Gotta run the kiddos are chasing each other around! Will keep you posted!
Thursday, July 09, 2009
Another Seizure
So this makes two in less than a week. Put a call in to the neuro and they said to increase his Keppra by 1 ml morning and evening. So instead of 4 ml twice a day he'll get 5 ml twice a day. They warned we could see more seizures this week until the new dose kicks in and to call if they increase in frequecy or intensity...let's hope NOT!
11 Months...
11 months without seizures. It was our longest streak since he began having them regularly 3 years ago. On Friday we had a date night set and were going to go to a 4th of July picnic about an hour away. Pa Pa, Jan and Steff were going to come watch the kids but Jason had been golfing all day and I was tired and we canceled our plans and just stayed home. I am sure everything happens for a reason even if we don't know why at the time! Jack had a very minor seizure on Friday night. I am sure everyone would have been fine even if we had gone away! It was a simple partial seizure -- which is how they usually start for Jack, but they progress to complex partial and on occasion to generalized. This one stopped in its tracks after about 1 and a half minutes and he's been fine ever since. No Diastat needed. He had started (as usual) with teeth grinding and chewing motions and his little lips had a slight tinge of blue, and he was spaced out for the duration. He came too and asked to eat...he seemed confused a little and then went to bed for the night. Like I said, he's been okay ever since...and fingers crossed we go another long stretch before we see another.
Jack had Botox injections yesterday under general anesthesia. He did awesome and was such a champ during the process. He remained calm and only got nervous when the anesthesiologist came at him with the gas mask...and he was out like a light! He woke up and asked for fries...too bad it was 9:00 am and no one had any on the way home! He's doing great today and will start intesive outpaitent Physical Therapy next week.
I will keep you posted! Thanks for reading!
Wednesday, July 01, 2009
Immigration Approval!
I had a feeling about the mail today -- and it was RIGHT! We recived our I-797C, Notice of Action approval today!! Now we can get state sealed and in just a few weeks we'll be officially waiting!!!!
PS -- it's so hard to understand but this was THE THING we were waiting on and it's HERE!!!!
Tuesday, June 30, 2009
Monday, June 29, 2009
Friday, June 26, 2009
Pics to come!!!
Kris took so many great pics while here!! we had so much fun and I am
sad to see them go :(
sad to see them go :(
Sent from my iPhone
Wednesday, June 24, 2009
Tuesday, June 23, 2009
Monday, June 22, 2009
Visitors!!
this is one of the only photos I managed to capture of the three kids
together!
Tomorrow we're heading to possibility place playground. It's an
awesome accessible playground that Jack can use his walker all over.
We went last year with Kris and Alicia as well.
Pics and video to come!
Oh, and please know I've been reading blogs and am sorry I haven't
been commenting lately. So many of you have such amazing posts and I
have so much to say back to you! Just know I love reading your blogs
and I promise to show my "commenting face" soon. (((hugs)))
Angela
Saturday, June 20, 2009
Friday, June 19, 2009
Jack Drinks From Open Cup, 6 yrs old -- April 2009
Check out this video on YouTube:
http://www.youtube.com/watch?v=sI9MyIMBTgo
Sent from my iPhone
Kids 1st iPhone video
Check out this video on YouTube:
http://www.youtube.com/watch?v=yBebi5qU7tU
Sent from my iPhone
Tuesday, June 16, 2009
An iPhone - just for ME!
Woo hoo! On June 19th I'll be getting the brand new iPhone! Mobile blogging, videos, pictures, and so very much more! Have a favorite app? Let me know about it :)
Thursday, June 11, 2009
Catching up!
Where to start? How about with Morgan scaring the pants off of me by crashing her hish chair to the floor? It all happened so fast. I was a few feet away and I see her use her legs to lean back (think of balancing a chair on two legs) and before I could even say or do anything she tipped the chair and fell face first to the kichen floor. I was stunned -- she screamed and I ran and grabbed her not realizing I forgot to undo the straps and I made her scream more because her legs were caught in the seat belt! She had a large, red lump on her face and I held her until she calmed down. I made sure she wasn't hurt anywhere else and about a half an hour later she was totally herself and playing. That all happened around 11:30 am. She had been fine all day with her poor face swelling and turning colors -- she didn't seem to be bothered at all. Around 4:30 pm she started to get very cranky (which in itself isn't unusual but she did hit her head so I started to wonder if I should have her checked out). I called Jason and he came home early from work and I took her in to the ER. We were in and out in record time (about an hour and a half) and they said she was fine. They told us what to watch for (fever, vomiting, nose bleeds, etc.) and sent us home. She was totally herself for the rest of the night. She still has a nice black and blue face (see picture) but isn't bothered at all.
Jack finished school the first week of June (hence my severe lack of postings!!) and has been quite a handful! He's very busy and using so many words and phrases lately. Yesterday he said "Window open please, mom, see outside." He wanted me to open the blinds in the kitchen so he could see outside. It's the very first time he's ever explained or expanded upon the "why" or "reasoning" of a request. It's a pretty huge milestone. He's also started answering questions like "Who drives your bus?" and "Who is your teacher?" as well as "Who goes to school with you?" He has learned most of his classmates names as well as the other adults in the school. I sent a disposable camera in to school and they took pictures of Jack and his friends. He loves looking at the pictures (and so do I!!). Most of these kiddos have been together since preschool and it's amazing to see how they've all grown and changed over the years!
I am all a flutter! One of my best friends is getting married this weekend!! I am so excited and happy for them. I am her Matron of Honor and starting with the rehersal Friday night I am away most of the weekend involved with her wedding!! I have an appointment to get my hair done and am going to spen tonight "grooming" doing my nails, practicing my make up and making sure I have everything I need!! Speaking of -- I just thought of something I need to add to my list (a handbag -- I don't think diaper bags go over too well at formal events, lol). Pa Pa and Jan will be sitting with the kids on Saturday while we're at the wedding and reception! How cool is that?? (VERY COOL, lol).
I hope to not have as much time pass between posts. I am trying to justify a Blackberry for Mobile Blogging -- because there are so so so many times when we're out and I'd love to snap a picture and send a few lines to truly capture the moment. If you see Jason maybe you could mention that you all miss me and how nice it would be if I had a Blackberry. lol!
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