So it's been a while and I am sorry! So many things to catch up on I am not even sure where to start! So here is a very "off the top of my head" update!
School is going very well for Jack this year. His team continues to work so hard at helping him succeed and learn and it's showing! Jack's talking and vocabulary has exploded since last year. It's amazing to hear him talk these days! He's also doing really amazing things with his walker as well. He's also doing stairs (assisted) and his legs are stable. We're going to do another round of botox in December and he'll also be evaluated for surgery (his left leg turns in at the knee and our physiatrist feels it's his muscles pulling on his bones and we do not want his bones to grow abnormally). We'll know more in a few weeks. His academic skills are coming along too and looking back over the past year we really do see a lot of progress! Jack had several days where he had small seizures and after an increase in his Keppra (fingers crossed) we haven't seen any lately. His Keppra levels are already on the high side, so we don't have much room to increase this med. I really hope he remains seizure free because it's so hard to switch seizure meds and it can take months and months of behavior changes and seizures until we reach a stable point. He's doing so well I really don't want to see this happen!
On the adoption front -- we are officially waiting (as of August) and expect to have a referral perhaps by this time next year! It's great to have all of the interviews and mounds and mounds of paperwork behind us. Now all we do is wait! I am having moments of excitement and other times it's hard to imagine it's really going to happen!
Morgan is growing up fast! She's funny and smart and can talk a mile a minute! She's always exclaiming how beautiful things are or how sweet someone is or how much she loves something. She loves to show affection and make us laugh. She's also very, very stubborn and willful! She's thrown a few good tantrums here and there and tests our limits daily. I plan on sending her to preschool after she turns 3 to the same school Jack attended, but maybe only 2 1/2 days a week. It's hard to believe she'll be 3 in April!
We are looking forward to the holidays and spending time with our families. I have so many
pictures to share and will be uploading more soon!! I would like to do weekly updates -- there's so much I want to mention but it's all too much to remember or put into a cohesive story!!! So that's my goal to post at LEAST weekly from now on!
Must run -- time for the kids to get a snack!