One word -- Reflux..poor Morgan can't be put down much lately at all. The Zantac isn't working one bit, so the dr. called in an rx for Prilosec which we're going to pick up as soon as Jack gets on the bus.
Thanks everyone for your comments and suggestions on my previous reflux post. The rice cereal is helping with the not spitting up, but I can hear it rise in her throat and can tell it's burning. Her voice is getting raspy again -- I hope the Prilosec helps more than the Zantac did.
Thanks everyone for your comments and suggestions on my previous reflux post. The rice cereal is helping with the not spitting up, but I can hear it rise in her throat and can tell it's burning. Her voice is getting raspy again -- I hope the Prilosec helps more than the Zantac did.
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He started riding the bus again last week. It's a lift van and he rides in his wheelchair. I had a lot of anxiety at first, but now it's getting more routine. He has a nurse that meets us here, rides the bus to and from school with him and is at the house about an hour after school. You would think that would be a relief and helpful, but it's actually stressing me out. Since Jack doesn't require full time care it's hard to get a steady nurse, so I am always training or orienting a new person. I feel kind of like I don't know what they're supposed to be doing. They sit with him during snack time, work on flash cards and some can do range of motion and stretching with him. The nurse we have today took care of someone with Quadriplegia for several years so she'll be able to stretch Jack with no problems.
Jack's behavior has improved (knock on wood PLEASE) since we tweaked his dose a little more after our neuro appointment last week. We were also given Clonazepam for the uncontrollable, huge meltdowns. Hopefully we won't have to use it but we have it just in case.
We are going on a mini vacation to visit my friend Kris and her family this coming weekend!!!!!!!!! I am soooo looking forward to it. We'll take tons of pics I am sure! We're staying in a hotel with an indoor pool, so even if the weather doesn't cooperate we can always hang out at the pool.
I haven't been getting any sleep...I am up holding Morgan most of the night...I've been able to watch a few good movies and shows. I really like the real estate shows, especially the ones where they buy up an old beat up house and flip it and sell it for a major profit!!
Anyway, Jack's really fussy now because he hasn't napped, Morgan's crying and the bus will be here in less than an hour.
I hope everyone is doing well! I am sorry I haven't been around much.
Jack's behavior has improved (knock on wood PLEASE) since we tweaked his dose a little more after our neuro appointment last week. We were also given Clonazepam for the uncontrollable, huge meltdowns. Hopefully we won't have to use it but we have it just in case.
We are going on a mini vacation to visit my friend Kris and her family this coming weekend!!!!!!!!! I am soooo looking forward to it. We'll take tons of pics I am sure! We're staying in a hotel with an indoor pool, so even if the weather doesn't cooperate we can always hang out at the pool.
I haven't been getting any sleep...I am up holding Morgan most of the night...I've been able to watch a few good movies and shows. I really like the real estate shows, especially the ones where they buy up an old beat up house and flip it and sell it for a major profit!!
Anyway, Jack's really fussy now because he hasn't napped, Morgan's crying and the bus will be here in less than an hour.
I hope everyone is doing well! I am sorry I haven't been around much.
I love the pic of you with the kids. You and Jack share the same beautiful smile:)
ReplyDeleteI'm sorry about the reflux. How long does that problem stick around? I hope the new meds work for her so you can get some rest and time for yourself if thats possible.
Is the nurse provided through the school, your insurance or some other program. I would love to get some help with Crew. How is Jack doing with his wheelchair and his walker. I wish you lived closer so we could get the kids together. Jack is such a doll and an inspiration to me. I love it that he can pull to stand and am wishing Crew would get there soon. Hugs to you!
I don't have a newborn, and I haven't been around near as much as I should be. Newborns are tough stuff. :) Esp with reflux. I hope the new med does the trick.
ReplyDeleteI love the picture of you and the kids.
That's a beautiful picture of you and the kiddos. Reflux is a horrible problem...I am so sorry that Morgan is experiencing such pain.
ReplyDeleteEnjoy your vacation!
Angela,
ReplyDeleteYou are watching the same shows I am. I hope the reflux eases for you. If it makes you feel any better, I continuously smell like baby vomit - it's my new scent.
Enjoy the min-vacation!
L,
Jacqui
Reflux is a pain in the askiiii. I am sorry you are dealing with that.
ReplyDeleteWe use prevacaid and it works well for us, but did not work at all with my first baby.
Have fun on your darn trip, you deserve it!
Ethan has an "aid" that does very similar things with Ethan.
I love hearing from yoU!
I have a Reflux wedge that was used for Hunter when he had his reflux. The child is angled at 45 degrees and can be laying in it on tummy or back. let me know if you'd like to try it. i can find a way to send it to you.
ReplyDeleteHang in there! Hope you can catch some sleep...
ReplyDeleteReflux is no fun. Hope the medicine do the trick.