Evening update: Jack's doing just fine! He's not at all bothered by what happened this morning...his red mark faded and doesn't look too bad. I gave him motrin before bed just incase he's a little sore. Shew -- and to think this won't be the only boo boo!!

Jack's first accident!! I was sorting laundry this morning in our bedroom and Jack was playing on our bed dialing the phone and listening to the operator (a newly found source of entertainment -- just hope he doesn't run up my long distance bill) well I had my back turned for 1.2 seconds and when I turned around I saw this pair of little feet straight up in the air -- I screamed and lunged towards him almost able to grab his ankle...too late Jack fell off the bed onto his forehead and sort of bounced and landed on his back...he SCREAMED and I ran over to him...when I picked him up he looked at me as if to say "WHAT HAPPENED?!?!" and he cried for a while as did I. He has a red bruise on his forehead -- other than that everything seems fine. He went down for his nap at 11:30 and I've already checked on him 3 times. I know he's okay -- but I am still shaken up. Guess I have to get used to these things now that he's getting into everything. I feel like a horrible mommy though even though I know it was an accident. I did call my mom and she reminded me of all the times we fell as kids and were fine. Well, must run and check on him again! Please keep Jack's little head in your thoughts!

We have some sad family news. My grandma Olga (Jack's great grandma) passed away Sunday, November 28th. We are relieved that she is no longer suffering but so sad because we miss her so much. She loved Jack (or as she called him "My Jackie") and loved to hold him and hear him 'talk' to her on the phone. The funeral will be this Friday. Jack is doing very well -- there's so much to be PROUD of! He's eating anything and everything in sight. He LOVES food and wants to eat whatever mommy and daddy are eating. He ate lots of Grandma Linda's Thanksgiving Dinner (and most of the leftovers too) as well as a second Thanksgiving Dinner at Grandpa Bob's....he loved Grammie Tina's sweet potato casserole too! We have been taking Jack out as usual. After letting him recover for a week or so and with his pediatrician's encouragement we feel comfortable shopping and eating out with our very social Jack! Jack is crawling and getting into trouble and he's becoming more steady on his feet and is daring to cruise along the couch and coffee table. Sometimes his excitement gets ahead of his feet and he crashes to the floor -- usually he just laughs and tries again. We are working very hard to strengthen his legs and trunk muscles to make standing and cruising easier for him. We also must practice taking steps with two hands held...he does well when you hold him under his arms or at his elbows but it gets harder for him with less support. Although he is making progress!! He's also 'talking' much more as well...although NEVER around the speech therapist!! I don't think he's made a peep around her yet! Too funny!! I've added new pictures -- check out the November 2004 album! We are remodeling our kitchen and slowly and surly we're making some progress. To check out our photoblog copy and paste the following web address. www.wilhelmfamily.photosite.com

Jack is feeling better and better each day. Today he was actually interested in crawling around and playing with his toys He still has runny diapers but they are getting less and less and he's getting plenty of fluids and is eating some so hopefully he'll be back in full action soon. Thank you all so much for your thoughts during this horrible ordeal.

Usually we have such great service at that facility (although we've never been to that ER before) -- I am upset that this happened.

I am also so freaked out about Jack getting sick again. I thought we were sort of 'in the clear' because he remained totally healthy from the time he was discharged from the NICU. Now 20 months later he's in the hospital. Did we just get lucky for those 20 months? Is Jack not as healthy or able to fight off bugs as well as we thought? Would this virus have put any child in the hospital? Part of me wants to go into deep seclusion like we did last year (under doctor's orders), but I don't know what to do. We have a follow up with his pediatrician on the 22nd and I plan on talking to her about my fears. For now I have no problems with staying in and being super diligent about making sure we avoid anyone with a cold or bug. As always hand washing is a rule when you walk in our door so that hasn't changed. I wish I had a scrub sink on my front porch -- HA HA! I know I had someone tell me that they'll never get used to this whole handwashing thing and they even wondered if they'll have to wash their hands till Jack's 18 -- well...maybe!!

Jack had been sick for several days. It all started Tuesday night around 11:00. I had fallen asleep on the couch while Angie was rocking Jack to sleep. I was awoken by the sound of vomiting upstairs and Angie’s cries for help. “Jack is burning up!”

The fever was barely controllable even with a combination of Motrin and Tylenol. On Thursday, when it became apparent to us that the sickness was not subsiding, Jack was brought the pediatrician’s office. After blood work and a urine cath showed no obvious signs of a bacterial infection, the ped felt the illness was viral and the best thing to do was to keep Jack well hydrated.

