get' what our life is like but obviously she must know (on some level) what we go through.

All in all I feel we had a great week of appointments. A lot of information, a lot of referrals and a lot of stress -- but all leading us somewhere. I was so afraid that I would end up hitting that brick wall but to my surprise everyone listened and wrote referral after referral. Wonderful news.

So I assume we'll get quite busy with all of the new paths we must travel but it's okay if it helps me help Jack.