11 Months...

11 months without seizures. It was our longest streak since he began having them regularly 3 years ago. On Friday we had a date night set and were going to go to a 4th of July picnic about an hour away. Pa Pa, Jan and Steff were going to come watch the kids but Jason had been golfing all day and I was tired and we canceled our plans and just stayed home. I am sure everything happens for a reason even if we don't know why at the time! Jack had a very minor seizure on Friday night. I am sure everyone would have been fine even if we had gone away! It was a simple partial seizure -- which is how they usually start for Jack, but they progress to complex partial and on occasion to generalized. This one stopped in its tracks after about 1 and a half minutes and he's been fine ever since. No Diastat needed. He had started (as usual) with teeth grinding and chewing motions and his little lips had a slight tinge of blue, and he was spaced out for the duration. He came too and asked to eat...he seemed confused a little and then went to bed for the night. Like I said, he's been okay ever since...and fingers crossed we go another long stretch before we see another.

Jack had Botox injections yesterday under general anesthesia. He did awesome and was such a champ during the process. He remained calm and only got nervous when the anesthesiologist came at him with the gas mask...and he was out like a light! He woke up and asked for fries...too bad it was 9:00 am and no one had any on the way home! He's doing great today and will start intesive outpaitent Physical Therapy next week.

I will keep you posted! Thanks for reading!