Jack took in small amounts throughout the day, but was very miserable...even lethargic, and was slowing becoming dehydrated. Later in the evening Jack was becoming increasingly irritable and would wince in horrible pain if he wasn’t lying flat. The pain combined with unrelenting fever resulted in our decision to take Jack into our local ER around 11:30 Thursday night.

We were seen relatively quickly by the ER doctor. He was an older gentleman who did not show any obvious signs of fatigue, but he was by no means energetic. He was very kind, but we felt that his examination of Jack should have been a bit more thorough. In fact, I had to point out that Jack was dehydrated and also that his lymph nodes were swollen. In addition to the examination, Jack also had blood taken and a throat culture. Some time passed and the blood work came back as being normal, besides some resolved confusion that it was high in sugar, which was due dextrose and saline IV fluid.

Some time passed and the doctor proposed to us that he perform a spinal tap on Jack to see if his spinal fluid or shunt showed any signs of infection. We nervously declined and asked to be transferred the Medical Center ER. Jack has a long history with specific departments and doctors at the Medical Center, and if anybody was going to stick a needle in Jack’s spine, it was going to be his neurosurgeons. Jack’s neurosurgeon was on call thankfully and the ER doctor explained Jack’s situation to him. The Medical Center ER then accepted Jack as a patient under his neurosurgeon.

More time passed, and then around 4:30 AM Jack was transferred to the Medical Center by ambulance. Angie rode with him and I follow in the car.

Jack was immediately examined by three people and his vitals were taken. We felt that Jack was finally in good hands. We were informed that Neurosurgery was notified or our arrival and everybody left the room.

Hours passed. While we had a nurse assigned to us, we felt completely alone and not taken care of at all. We asked three times for Tylenol for Jack and got none. It took multiple requests for diapers that we finally got some. Jack had a fever and we were unsuccessful in getting his temperature taken. Although we had informed the examiners at the beginning of the Medical Center ordeal that he was on IV being treated for dehydration, no fluids were given to him.

Finally after not being told when to expect neurosurgery, one of Jack’s neurosurgeons visited us a full 3 hours after our arrival. She thought that there was no shunt infection or shunt malfunction and even decided that a head CT was not necessary in order avoid Jack’s sedation. We were very pleased at this news...especially since there was no need for any spinal tap. In fact, Jack’s neurosurgeon thought it was a very good choice not to let a sleepy, yawning ER doctor perform such a delicate procedure.

We had expressed our urgency in getting Jack’s other medical issues attended to (i.e. IV fluids, Tylenol). We were then told by our absolutely worthless nurse that she can not do anything because the ER doctors refuse to see Jack. Still in the room, the neurosurgeon asked the nurse if she could write the order. The nurse said yes.

We were appalled. It was FIVE HOURS since our arrival and Jack was not being treated for anything. Jack was on his third day of no food or drink I expressed my anger and demanded that we speak to someone who had the power to fix the situation.

A few minutes later, a person with the official title of “Patient Representative” arrived and apologized profusely for the inactions of the hospital. He immediately had Pediatrics exam Jack. From the point on, we felt very taken care of.

Later in the evening, still in the ER (we did have a private room), Jack’s main Neurosurgeon visit us mainly to apologize for what happened earlier in day. Through this apology, we learned that we were caught in the middle of a department feud that has caused this same situation before. The ER doctors refused to see Jack because he was admitted under Neurosurgery.

Even though Jack could have had a life threatening situation, we could not get medical attention for FIVE HOURS in a hospital because of bureaucratic breakdown and intra-department quarrels. All of this meant nothing to us as Jack’s parents. We didn’t’ care who could write the orders as long as SOMEONE was caring for our very sick child.

They ordered so many tests – chest x-rays, abdominal x-rays, a shunt x-ray series, more blood work, another urine catheter, were done. His white blood cell count was low but for the most part the tests came back within normal range. The final diagnosis was probable viral infection. Poor Jack was poked a prodded so many times and he was feeling so miserable our hearts broke for him.

We went without sleep for two days – and spent the entire time in ‘ER Limbo.’ We were promised a room on the pediatric floor which never happened. Although by Saturday we told them to not bother transferring us. We had a hard time getting anyone to look in on Jack – in fact, a lot of our calls using the call button were not answered. Countless times one of us had to go find someone to get Jack what he needed. We did end up with a very nice nurse who really did her best to check in on Jack and really listen to our concerns.

