Hello, I am so sorry I haven't been around -- things have been, well, as usual very hectic around here!
We saw Jack's new neuro two weeks ago -- he was AWESOME! Very direct but not condescending, open to questions, and also made some interesting observations and gave me a lot to think about. He ordered an MRI which I have wanted to get for quite some time and we scheduled an appointment to do nothing other than discuss Jack's entire brain!!!
During the appointment we made the decision to start weaning Jack from Tegretol because it's been almost 2 and a half years since his last seizure. I was very confident that this was the right thing to do. We are to wean over many weeks -- he was on 6 ml 2x a day, and we're only down to 5 ml 2x a day this week.
Well this morning Jack was in his booster seat eating breakfast and he had a VERY blank look, looked over to one side and he was moving his mouth like he was chewing and he was drumming his fingers (with his left hand) on his tray. I tapped him on the arm and said his name with no response...I then SHOUTED "JACK!!!!!" and he looked at me and made a sad face like he was going to cry...
I believe it was a Simple Partial Seizure
Which follows his diagnosis...
I called the neuro and spoke to his nurse and she's going to pull Jack's chart and have the neuro call with instructions.
I believe I'll keep him home from school today until we hear from the neurologist.
Oh you poor little thing! Just when you think it's safe, oh well, if you have to take your medicine, then that's what you do.
ReplyDeleteI know everything will be fine, but I'm sure it put one heck of a scare into Mommy. AND-rightfully so! We take no chances with such a special little man. Better safe than sorry, I always say. Besides, you probably wanted a day off school anyway!!
I'll say an extra little prayer tonight in hopes that all is well.
Love you, Grammie
Oh, I hope it wasn't a seizure. Big hugs your way!
ReplyDelete