This has been one BUSY week! Morgan had her 6 month check up -- she's doing well! Meeting all of her milestones and is 50% across the board for growth! She weighs 16.5 lbs and is 26 inches long. She had immunizations and a flu shot. Jack also had a booster shot and a flu shot -- the chorus of cries were heard throughout the office! Due to a pharmacy issue we trialed her off of her Prilosec (reflux med) and decided to wait a few days to see if it returned. So far she's reflux free and it's been over a week! WOO HOO! I ended up taking both kids on my own. The pediatrician's office is small and I had an okay time of it.
Later, that same day, we had to go to the Med Center for Jack's physiatrist appointment. I had Morgan in her front carrier, Jack in his wheel chair, the backpack on my back and the walker on my arm. We got lots of stares -- I must have looked like a one-mom traveling circus! People jumped to open doors and a nice lady took the walker and carried it to the office!
The appointment went well. Jack was evaluated for botox and she feels he really needs it in both legs and right arm. We talked about what Jack can do gross motor wise and we also got a referral to the hand clinic for a day time splint for his right hand. She also gave us an Rx for Baclofen in it's pill form (right now we have it compounded into a liquid). I am a little skeptical about Jack taking the pill -- for those who have Baclofen in pill form, what do you do to get your kids to take it? Jack's scheduled for the Botox injections on December 17th. Not too far away at all! I was expecting a much longer wait.
We talked about Jack's wheelchair and she said she'd help us in any way to try and get what's called a one arm drive system for the chair. Jack is really not able to use his right hand at all to push the right wheel. A one arm drive is an attachment that will propel the chair when it's pushed on the left side only and keep it straight so he can push with his left arm to get around. It's probably going to take forEVER since the vendor is really, really bad about returning my calls and following up. Guess I'll go bug him again this afternoon. UGH.
Jack's been going weekly to LV College to participate in their physical therapy program. He is working with the PT students who are in their 6th year of school and getting ready to graduate. He loves going because there are other kids from his school there as well! It's a volunteer program at no cost to us. It's supervised by their instructor a Dr. of Physical Therapy -- who also works part time at Jack's school. Morgan even volunteered one week so the students could assess an infant. They used the AIM gross motor scale for which she scored right at 6 months of age.
Jack is a little under the weather today, so we aren't going to go to therapy. He had a low grade fever and is coughing. I hope whatever this is passes quickly.
I feel like I am forgetting things I wanted to write about! Oh well, that's the cool thing about blogging -- I can just start another post later ; )
Oh, one cute tidbit...the set of language builder cards contains 350 cards...every once in a while I go through them and pull out several cards to add to Jack's ever growing stack of ones he knows. This week I added a picture of corn on the cob. I knew he knew what it was, and when I asked him he said "Old Corn" I have no idea...I told him it was "corn" he smiled and said "old corn" huh??? it makes me giggle every time.
Sounds like you are super mom!
ReplyDeleteHolland takes Singulair in pill form. I don't know how the Baclofen tastes, but the Singulair is pretty yummy, almost like candy. She still resists taking it sometimes, just for the fun of it I think... But, I went to the dollar store and filled a box with little fun things for them. We call it the "prize box" and when she gives me trouble I tell her that if she takes it "right now, with no fussing" she can pick a prize out of the prize box. Works every time.
They also get to pick prizes when they sit on the potty, help pick up their toys, etc. They get really excited about it!
We crush the baclofen pills and pour it into a spoonful of yogurt, oatmeal, or icecream. We haven't had any problem giving it to him that way.
ReplyDeleteI am so impressed with all the options you have in your area for therapy and dr's. How neat that Jack gets to do therapy with other kids that he knows.
Yeah for Morgan being right on track developmentally and yeah for no more reflux.
the wheelchiar helper sounds super cool. come vist me
ReplyDeleteJack looks like such a big boy sitting at the computer! And, yeah for Morgan for being...well...right on track =).
ReplyDeleteHugs,
Heesun
Angela,
ReplyDeleteQuestion about compounded baclofen vs. the pill. William was taking the pill but I got the okay to have it compounded since cutting and crushing pills was taking so much time. (I just put them in his bottle... not much help to you)
What was the reason Jack's doctor wants him to start taking the pill instead of the liquid? Because if it is better for William, I'll switch back to the pill!
Thanks for the info!
Lisa
Hey Lisa -- I asked the new physiatrist how she usually prescibes Baclofen for kids Jack's age. In my opinion for a little man like William the liquid is best -- that way you can make sure he gets all of it. It will take the pharmacy almost a day to make it (they have to soak, crush, and mix the pills with liquid). Just FYI. I have a refill left on the liquid and then I will try the pill form.
ReplyDeleteThanks everyone for your tips and tricks! Billie, I found the perfect "prize" for Jack at the grocery store on the clearance rack -- tiny halloween tattoos! He loves them and I get his full attention and cooperation when I tell him he can have a tatoo! lol!