This whole ordeal was frightening enough and the added stress of not getting immediate care was horrible. Although once all the red tape was worked through we did see excellent doctors that listened and cared very well for Jack.

Jack was discharged Saturday to come home. We were so happy! Sunday he ate and drank well, but has had diarrhea each time. We were told he could dehydrate again very easily but we’ve managed to keep a lot of fluids in him. This morning (Monday) he had breakfast and seems to be back to his very cute little self!

We are taking it easy this week – we canceled all of his therapies and appointments this week to avoid over working him and to give him lots of rest and time to recuperate. Plus his white cell count is still a little low and we don’t want to expose him to too many germs or bugs.

Thank you all for your thoughts during this time. We really appreciate all the well wishes and help from our friends and families.

The pediatrician said her gut tells her it's a viral infection, but she did a urine cath and sent us for a blood culture to rule out anything bacterial that would require antibiotics. His ears were clear as well as his lungs. She called and the preliminary results show no growth -- so her thoughts are it's a virus. Jack also broke out in a small rash (a sure sign of viral infections). Jack is dehydrated and she told us to avoid getting ourselves admitted to the hospital we need to pump 2-4 ounces of pedialyte into him EVERY HOUR. She told us to give it with an oral syringe if needed. My poor baby is really not well -- I pray it passes soon. Also, to treat the fever she told us we can use one teaspoon of children's motrin every 6 hours. I am tired and spent from worry. I will keep you posted.

I was SO freaked out last night! Jack went to bed early (before 8:00 PM) and Jason was away...right when he got home Jack woke up so he went and got him and rocked him while we all watched TV. Well right when we were getting ready for bed (around 11:30 PM) Jack woke up with such a pitiful cry and cough...I ran over to his room and scooped him out of his crib. He was burning up and sweaty and all of a sudden he vomited several times. I took Jack's temp and it read 102.5!! Even though I am an 'ex-reflux mommy' I was so scared -- this was his first high fever and his first ever 'sick vomit' he was teary-eyed, sweaty and every shade of green/gray imaginable. I went through my mental check list for a shunt malfunction and decided not to panic unless the vomiting continued. About 15 minutes later I was able to give him Tylenol and he kept it down. He was still green and pathetic looking so we all set up camp down in the living room. I held him until 2:00 AM and finally put him in his pack and play. He didn't wake up or get sick since last night. This morning he's acting a little better, his fever is down to 101.5, and he held down 4 oz of pedialyte and some dry toast. I think he's feeling icky but I am not as freaked out as I was last night. I know this is normal kid stuff but man is it scary the first time it happens! I am calling the doctor this morning -- but really dread going there if this is just a bug. He's napping right now after a dose of Infant's Motrin -- let's hope that fever stays down. Please keep our little man in your thoughts.

Did everyone remember to turn the clocks back? I can't believe fall is here! Jack is doing very well -- he's turning into such a little ham...looooves to make people laugh! He's crawling much faster now and is getting himself into trouble and we LOVE it! He's working hard on pulling to stand and cruising sideways at the coffee table. All of his therapy is going well -- he has a lot of fun with his therapists! Jack has a neurology appointment this week -- just a regular exam and monitoring of his anti-seizure medicine. Let's hope for a good report! I am also posting some new pictures today!

Jack had an eye exam and all went well. He does not need glasses at this time (YAY!!) and everything else has remained the same. So no news is GREAT news. I have a silly story...Jack was getting his eyes examined and you know how the eye doctor leans in really close when he's peering into your eyes? Well Jack thought the eye doctor was leaning in for 'kisses' and that's what he did! Jack gave the eye doctor kisses...HA HA HA HA HA!!!!! Jack has several neat things to brag about this week!

First he started shaking his head "No" when he doesn't want something -- just does it with food and medicine right now -- but still a MAJOR milestone for us! Instead of crying or just turning his head he looks right at me and shakes his head "No" too cute!

He made his FIRST SIGN....for DADDY! It's too cute. He's only done it a handful of times, but hey, once is enough to convince me! It's so precious to see him communicating. The sign for Daddy that we use is an splayed hand with the thumb pointing to the center of the forehead. Jack can't quite get his hand to go precisely on his forehead so he taps the side of his head sort of like moose ears LOL!!!

Okay now the BIG one...Jack has never really made the "M" sound a whole lot much less babble with it. Well, clear as a bell Jack said "Ma, Ma" early last week. I was just THRILLED to hear his little voice say it -- it's so cute! We weren't sure if he was using it meaning mommy, but as the days went on it became pretty obvious he was talking to ME!! So I am pretty sure Jack has said his first word...and it was MA MA!!!

