Wednesday, April 20, 2005

We had a followup appointment at the feeding clinic yesterday. Our primary reason for seeing the feeding team is poor weight gain/failure to thrive. Last appointment (3 months ago) the dietician said she felt Jack would gain more weight if he had more liquids in his diet. She prescribed duocal and set our liquid goal at 5 cups (40 oz) per day. This goal seemed so outrageous to me and it felt like we were being 'set up to fail.' Six weeks after our appointment we had a weight check. Jack was gaining (although he wasn't even close to 40 oz per day! He gained almost a pound in six weeks!!! She calculated him gaining about 4 grams per day which put us in the 'normal' rage for kids his age. Typically kids gain between 4 and 10 grams per day at Jack's age. I was thrilled that we were on the scale, even if it was at the very bottom!!!

Yesterday Jack weighed in at 22 lbs, 3.3 oz!!!!! He's now gaining TEN GRAMS A DAY!!!! He's at the TOP of the scale!!!! He's taking in 1500 calories a day and drinking about 3 1/3 cups (28 ounces). The dietician was pleased and had no new goals just to keep doing what we've been doing!

The OT and ST that were present were getting on my nerves -- so much so that it nearly made me forget the fact that we are accomplishing our weight gaining goals!!! THey were just annoying me with those comments like "hmmm, Jack doesn't use his righ arm. Do any of his therapists work on that arm?" Um, no...let's see Jack has CP and we get tons of therapy...plus I stay at home with him...nah, we don't work on that arm at all. Plus, they were only seeing him from one angle doing one task. Jack will use both arms (and he keeps amazing me each and every day) just not all the time. So I am trying to just remember the reason we were at the feeding clinic -- to get Jack to gain weight and it's WORKING!!! They said a few other things, but it's not important. We are on top of things with OT and ST. We go back in 4 months -- and after that we may just follow up with the dietician.

So after all of that -- it was very good news! Thanks for reading

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