Friday, July 24, 2009

Dog Sitting

We're puppy sitting Maxine! The kids love her and are giving her a
run for her money!! Max is Pa pa's puppy...

Wednesday, July 15, 2009

Botox Follow Up

All is looking good!! Still very tight on the right but overall his
muscles are looser!

Thursday, July 09, 2009

Another Seizure

So this makes two in less than a week. Put a call in to the neuro and they said to increase his Keppra by 1 ml morning and evening. So instead of 4 ml twice a day he'll get 5 ml twice a day. They warned we could see more seizures this week until the new dose kicks in and to call if they increase in frequecy or intensity...let's hope NOT!

Gotta run the kiddos are chasing each other around! Will keep you posted!

11 Months...

11 months without seizures. It was our longest streak since he began having them regularly 3 years ago. On Friday we had a date night set and were going to go to a 4th of July picnic about an hour away. Pa Pa, Jan and Steff were going to come watch the kids but Jason had been golfing all day and I was tired and we canceled our plans and just stayed home. I am sure everything happens for a reason even if we don't know why at the time! Jack had a very minor seizure on Friday night. I am sure everyone would have been fine even if we had gone away! It was a simple partial seizure -- which is how they usually start for Jack, but they progress to complex partial and on occasion to generalized. This one stopped in its tracks after about 1 and a half minutes and he's been fine ever since. No Diastat needed. He had started (as usual) with teeth grinding and chewing motions and his little lips had a slight tinge of blue, and he was spaced out for the duration. He came too and asked to eat...he seemed confused a little and then went to bed for the night. Like I said, he's been okay ever since...and fingers crossed we go another long stretch before we see another.

Jack had Botox injections yesterday under general anesthesia. He did awesome and was such a champ during the process. He remained calm and only got nervous when the anesthesiologist came at him with the gas mask...and he was out like a light! He woke up and asked for fries...too bad it was 9:00 am and no one had any on the way home! He's doing great today and will start intesive outpaitent Physical Therapy next week.

I will keep you posted! Thanks for reading!



June Photos!

YAY!



Wednesday, July 01, 2009

Immigration Approval!

I had a feeling about the mail today -- and it was RIGHT! We recived our I-797C, Notice of Action approval today!! Now we can get state sealed and in just a few weeks we'll be officially waiting!!!!

PS -- it's so hard to understand but this was THE THING we were waiting on and it's HERE!!!!

Friday, June 26, 2009

Pics to come!!!

Kris took so many great pics while here!! we had so much fun and I am
sad to see them go :(

Sent from my iPhone

Tuesday, June 23, 2009

Monday, June 22, 2009

Visitors!!

Kris and Alicia are here for the week!!! Even with my mobile blogging
this is one of the only photos I managed to capture of the three kids
together!

Tomorrow we're heading to possibility place playground. It's an
awesome accessible playground that Jack can use his walker all over.
We went last year with Kris and Alicia as well.

Pics and video to come!

Oh, and please know I've been reading blogs and am sorry I haven't
been commenting lately. So many of you have such amazing posts and I
have so much to say back to you! Just know I love reading your blogs
and I promise to show my "commenting face" soon. (((hugs)))

Angela

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