He's also moving much more...rolling and pivoting to get places, putting rolling and belly crawling together to go somewhere -- still needs a lot of work, but it's not as much like pulling teeth anymore.

We've had an excellent week

Hello! Jack's 18 month check up went very well. His pediatrician is happy with Jack's growth and development...one task we must work on is weaning Jack from his bottle! It seemed like it would be impossible because Jack refuses to drink much of anything from a sippy cup -- but we've made progress this week. My goal is to have him off the bottle in two weeks so when his occupational therapist comes back from vacation we have a HUGE surprise for her! Wish us luck, and please if anyone has any tips send them our way! Jack had his hearing tested last week -- he passed with a perfect score! He was such a good boy and cooperated very well for the test. We finally started speech therapy 3 weeks ago and so far Jack likes it. We have a lot of excellent therapists and we're very grateful for their help. As part of speech therapy we are starting to teach Jack simple sign language for babies. It's not clicking yet and Jack just thinks we're silly but eventually when he catches on it will help ease his frustration when it comes to communication. The theory is it will allow him to ask for things and communicate with us and by easing the frustration and boost his pride and words will come sooner. So far we've been working on: eat, hungry, drink, more, want, all done, daddy, mommy, puppy, kitty. I will let you know how it's going and of course when Jack makes his first sign! We had a great time at the beach -- I will post some pictures today! Unfortunately -- Jack had a cold for our trip -- it started a few days before we left. We spent a lot of time relaxing and going for walks on the beach -- we all loved it! He's feeling much better now.

He can belly crawl much faster but still tires out very quickly...and he needs constant enticement, begging, pleading, and PRAISE! He can hold the following positions if I physically place him there: hand and knee position, sitting (very well now), Standing while holding on to the couch, kneeling at the couch. He just has to work on moving on his own!!! He can't yet transition to any of these positions or get himself in these positions. We can get him to pull up from kneeling to standing but it doesn't come automatically...we are working VERY hard!

He can feed himself cheese curls, crackers and cookies as well as diced table foods. He used to be a big stuffer/shover but now he takes his time and takes perfect little bites.

He's teething like mad -- has some huge bumps towards the back of his mouth (molars?? eye teeth??) and he's not sleeping as well. We are approaching RSV and FLU season again and will need to be careful not to expose Jack to anyone that's sick. We aren't under 'house arrest' this year, we can go out but we'll have to pick less busy/crowded times to do our shopping or dining out. So we ask if you are sick or if anyone in your household is sick to please let us know before visiting with Jack. I think that's about it! As always he's my perfect little man -- playful and silly and quite cute (although I am a little biased!)

Hello everyone! We've been having such a fun summer. We've done play dates, a tumblebees class, swimming, picnics, cookouts, family reunions, the beach, long Sunday drives, and even a trip to Chocolate World. Jack's doing very well on his new medicine for seizures -- it made him sleepy the first few weeks but now he's back to his usual schedule. He's trying new foods every day -- most recently a veggie burger! Lots of good stuff packed in those. He's getting more teeth too. Right now he's got 4 on the bottom and 3 and 1/2 (ha ha) on the top and many more on the way. This is causing him to be a little cranky and wake at night, so hopefully they'll come through soon. The new format of this website doesn't allow paragraph breaks in the journal area -- so forgive me if it seems to ramble! Jack is getting physical therapy, occupational therapy and speech therapy once a week -- add that to all of our other appointments and we're one BUSY family! Jack has his 18 month checkup soon...I'll be sure to post an update! I am also adding some new pictures this afternoon!

Jack is now 17 months old!!! Such a big boy! Happy 17 month birthday Jack Riley!!! We've all been doing very well. Last week Jack got another haircut -- he was so good. He sat very still and laughed each time the scissors snipped -- too cute! He looks like such a little boy with his new hair cut. Jack's getting the hang of moving on his belly -- he does a sort of Army crawl now (of course it's when he feels like it!) we're happy he's moving! He can say Dada, Mama, Baba, and can snort like a piggy -- Thanks to Grandma Josie -- ha ha! He's eating VERY well and tries something new every day...Jack's the kind of guy who needs to taste a new food several times before he likes it. Recently we had several discussions with Jack's Dr's regarding anti-seizure medication. We were told even though it's technically okay to wait to put him on the medication, it's much healthier for him to be on the medication at this time. So we met with the neurologist again and he prescribed Tegretol. Jack started 1/3 of his dose earlier this week...over the next 3 weeks we are to slowly increase his dosage until he's at his therapeutic level of 3 ml 2 times a day. It makes him very sleepy so he's taking extra long naps right now. The doctor said the sleepiness should go away after he adjusts to the medicine (in about 2 weeks). Other than being a little more tired we haven't noticed any other side effects. He's such a little trooper! We hope everyone is enjoying their summer as much as we are! Be sure to check out Jack's new pictures posted this morning!

