Just when we seem to get on with life and "forget" about those ugly things, they come out of the blue...we just (after a year and a half) put Jack back in his own bed to sleep...
For some reason he wanted to sleep in our bed tonight so I laid down with him until he fell asleep. Jason noticed Jack was awake about a half hour later. I went in and got in bed with him and he was just staring -- not unusual when he's trying to get back to sleep...then it turned eerily familiar (with some new twists too) he started blinking rhythmically with his head slightly moving and kept pointing to my eyes and saying "eye" over and over again with a monotone voice. He didn't flinch when I put my hand near his eyes and then he lost color in his face and started with chewing mouth motions and wiggling tongue motions, rapid heart beat, and then I noticed his left hand was opening and closing...just when I was going to give him diastat (about the 10 minute mark) he "came to" and said "Night night mom" and "yuv you" and went back to sleep.
He's fine now, sleeping away in our bed and Jason just went back to be with him. Of course there will be a call in to his neuro tomorrow (we just had blood levels done Thursday -- which will be a big help in deciding what to do with his meds) and hope there are NO MORE seizures between now and then.
This is the part that I hate -- do I send him to school like a ticking seizure-bomb? Or was this a once and done thing? How do we decide these things? Where's the manual on this stuff?
I will keep you all posted...hope everyone had a great weekend! (ours was AWESOME up until an hour ago...swimming pictures to come!!!)
Thank you. Where IS the manual? Some days I just want to keep my baby at home and away from the rest of the world. Other days, I figure if he survived the first month, than there's nothing he can't handle.
ReplyDeleteSeriously, a manual would be nice.
Huge hugs! I'm sorry he had another seizure, but am glad he came to without meds. I hope today is better.
ReplyDeleteWell, he won't be going to school today seeing as he was up all night, vomited once (post seizure vomit) and had another seizure this morning :( -- waiting on a call back from the neuro...
ReplyDeleteHope he feels better soon I hope his teachers know
ReplyDeleteAnd another at 1:30 -- dr called we're increasing meds...fingers crossed it works...
ReplyDeleteOh Angie.. Our fingers are crossed and our prayers are said. Hopefully the increase in meds will work. Please let us know if we can do anything.
ReplyDeleteLove, Papa & Jan
Seizures are so aweful!
ReplyDeleteGlad you didn't need Diastat. Do you have to take him to the ER after giving it?
-Patty
Patty, most of the time we end up in the ER after giving diastat -- although there was one or two occasions where we didn't. Twice we called 911 -- and hope to not have to do that again!
ReplyDeleteI just read your plan on Diastat and calling ahead to the ER. I am glad it worked out smoothly for you this last time. (((hugs)))
Where's the manual, indeed. If you find one, I'll take one, too.
ReplyDelete