Well, we're up to patching Jack's right eye 8 hours a day...which is okay, but it means he'll have to wear it to school. I guess it'll be better now that he's more adjusted and the other kids probably won't pick on him...if anything they'll think it's cool!
The good news is, he's not totally convinced Jack has a visual field cut. Since he is new to Jack's case (our other PO left July 2005) he didn't see Jack when he visually neglected things on the right. Now Jack doesn't miss anything. The Dr. mentioned a new type of VEP testing done with electrodes that is in trial at the hospital. He said it should be available in 6 to 8 months and Jack would be a good candidate for this type of testing. He said it's hard (as we all know) to determine functional vision in pre-verbal children. While Jack detects things and is very accurate we still don't know how he processes higher level things and part of that will come with time. I think his hand eye coordination is amazing (for having CVI AND CP) and doesn't look too much different than his peers (other than he only uses one hand, but vision wise I mean). So it's very promising that the Dr. isn't ready to say he has a permanant field cut!!!!!!!
He gave us a prescription for sunglasses for Jack so he can have his indoor glasses and his outdoor glasses too! I asked about transition lenses and he said he doesn't think they'll be dark enough to make Jack comfortable outside. Do any of your children wear transition lenses?
He still has not ruled out surgery to correct the lazy eye/neglect/eyes turning in...so we see him back in 5 weeks for another look.
While we were at the UPC, I took Jack for bloodwork to check his medication levels...he wasn't too happy about that but they are sooooo good there it was over and done in a flash! He even got a cookie monster sticker and everything!
Just wanted to update everyone! Thanks for reading...
Is that the "Big Boy" Jack I see in the picture? Book Bag and everything!!! NEAT! You look sooooo handsome and grown-up, it's hard to believe it is really our "Baby Jack". I'll bet you even have a few girlfriends at school already. But remember--you only kiss the older women in your life, there's plenty of time for that "other stuff", later, MUCH LATER!!
ReplyDeleteGreat news on the eyes! We all knew you didn't miss a trick, but it's so good to hear it from the Doc! Keep up the great work. You know, watching all the birds outside the kitchen window at your new house will be great practice for those peepers of yours. I think there are about 5 or 6 feeders in the tree along with a bird bath, so you should have lots of fun bird watching. Hopefully you'll enjoy it as much as Nana did.
See you soon big guy, I gotta go pack some more boxes.
Love, Grammie
Hey Buddie!! How are you? All ready for your big move? It's a lot of work, isn't it? Well, tomorrow is our big day. We move!!! Now all of those boxes I packed, I can unpack. Sounds exciting, doesn't it! This will be the last time I can visit you online until we are all settled and have the computer hooked up. So Mommy, not too many updates, I don't want to miss a thing! AND--- all those boxes I unpack, I'm giving them to you, so you can have as much fun as I did!!
ReplyDeleteWell time to make supper for Papa and Tori and have a wonderful meal on those beautiful paper plates we've been using!!
Love you guys, see you soon,
Grammie