I was that the Dr. we were going to see at the CP Clinic "lacked bedside manner" MAN, was that an understatement. First -- the facts. They took x-rays of Jack's hips and legs which looked normal. He examined Jack and diagnosed him with Spastic Hemiplegia Cerebral Palsy. He said the spasticity is mainly in his arm but Jack has very tight hamstrings on the same side as well. Add that to seizure activity and a right visual field cut and you have a 'classic' case of hemi CP. I had suspected this was the case, even though his neuro felt it was mono (one limb).

Oooookaaay, now the bedside manner thing. He was rude and condescending -- and did not speak to us AT ALL. He would ask us a question and then give his opinion into a little taperecorder. He spoke to the wall into his recorder -- not once addressing us directly -- unless it was to smirk as if to say you're an idiot. I had a list of questions -- he let me get through about 2 of them and basically ended the appointment.

He wants to see us back in 6 months.

I am upset because to me, this clinic was 'IT' as far as getting answers and information. I do have many other great resources (Jack's therapists, other docs, etc.) but this was sort of the final place to put all of the pieces together. I may try to see if we have a case manager -- or if we are going to be involved in the full program as Jack gets older.

Jack has always been social -- no news there, right? Do you believe he's getting even MORE social? Our little man LOVES to go out to eat. I think restaurants are his favorite thing in the world right now, (right next to swimming and swinging of course). He's such a good baby when we're out even though he LOVES commanding attention at the dinner table by 'talking' over everyone else...almost to say "HEY -- DONTCHA WANNA HEAR WHAT I HAVE TO SAY??" too cute! We always have such a good time! Jack's been eating mostly table food these days -- I am amazed at how he loves to eat. He loves to feed himself and make a mess for mommy and daddy! The dog has learned to sit by Jack because eventually there'll be something yummy heading to the floor! Jack now says DA-DA -- but we're not exactly sure if he's talking directly to Jason, because everything is DA-DA...Jack where's the puppy? DA-DA-DA, Jack's where's mommy? DA-DA, Jack, where's daddy? DA-DA!! Ha ha ha...he's such a great little guy! I have updated the Favorites part of the webpage -- check out all of Jack's new favorites!

Bright and early tomorrow morning Jack has an appointment at the CP Clinic at the medical center. We see an orthopaedic surgeon for an evaluation and will probably speak to a case manager to discuss Jack's involvement in the program. Wish us luck -- I will update when we get home. Hope everyone's having a great week so far!

We had Jack’s neurology appointment this morning…

The neurologist was a very nice and gentle man – he was very willing to answer all of our questions…Jack liked him instantly and decided he was going to jabber his entire life story to the doc! It was too cute!!!

Seizures: At this point since Jack’s only had one episode, and it was mild – he does not want to put him on medication. Since Jack is showing abnormal readings from his EEG this puts him in a higher risk category for future seizures. The doctor said since Jack’s first seizure was mild this is an indication that future seizures would most likely be mild as well. If he has more seizures it’s likely he’ll prescribe anti-seizure medicine. We are to report any episodes to him.

CP: There are many different types of CP. It is diagnosed and named for the affected muscles. He diagnosed Jack with Spastic Monoplegia Cerebral Palsy…basically meaning abnormally tight muscle tone affecting one limb. In Jack’s case it is his right arm. The neurologist does not notice a significant difference in Jack’s legs – which we are monitoring. If it is eventually obvious that Jack is using his entire left side (arm & leg) better than his right side the diagnosis would be Spastic Hemiplegia CP. At this point this is not the case. To read more on CP and the different types, copy and paste the following link:

http://www.ofcp.on.ca/guide.html#06

There are several different management options we will explore. Currently we are involved in the most important – THERAPY!! We’ve been lucky to have been receiving services for over a year now. This has helped Jack so much! We will see an Orthopedic Doctor to discuss further management options like braces, Botox injections or even surgery. Since Jack is so young at this time, he will probably do well with braces. I think botox and surgery are for older children.

