Tuesday, July 20, 2004

I was that the Dr. we were going to see at the CP Clinic "lacked bedside manner" MAN, was that an understatement. First -- the facts. They took x-rays of Jack's hips and legs which looked normal. He examined Jack and diagnosed him with Spastic Hemiplegia Cerebral Palsy. He said the spasticity is mainly in his arm but Jack has very tight hamstrings on the same side as well. Add that to seizure activity and a right visual field cut and you have a 'classic' case of hemi CP. I had suspected this was the case, even though his neuro felt it was mono (one limb).

Oooookaaay, now the bedside manner thing. He was rude and condescending -- and did not speak to us AT ALL. He would ask us a question and then give his opinion into a little taperecorder. He spoke to the wall into his recorder -- not once addressing us directly -- unless it was to smirk as if to say you're an idiot. I had a list of questions -- he let me get through about 2 of them and basically ended the appointment.

He wants to see us back in 6 months.

I am upset because to me, this clinic was 'IT' as far as getting answers and information. I do have many other great resources (Jack's therapists, other docs, etc.) but this was sort of the final place to put all of the pieces together. I may try to see if we have a case manager -- or if we are going to be involved in the full program as Jack gets older.

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