We see the neurologist again in 4 months.

All in all the appointment was very informative and given such daunting circumstances we feel very lucky both the seizures and the CP are mild. Jack continues to amaze me every day – there is no limit to what he can do!! Thanks to all of you for thinking of us and being there during the last few weeks. Please don’t hesitate to ask any questions. Jack is sacked and sleeping since he decided to stay up most of the night last night – and then decided he wanted breakfast at 4:45 this morning!?!? He’s been awake ever since…so he’s taking a much needed rest and I should too!

We took a mini last minute vacation to visit he beach this weekend and boy did our little family need that. For two days there was no appointments, runaround or phone calls. We got to be a 'normal' family doing a 'normal' summer activity...Jack enjoyed himself so much -- it was exactly what we needed!! We had a wonderful time!! I just added a vacation album to the photos section!

They called and told us we have a NEUROLOGY appointment Tuesday, 7/13 to discuss the EEG results...soooooo after all of that drama it's FINALLY settled! Thank goodness.

JACK WAS DISCHARGED FROM THE NICU FOLLOW UP CLINIC!!!!! His neonatologist feels Jack is doing well enough and is involved in all the appropriate programs that he no longer wants to see him!!

It was a relatively uneventful appointment -- we didn't really learn anything we weren't already aware of and working on. Jack will still be followed by his opthamologist, neurosurgeon, neurologist and Early Intervention.

It's sad in a way because we became close to the NICU staff and it's bittersweet that we've outgrown them. He asked that we stop in to visit so he can see Jack every once in a while.

I guess my guy is growing up!!

EEG/Seizure update...Ahh, finally I spoke to someone willing to give me peace of mind (for now anyway) they DO NOT want to wait until August. They are in the process of scheduling an appointment ASAP. This is good news. The sooner we see a neurologist the sooner we'll know what we're dealing with. They are going to let me know by the end of the week. Thanks to my family and friends for listening to me the last few weeks. I honestly don't know what I'd do without all of you. THANKS!

Well I am no further with any more knowledge than yesterday. I am so frustrated right now!! The EEG office (neurophysiology) says since Jack's never been seen by the actual neurology department they are NOT ALLOWED to release information to me. They said I should talk to his ped's office as the ball is in their court right now as far as getting him in sooner than August for a neuro appointment. AARRRGGGHHH!! Time for the next round of phone calls! Tomorrow is another day!!! Jack is fine -- no seizure activity since that very first time several weeks ago. He's been fine ever since which is why I think the abnormal results were such a shock! On a much lighter note, Jack has become quite the little swimmer! He loooves the water so much. He has a small innertube and when he's in it he swims across the pool all on his own (with mommy inches away of course). He cries when it's time to get out of the pool. I need to remember to bring my camera so I can get some pictures posted of our little fishy! Thanks for your thoughts the past few weeks -- they mean a lot!

Well our results are back and it's not good. Jack is showing seizure activity...the nurse at his ped's office didn't say much and the office where he got the EEG is closed for the evening. She said we'll more than likely see a neuro sooner than August. I am shocked. I didn't think it would be abnormal. I don't know why but it was just a feeling I had. And to think I had to FIGHT for him to have the test in the first place!!!!! I asked the nurse if Jack was in any danger and she said no, but if he were to have a seizure to take him to the medical center. Please, please keep us in your thoughts.

Thank you all very much for your support. I am sitting by the phone this morning waiting on a return call from the Neurophysiology department...hopefully they will be able to explain the results much better than the nurse from our ped's office.

I have a book that has an entire chapter related to seizures. From what I read it sounds like medication can definitely control seizures, change in diet or no intervention at all. I have my ever ready list of questions -- hopefully they will call back soon.

Jack had his EEG today and well, we won't know the results for a WEEK!! and the technician wouldn't tell me if she noticed anything 'odd' so we're in for one of those nail biting weeks.

Jack HATED the test -- it was painless but he hates being held down -- which I had to be the meanie to hold him tight to the table :( Although I wouldn't have wanted anyone else doing it -- I feel like he hated me because I was doing this 'awful' thing to him! The glue they used smelled like gasoline! They put many little probes all over his head, neck and chest...it lasted about 30 minutes and then they 'oiled' up his head to remove the probes. He screamed the entire time :( I felt so sorry for him! He's usually such an easy going kiddo!

I am hoping for good results -- please keep us in your thoughts this week. I must run, the man NEEDS a BATH!!!! Will post another update soon!